A photograph of James Bellman

James Bellman's story

James talks about his experience of meningitis and the daily migraines he has suffered since his illness.

June 2013 my daughter was graduating high school. My son and his family came to visit and see his sister graduate. I had been waiting to see my granddaughter for the first time during this event.

When they arrived my granddaughter, 2 years old, had what we thought was a cold – all her symptoms were that of a cold. The visit was for a week. Within the first two days everyone in the house was experiencing cold symptoms. I have emphysema so my immune system is already working overtime.

 

Symptoms got worse

By the third day I was very sick with a severe headache. I had no sick time available at work, so for the next 3 days I worked getting sicker and sicker. The headache never eased up.

Saturday we went to the graduation ceremony. I went to work afterwards for mandatory overtime.

Sunday morning I got out of the bed and passed out. I came around and my headache was still severe, so my wife took me to the emergency room. The doctor said that I might have meningitis but he didn’t think, so they sent me home.

Around 6 that evening, back to the E.R where they did a lumbar puncture to test spinal fluid and told us it was viral meningitis. I was admitted and spent the next 6 days in hospital.

I have struggled with extreme high blood pressure, headaches and severe migraines.

After-effects

From then till now I have struggled with extreme high blood pressure, headaches and severe migraines.

I also experienced some hearing loss as well as memory loss and balance issues. I have endured sphenocath, Botox injections, and more medications than I could count. The only thing that helps with my headaches is ketorolac injection that I have been giving myself almost daily for the last 3 years as well as being out of work for the last 3 years and, yes, I am still fighting for disability.

I am waiting for a doctor to figure out how to help slow down the migraines or for my kidneys to shut down from all the medication.

During the last 3 years my blood pressure stays high 120/80 before meningitis and 150/110 after meningitis with spikes around 180/134 at rest several times a day.

At some point I will experience a stroke or heart attack from the blood pressure.

Has anyone else experienced the daily migraines and uncontrollable high blood pressure after having viral meningitis?

I also had Bell’s palsy at the age of 24 that is why the face drooping in the photo.

 

One story can change a life. 2,030 could change the world. Share yours today.

Related stories

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé’s life at 24. But recovery, hope and resilience have shaped her journey since.

Wyatt sat outside with his teddy bear.

Wyatt Howard’s story

Emma shares her story of every parents worst nightmare: her newborn son’s diagnosis with viral meningitis.