Meningitis in your words

Sharing stories to save lives worldwide

Storytelling is powerful, bringing experiences into focus and forging connections like nothing else. That is why the telling and reading of an individual, real experience of meningitis can spread awareness, foster understanding, and inspire and empower others. Through words, each account offers hope, comfort, and, above all, saves lives. Whether you carry the physical and emotional scars of meningitis or are grappling with the aftermath, your testimony can ignite action, understanding and strength in others across the world.

Meningitis in your words

2,030 voices for 2030

Stories of meningitis. For you, by you. Submit your story
1 last month Our goal

801 stories

2030

Your latest stories - in your words.

As we head towards 2030, people are adding their stories every day. So, whether you want to motivate and inspire others or want to read people’s experiences of meningitis and sepsis, you’ll find a story that resonates and reminds you that you are never alone.

Rachel Daniels's full story
  • UK
  • Bacterial meningitis, Other bacterial meningitis and septicaemia (sepsis) type
  • Teenager
Rachel Daniels's story For my 17th birthday, I celebrated with a big group of friends at a university campus...
Marsha  Pearson's full story
  • UK
  • Bacterial meningitis, Pneumococcal
  • Adult 25-59
Marsha Pearson's story On the Friday I felt great, I had ran 5k the day before at the gym.an...

All stories

Hayley Tamaddon's full story
  • UK
  • Viral
  • Adult 25-59
Hayley Tamaddon's story Actress, Hayley Tamaddon, famous for her roles in Emmerdale and Coronation Street, contracted mening...
Susan Goto's full story
  • UK
  • Unknown meningitis and septicaemia (sepsis) type
  • Baby 0-1
Susan Goto's story I was diagnosed with meningitis just before my first birthday 69 years ago, I was very lucky my Gp recognised the symptoms, the only after effects I have is I am deaf in one ear
Bec Hutchinson's full story
  • UK
  • Meningococcal
Bec Hutchinson's story My older sister tragically died the Christmas of 1998...
Anna Stabell's full story
  • UK
  • Group B meningococcal (MenB)
  • Adult 25-59
Anna Stabell's story On Monday 7th November 2022, I was the luckiest possible person of the unlucky few. ...
Cheryl Bernadine Repko's full story
  • USA
  • Viral
  • 60+
Cheryl Bernadine Repko's story In 1985 i was a happy, single lawyer in washington, d...
Mark Austin 's full story
  • USA
  • Viral
  • Adult 25-59
Mark Austin 's story My first time started with a splitting headache...
Livia Wilson's full story
  • UK
  • Bacterial meningitis
  • Teenager
Livia Wilson's story Livia was an outgoing 19 year old, who loved socialising, going clubbing, going to festivals, going ...
James Patrice's full story
  • Ireland
  • Bacterial meningitis
  • Child 6-12
James Patrice's story Irish TV presenter and social media creator, James Patrice, almost died of bacterial meningitis at t...
Danny M's full story
  • UK
  • Meningococcal
Danny M's story A few days after I was born, all those years ago, my mum noticed I was sleeping a lot and being sick...
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Make a difference. Share your story.

Survivors, partners, parents, carers, friends, heath workers – everyone has a story to tell. Every story is unique, personal and has something to offer. Whether it’s compassion, encouragement, optimism or despair, by sharing your story you will be helping others who are suffering or have suffered from meningitis and sepsis, letting them know that they are never alone.

Journeys of hope

Even in the darkest of moments, there is hope. People who have overcome meningitis share their inspiring stories of recovery and optimism for the future. View all
Scott Stillman's full story
  • USA
  • Unknown meningitis and septicaemia (sepsis) type, Viral
  • Adult 25-59
Scott Stillman's story In August 2021, our daughter Lucy returned to St Lawrence University in upstate NY for her second ye...
Seema Jaswal's full story
  • UK
  • Bacterial meningitis
  • Teenager
Seema Jaswal's story TV presenter Seema Jaswal contracted meningitis at the age of 16, while she was studying for her A-L...
Kirsty 's full story
  • UK
  • Meningococcal
  • Adult 25-59
Kirsty 's story

Stories of strength

Tales of courage, determination and resilience, and how the human spirit can conquer even the hardest of challenges brought by meningitis. View all
Monica's full story
  • Europe
  • Unknown meningitis and septicaemia (sepsis) type
  • Baby 0-1
Monica's story My name is Monica from Norway. B...
Errol Kendall's full story
  • Australia
  • Other bacterial meningitis and septicaemia (sepsis) type
  • Baby 0-1
Errol Kendall's story I was born in the early fifties, my parents in their 30s and I was their 3rd child and their first b...
Luke adams's full story
  • UK
  • Group B meningococcal (MenB), Other bacterial meningitis and septicaemia (sepsis) type
  • Teenager
Luke adams's story It was Easter Friday . M...

Tales of tenacity

Living with and through meningitis is a battle in all sorts of unimaginable ways. Here, people share their tales of overcoming hurdles and winning even the smallest of battles. View all
Dianora 's full story
  • Group B meningococcal (MenB)
  • Young Adult 20-25
Dianora 's story
Irene Lopez's full story
  • Spain
  • Bacterial meningitis
Irene Lopez's story On September 14th 2012, I was 29 years old. T...
CoMO Member
Cheryl Bernadine Repko's full story
  • USA
  • Viral
  • 60+
Cheryl Bernadine Repko's story In 1985 i was a happy, single lawyer in washington, d...

Circles of support

Coping with meningitis is often a team effort. Read the experiences of families and friends who have supported their loved ones through their battle with meningitis. View all
Jay Aston and Josie Colquhoun's full story
  • UK
  • Bacterial meningitis
  • Teenager
Jay Aston and Josie Colquhoun's story Bucks Fizz singer, Jay Aston, immediately recognised t...
Emily 's full story
  • UK
  • Meningococcal
  • Young Adult 20-25
Emily 's story
Mellodi March's full story
  • USA
  • Unknown meningitis and septicaemia (sepsis) type
  • Baby 0-1
Mellodi March's story I am Katelyn March, Mellie's mommy. H...

Healthcare heroes

Stories that celebrate the compassion and commitment of healthcare professionals, and the vital role they play in treating and supporting people with meningitis. View all
Hayley Tamaddon's full story
  • UK
  • Viral
  • Adult 25-59
Hayley Tamaddon's story Actress, Hayley Tamaddon, famous for her roles in Emmerdale and Coronation Street, contracted mening...
Erin Lamond 's full story
  • UK
  • Escherichia coli (E. Coli)
Erin Lamond 's story My daughter contracted ecoli meningitis at 10 days old...
Simone Shoffman's full story
  • UK
  • Viral
  • Toddler 1-3
Simone Shoffman's story Social media influencer Simone, also known Si Si, Shoffm...

Beyond meningitis

Many people don’t want to be defined by their illness. Here, they share their stories of personal growth, pursuing their passions and fulfilling their ambitions. View all
Aaron Phipps MBE's full story
  • Other bacterial meningitis and septicaemia (sepsis) type
  • Teenager
Aaron Phipps MBE's story Gold medal-winning Paralympian, Aaron Phipps MBE, had to have both legs ampu...
Leo 's full story
  • UK
  • Meningococcal
  • Baby 0-1
Leo 's story