We put her to bed at her usual time but she would not settle. We gave her a cool bath about 10pm to try and bring her temperature down. She seemed to settle after that for a bit but woke within an hour and was sick and had diarrhoea. When we went to change her, there were small bruise-like marks under her nappy which had appeared since her bath. I immediately knew what it was; the bruises were like nothing I had seen on her before. We rushed her to A&E. She was still alert, asking for a drink and asking to get into mummy's bed and do some Playdoh. She was changing before our eyes. The purple was spreading over her. It came on her face; she looked like she had black eyes and bite marks on her chin. She was restless and cold to the touch.
Then someone mentioned she would have to be moved to an intensive care unit in London. They took her down to theatre to put tubes in her. On the way to theatre she went to sleep, the proper term is probably that she fell unconscious but I prefer to think of it that she fell asleep. We never saw her awake again. Then the transfer team arrived to take her to the Evelina Children's Hospital in London. I think it was about 6am by this time. A doctor said for the first time that she might not survive the transfer and might cardiac arrest at any time. By this point she was purple from head to foot, she looked like a burns victim, tubes cut into her little neck and arms, with her bunny beside her.
By the time we arrived in London she was surrounded by equipment; my husband was just sitting there watching, unable to comprehend how the little girl he had been chasing round the lounge a few hours before was lying there like this. A doctor started talking about her losing limbs. I had prepared myself for this, thinking, she could cope without a hand or leg. Little did I know that we would then be taken into a private room, and with our family around us, we were told that her condition was so serious, that even if she survived, she would lose all four limbs at the shoulder and hip. No words can describe how that feels. They would see, if she survived until morning, essentially what parts of her body she would be left with.