My journey as a TB meningitis survivor
I started having seizures in 2020, but every time I went to the hospital, doctors told me I was okay. In 2021, the headaches became unbearable, yet I managed them with painkillers. Each time I sought medical attention, I was reassured I was fine.
By 2023, everything changed. The pain was no longer just headaches — I had dizziness, nausea, fatigue, confusion and more seizures. I could no longer cope without support. I went through MRI and CT scans, but the results showed nothing. Again, I was told I was not sick and even advised to seek another solution to “stop all this.” Still, I kept relying on painkillers to survive.
On 5th October 2023, I was rushed to the hospital unconscious. It was my second admission, but unlike the first, this time a lumbar puncture was done. That is when I was finally diagnosed with tuberculosis (TB) meningitis. I was admitted for 21 days for treatment and observation.
At that point, I had lost so much weight - down to 39kg. I couldn’t walk on my own, and the seizures continued. But despite everything, I am grateful that God saved me.
Today, I am still on medication. I still experience fatigue, dizziness, fever, and headaches — but I am much better than before. My journey has taught me resilience, patience, and faith.
This is why I joined The Confederation of Meningitis Organisations (CoMO): to advocate for meningitis awareness, to share my story, and to help others recognise the symptoms early. Early diagnosis saves lives. No one should go through years of pain and dismissal before getting answers.
I believe together, through awareness, education, and support, we can end this devastating disease.
For those who have been diagnosed: it's okay to get scared but, keep hope. Ask your doctor questions, have a positive mindset. For those still struggling with after effects like me: we aren't failing, we can manage this.
To friends, caregiver and family: be supportive. Emotional availability means a lot to those affected and encourage them.