Needless to say the next two hours felt an eternity but when he made it through this period of time it filled us all with hope that he was going to be strong enough to survive and fight this terrible illness.
A short time later, however, a nurse asked if he had been baptised and since he hadn’t they called the chaplain who arrived immediately and carried out a lovely service. It was now getting harder to believe that our little boy would come home!
The rest of the day we spent on a knife edge wishing and hoping that he would survive. At around 8pm our extended families, who had been with us throughout the proceeding hours, headed home hopeful that as he had held his own for such a long time that he was going to fight through. However, shortly before 10pm, after settling into our room in the PICU, we were given the devastating news that Jaxon's heart had stopped.