Meningitis in your words

Denise Fitzgerald's story

  • Location: England
  • Categories: Bacterial meningitis
  • Age: Adult 25-59
  • Relationship: Self
  • Outcome: Recovery with after effects
  • After effects: Memory loss
Denise Fitzgerald

I am happy but saddened from finding this site as I am not feeling a lot of optimism for recovery of my current symptoms however am happy to be able to read other people's stories.

I am 41 and am currently in hospital with bacterial meningitis and have been here for seven weeks. I have no use of my right leg and have significant cognitive impairment such as memory loss and confusion. I am being sent to a rehabilitation hospital in hope of regaining cognitive and physical functions and they are saying it will take six months, however now that I have read stories on this site I am not at hopeful for a full recovery.

I feel very incompetent because I can't remember and now they have others making decisions for me medically. I continue to forget where I am and have been told I have got out of bed or the wheelchair to go to work or home at all hours of the day and night and because I can't walk I end up on the floor. So I have been limited to the bed for a while where there is an alarm on it and they will get notified when I get up.

"Although I know everyone's body reacts differently and heals differently I much continue to hope I will make a full recovery"

Although I know everyone's body reacts differently and heals differently I much continue to hope I will make a full recovery. Everything I am told or people who visit me all write in a note book so I can have a way to know what is going on as doctor's were telling me things and I would not remember, so they are now writing it down. This has been very helpful because it is very scary to not know what is happening to you or things that are happening with your treatment.

Luckily my work, friends and family have been incredibly supportive, however it still doesn't remove the uncertainty you have with your future in being symptom free.

I want to go home so badly and actually feel going to rehab is a step backwards because I can't go home, but recognise it is the best place for me if I want to have any hope to make a fully recovery. Wish me luck!

Thank everyone for posting their stories as they have been helpful to me and I am sure many others.

Denise Fitzgerald
August 2013