Firstly, I had to get a job. There were many reasons why this was difficult. Most obviously I struggled getting anywhere. Due to my epilepsy, I no longer had a driving licence and found public transport very difficult to use. More often than not it didn’t go where I wanted to go, especially as I don’t live in a city and could not walk very far at either end. Then there were access issues and the fact I still needed regular hospital appointments for which I would need time off.
On top of this I was limited as to what functions I could perform. Initially, due to the myoclonic jerks, I was unable to use a computer as the screen made these significantly worse. Fortunately, as these got better, I was lucky to be offered a job doing data entry from home, albeit slowly with one hand!
However, there are tasks I would struggle with, such as taking notes, as my writing is very slow. More significantly though, I now have a large employment gap in my CV because of the long time I spent in hospital and recovering. Two years on I am still doing the same data entry job but I would love to be able to get myself a more stimulating one and go out to work so I would see more people on a daily basis.
I also found I got very little exercise and soon became fatter and less fit. Walking became more exhausting and it affected the fit of the prostheses. Luckily I enjoy playing sport. About a year ago I started riding again, but firstly I had to design and have a hand prosthesis made so I could hold the rein.