Meningitis in your words

Sharing stories to save lives worldwide

Storytelling is powerful, bringing experiences into focus and forging connections like nothing else. That is why the telling and reading of an individual, real experience of meningitis can spread awareness, foster understanding, and inspire and empower others. Through words, each account offers hope, comfort, and, above all, saves lives. Whether you carry the physical and emotional scars of meningitis or are grappling with the aftermath, your testimony can ignite action, understanding and strength in others across the world.

Meningitis in your words

2,030 voices for 2030

Stories of meningitis. For you, by you. Submit your story
3 last month Our goal

806 stories

2030

Your latest stories - in your words.

As we head towards 2030, people are adding their stories every day. So, whether you want to motivate and inspire others or want to read people’s experiences of meningitis and sepsis, you’ll find a story that resonates and reminds you that you are never alone.

Paul Hodgson's full story
  • Meningococcal
  • Adult 25-59
Paul Hodgson's story Paul Hodgson from Darlington in County Durham in the UK contracted meningitis as a baby, more than f...
Frank Rogers's full story
  • UK
  • GBS (Group B streptococcal)
  • Toddler 1-3
Frank Rogers's story Our son Frank was born in March 2017...

All stories

John's full story
  • USA
  • Meningococcal
John's story It was an ordinary day in the Spring semester of my sophomore year in college...
Michael's full story
  • USA
Michael's story Have you heard of recurrent meningitis? Neither had I until April 2016 when I got the official name ...
Sam 's full story
  • USA
  • Bacterial meningitis
Sam 's story It was in a hospital room as a child where I began to create art...
Jeongjun's full story
  • Meningococcal
Jeongjun's story I was affected by meningococcal meningitis about 10 years ago, when I lost my legs and fingers becau...
Becky's full story
  • Young Adult 20-25
Becky's story On the 25 February 2004, our healthy 20-year-old daughter, Becky, died unexpectedly from meningitis...
Alexandra's full story
  • Meningococcal
  • Young child 3-5
Alexandra's story My name is Nathalie and I live with my family in Beirut, Lebanon...
Bonnie's full story
  • Unknown meningitis and septicaemia (sepsis) type
Bonnie's story Bonnie had been sick for a couple of days around Christmas of 1990...
Emma's full story
  • Australia
  • Group B meningococcal (MenB)
Emma's story On the 2nd of January 2017, I woke up at around 5am with uncontrollable, whole body convulsions...
Shahrish 's full story
  • India
Shahrish 's story I was just a school student when life decided to change its course and give me a challenge to deal w...
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Make a difference. Share your story.

Survivors, partners, parents, carers, friends, heath workers – everyone has a story to tell. Every story is unique, personal and has something to offer. Whether it’s compassion, encouragement, optimism or despair, by sharing your story you will be helping others who are suffering or have suffered from meningitis and sepsis, letting them know that they are never alone.

Journeys of hope

Even in the darkest of moments, there is hope. People who have overcome meningitis share their inspiring stories of recovery and optimism for the future. View all
Scott Stillman's full story
  • USA
  • Unknown meningitis and septicaemia (sepsis) type, Viral
  • Adult 25-59
Scott Stillman's story In August 2021, our daughter Lucy returned to St Lawrence University in upstate NY for her second ye...
Seema Jaswal's full story
  • UK
  • Bacterial meningitis
  • Teenager
Seema Jaswal's story TV presenter Seema Jaswal contracted meningitis at the age of 16, while she was studying for her A-L...
Kirsty 's full story
  • UK
  • Meningococcal
  • Adult 25-59
Kirsty 's story

Stories of strength

Tales of courage, determination and resilience, and how the human spirit can conquer even the hardest of challenges brought by meningitis. View all
Monica's full story
  • Europe
  • Unknown meningitis and septicaemia (sepsis) type
  • Baby 0-1
Monica's story My name is Monica from Norway. B...
Errol Kendall's full story
  • Australia
  • Other bacterial meningitis and septicaemia (sepsis) type
  • Baby 0-1
Errol Kendall's story I was born in the early fifties, my parents in their 30s and I was their 3rd child and their first b...
Luke adams's full story
  • UK
  • Group B meningococcal (MenB), Other bacterial meningitis and septicaemia (sepsis) type
  • Teenager
Luke adams's story It was Easter Friday . M...

Tales of tenacity

Living with and through meningitis is a battle in all sorts of unimaginable ways. Here, people share their tales of overcoming hurdles and winning even the smallest of battles. View all
Dianora 's full story
  • Group B meningococcal (MenB)
  • Young Adult 20-25
Dianora 's story
Irene Lopez's full story
  • Spain
  • Bacterial meningitis
Irene Lopez's story On September 14th 2012, I was 29 years old. T...
CoMO Member
Cheryl Bernadine Repko's full story
  • USA
  • Viral
  • 60+
Cheryl Bernadine Repko's story In 1985 i was a happy, single lawyer in washington, d...

Circles of support

Coping with meningitis is often a team effort. Read the experiences of families and friends who have supported their loved ones through their battle with meningitis. View all
Jay Aston and Josie Colquhoun's full story
  • UK
  • Bacterial meningitis
  • Teenager
Jay Aston and Josie Colquhoun's story Bucks Fizz singer, Jay Aston, immediately recognised t...
Emily 's full story
  • UK
  • Meningococcal
  • Young Adult 20-25
Emily 's story
Mellodi March's full story
  • USA
  • Unknown meningitis and septicaemia (sepsis) type
  • Baby 0-1
Mellodi March's story I am Katelyn March, Mellie's mommy. H...

Healthcare heroes

Stories that celebrate the compassion and commitment of healthcare professionals, and the vital role they play in treating and supporting people with meningitis. View all
Hayley Tamaddon's full story
  • UK
  • Viral
  • Adult 25-59
Hayley Tamaddon's story Actress, Hayley Tamaddon, famous for her roles in Emmerdale and Coronation Street, contracted mening...
Erin Lamond 's full story
  • UK
  • Escherichia coli (E. Coli)
Erin Lamond 's story My daughter contracted ecoli meningitis at 10 days old...
Simone Shoffman's full story
  • UK
  • Viral
  • Toddler 1-3
Simone Shoffman's story Social media influencer Simone, also known Si Si, Shoffm...

Beyond meningitis

Many people don’t want to be defined by their illness. Here, they share their stories of personal growth, pursuing their passions and fulfilling their ambitions. View all
Aaron Phipps MBE's full story
  • Other bacterial meningitis and septicaemia (sepsis) type
  • Teenager
Aaron Phipps MBE's story Gold medal-winning Paralympian, Aaron Phipps MBE, had to have both legs ampu...
Leo 's full story
  • UK
  • Meningococcal
  • Baby 0-1
Leo 's story