I spent two weeks in hospital on intravenous antibiotics, the first two days in intensive care of which I have no memory. I recovered well enough to be let home and was told after a few weeks I should make a good recovery. There was no follow up care.
It’s a year later. I lost the hearing completely in my left ear. I still have trouble sleeping at night. I have constant ringing in my head, the tiredness is still a major issue, I have short term memory loss.
I know and thank God when I think how lucky I was to survive without major complications. But just because my side effects can’t be seen doesn’t mean I am not suffering. I sometimes feel very alone and think I am a hypochondriac at times.
I have had great support from Caroline (MRF Medical Information Officer in Ireland) and the Foundation; just reading through the life experiences has made me realise that before I got this illness I knew nothing about the symptoms or side effects. I thought it was a young person’s disease. Now I know anyone of any age can contract it. It happens so fast and in an instant your life and your family’s life can be changed forever.
I gave my doctor the booklet on signs and symptoms and after effects, he and his nurses were delighted with it as they said they knew very little on how it affects people who survive. I would like to help in any way I can to raise awareness of this terrible disease which can happen in an instant.