Meningitis in your words

Margate Emedi's story

  • Location: Malawi
  • Categories: Bacterial meningitis
  • Age: Toddler 1-3
  • Relationship: Child
  • Outcome: Recovery with after effects
  • After effects: After Effects
Margate Emedi

Margate Emedi (21 years) from Gobedi village in Chigalu, Malawi talked to Aspire field supervisor Berndetta Payesa at Queen Elizabeth Central Hospital (QECH) about how her 21 month daughter Elena, who is her only child, became sick with meningitis.

Elena has been sick on and off since she was two weeks old and we have been in and out of hospital but she was always diagnosed with malaria.

At the beginning of May she was sick again so the first thing that came to my mind was that she had malaria again. I waited for a day before I went to get medical help because I was waiting for my husband to come back from visiting his parents. By this time Elena’s temperature was so high, she had diarrhoea,was failing to stand and walk and also had a headache.

When my husband got home we walked to Mdeka Health facility to seek medical help and the clinician told me that Elena had malaria and I was given liquid drugs which she drunk for some days.

After finishing the drugs there was no change so I took her back to Mdeka facility again and she was still diagnosed with malaria, but they admitted her for the day in order for the clinicians to observe her condition.

The following day Elena was referred to QECH and we used public transport because we could not wait for the ambulance since it takes such a long time to come to the facility.

When we got to QECH the doctors there also said she had malaria but she was admitted for 3 days and then discharged.

"She was given injections and some medication and they did a malaria test which again proved positive but they also did a lumbar puncture to test for meningitis and we are just waiting for the results."

Elena did not seem to get any better after she was discharged from QECH so we took her back again to Mdeka health facility who again referred us to QECH. When we got back to the hospital for the second time in 2 weeks I was really worried.

When we arrived Elena was taken into the emergency room because she had fainted, the doctors did everything they could to make sure she was fine, she was given injections and some medication and they did a malaria test which again proved positive but they also did a lumbar puncture to test for meningitis and we are just waiting for the results.

Elena is not very well at the moment and we are waiting to hear if she does have meningitis. We don’t know if there will be any after effects but at the moment she is not walking not even stretching her legs and standing. I do have faith that Elena is going to be fine because of the medical help she is receiving at the moment and hope that she is going to get better soon and be able to walk as she used to.

Before Elena got ill I had never even heard of meningitis and didn’t know any of the signs but when we have the final diagnosis and we know if it definitely is meningitis I will be able to warn them what to look out for and that they need to get medical help straight away.

Margate Emedi
May 2014