I don’t remember much about that first week. I was on so many meds and in and out of consciousness.
A Dr told us if I hadn’t had treatment when I did I’d have died. A team from St Thomas's hospital came and put in a PICC line in my arm. All this time my ear was weeping a gungy substance. This was releasing pressure on the brain.
After 2 weeks and starting to feel half human again the weeping stopped and my face started swelling again. Drs put a camera in my ear to see if the perforation had closed up. If it had they would've had to make a new one. It was still there so I was sent for another MRI and this showed an abscess on my brain causing a blockage. I had a mastoidectomy to remove it. I was kept 31 days in total. The staff were fantastic. They couldn't do enough for me.
I had another MRI 2 weeks after surgery and was discharged with meds. I got the ferry home and still can’t fly as there is still some fluid on the brain that the brain itself will absorb over 12 months.
Seven months on I have 50% hearing loss in my right ear, my eye sight has deteriorated, the fatigue is indescribable and I have a hollow behind my ear where the surgery was. I have ear, head and face pain on the right side which is nerve pain or neuralgia which is a side effect from the surgery. It might go eventually. No one can tell. The right side of my head is still numb and my whole head tender but I'm alive. My last MRI recently showed some fluid still on the brain but no infection. I'm told full recovery could take 2 years.
I’m 48. Anyone can get meningitis.