Ana Castillo's story
Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.
Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.
Mi historia no tiene un pasado. No se como empezo todo ni como se desarrollo. Leyendo los informes me encuentro con una historia que leo como si fuera una novela que me han dejado.
Mi primer recuerdo es estar en una cama atada en un hospital. Me hablaban como si me conocieran, pero para mi eran todos extranos. Me vi en una vida desconocida, con una pareja que no reconocia y una nina de seis meses a la que no sabia querer porque mi instinto maternal tambien se habia perdido… todos esos recuerdos de mi embarazo, de mi vida anterior habian quedado en el olvido y tenia que empezar de cero. No solo a ser persona, sino a ser madre, a ser pareja, a ser hija y a ser diabetica. Todo estaba en 0 y no sabia por donde empezar…
Mi enfermedad es invisible y el cerebro un gran desconocido. Hay veces que no hay un porque para explicar ciertos argumentos, pero todos los afectados que conozco estamos luchando para una vida mejor, no solo para nosotros, sino para los que nos rodean, para poder dar explicacion, muchas veces sin sentido, del porque.
El cerebro es el gran desconocido, pero es el rey, y si falla, todo falla. Es el mandamas del cuerpo, y es quien dirige donde tiene que ir cada cosa y como tiene que ir. Si el falla… todo falla.
Hay que concienciar a la gente para que se cuide de una enfermedad que realmente no tiene cura; la unica medicina es prevenirla. Nadie esta exento.
My story has no past. I don’t know how it all began or how it developed. Reading the reports, I come across a story that I read as if it were a novel someone had lent me.
My first memory is being tied up in a hospital bed. They spoke to me as if they knew me, but to me, they were all strangers. I found myself in an unknown life, with a partner I didn’t recognize and a six-month-old girl whom I didn’t know how to love because my maternal instinct had also been lost… all those memories of my pregnancy, of my previous life, had been forgotten, and I had to start from scratch. Not only to be a person, but to be a mother, a partner, a daughter, and to be diabetic. Everything was back to square one, and I didn’t know where to start.
My illness is invisible, and the brain is a great unknown. Sometimes there is no reason to explain certain things, but all those affected people I know are fighting for a better life – not only for ourselves, but for those around us – to be able to explain, often without sense, why.
The brain is the great unknown, but it’s the king – and if it fails, everything fails. It’s the boss of the body, directing where and how everything should go. If it fails… everything fails.
We need to raise awareness so that people can take care of themselves against a disease that truly has no cure; the only remedy is prevention. No one is exempt.
Translated using Google Translate.
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Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.
Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.
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