Updated report about improving diagnosis of meningococcal meningitis soon to be published

05 Mar 2019
Updated report about improving diagnosis of meningococcal meningitis soon to be published

Meningitis Research Foundation (MRF) has received an encouraging response from the UK’s Deputy Chief Medical Officer, Jonathan Van Tam, saying that responses to an important report aiming to improve outcomes for people affected by meningococcal disease, will be available in March.

The report, published in July 2018, included recommendations put forward by a Working Group to improve diagnosis and treatment of people with meningococcal disease.

This government-led working group included three families tragically affected by meningococcal B meningitis or septicaemia, representatives from meningitis charities and a range of health experts.

The 12 recommendations in the report included suggested actions for a number of organisations, such as the Care Quality Commission and Public Health England, and have been under review by these organisations.

Working Group members have been waiting for their responses and MRF wrote a letter to Jonathan Van Tam on behalf of the families affected asking for an update, and received an encouraging response.

In the reply Jonathan Van Tam said that MRF and others who responded to the Working Group’s recommendations will be sent a summary of all the responses in the next few days and will be given the opportunity to comment.

"...we hope that the document, when published, becomes a valuable record of how seriously we all take the fight against this disease." Jonathan Van Tam, Deputy Chief Medical Officer.

Prof Van Tam said, “We will give two weeks for that process to be completed, so that we can start the business of publishing the document on the gov.uk website as soon as possible thereafter.”

He continued, “I would like to stress that we value the work undertaken by both yourselves and the families on the proposals in the Working Group Report and would like to take this opportunity to thank you again for supporting this work. Please can you pass on our thanks to the families for their time and fortitude in helping us to combat meningitis, and we hope that the document, when published, becomes a valuable record of how seriously we all take the fight against this disease.”

MRF is looking forward to receiving the response and will post further updates when available. 

Media contact
Elaine Devine - Director of Advocacy, Communications & Support
Tel: 0333 405 6248