Accountability and transparency

Operating with integrity is one of our core values

Trust

We are a trusted organisation for those we work with and for, and for those who support us. We always strive to meet and exceed expectations of accountability and transparency set for the charity sector.

As a charity and a company, there are legal frameworks that govern what we may and may not do.

More information on these, and other regulators and membership organisation we sign up to to ensure we deliver excellent services are listed below.

Partnerships, funders, and financial interests

We receive funding from commercial organisations for aspects of our work where we have shared interests. We ensure these partnerships are open and transparent at all times.

Law firms supporting families affected by the disease

We are pleased to count law firms among our corporate supporters.  We are committed to offering the best advice and support possible to our beneficiaries, and this network of independently accredited experts help us to provide up to date and accurate information and signpost high quality specialist advice where appropriate.

Pharmaceutical companies working to prevent the disease through vaccination

We receive financial support from a number of pharmaceutical companies who share our aim of preventing people from getting meningitis.  We receive no more than 10% of our total income from pharmaceutical companies, and these sponsors do not influence the work we provide but fund strategically important projects.

Pfizer and Meningitis Research Foundation Statement 

GSK and Meningitis Research Foundation Statement

Regulation 

Meningitis Research Foundation is registered as a charity and a company, and there are legal frameworks for both that govern what we may and may not do.

In addition, there are several other regulatory bodies and sector groups which set standards for many aspects of our work. We see this as incredibly important. By committing to these organisations and the principles they uphold we set expectations for you and all our staff. And by openly reporting on our behaviour and activity against these standards we make ourselves accountable to both these organisations, and to you.

Companies House

Companies House keeps a register of all UK-based companies.

You can view the principles of our constitution, find out about our Directors, and download our financial accounts and Trustees’ annual reports, also available on this website here

Charity Commission

The Charity Commission is a UK government body that holds charities to account for acting in accordance with charity law.

Outside England and Wales

Meningitis Research Foundation’s main office and operations are in Bristol, UK so The Charity Commission is our principal regulator.

We also have offices and staff in Edinburgh, Belfast and Dublin, Ireland. Therefore we are also registered as a charity in these countries and are committed to adhering to the principles set out by their equivalent regulators. These are:

Association of Medical Research Charities

The AMRC is the national membership organisation for health and medical research charities. We pay to be a member of the AMRC and are bound by the standards it sets for delivering high-quality research.

Fundraising Regulator

The Fundraising Regulator is the independent regulator of charitable fundraising. We pay a voluntary fee for this regulation and have committed to operate to the standards it sets. Members of the public can complain to the Fundraising Regulator.

Gambling Commission

Our Summer and Winter raffles are regulated, and we report on these to the Gambling Commission.

Helplines Partnership

This is the membership body for organisations that provide helpline services, ensuring high-quality service delivery.

Information Commissioners Office

We are answerable to the ICO for how we protect and use personal information. This is very important given the sensitive information we hold on families affected, and the fundraising work we carry out.

National Council for Voluntary Organisations

The NCVO champions the voluntary sector by connecting, representing and supporting voluntary organisations.

International Aid Transparency Initiative

MRF publish information through IATI about our overseas projects and spending to improve transparency about our work to defeat meningitis here.

Dochas

Dóchas sets a standard for the use of imagery relating to international aid. We use these standards for all of our work whether in the UK, Ireland, or globally.

Complaints

These regulators ensure that we maintain the highest standards. If you do not feel we have met your expectations, you can contact us at any time with any concerns or complaints 

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