I then decided I had to try something different which coincided with the start of cognitive behaviour therapy. I slowly reduced my afternoon naps, went on short walks which I steadily increased. Sometimes you crash but I ACCEPTED bad days because I knew I would have GOOD days. I accepted people saying I looked well because I realised they were trying to make me feel better. For me it has been a long journey. I manage my illness, I accept my illness, I plan around my illness and I have a great quality of life. I do not set myself up to fail. If I go to a function I will rest for the days leading up to it and have nothing planned for the days after it.
The vast majority of people get better so give yourselves the best opportunity to succeed. ACCEPT, MANAGE and LIVE! I was dealt a crap hand and unfortunately I was one of the small percentage that was left with long term complications. 11 years later, I am retired through ill health BUT I have a great life. I took up lawn bowls meeting new people. I manage my symptoms very well and that is the key. ACCEPT and MANAGE. Everyone is different. Be patient with yourself. You are not going to die. You are past the worst. Help yourself get better. It just took me too long to figure it out. A relative of mine got Meningitis a few years back and I helped him with advice. I am glad to say he has fully recovered after sharing many of the same symptoms as myself. It took him a full year. He told me that sharing my experiences with him helped him to manage his days very early on in his recovery. That is what's great about sites like this. If we can learn from each other then maybe we will get there that little bit earlier.
Stay strong and remember you WILL get better.