The JCVI has been considering the vaccine since 2011 but in interim minutes published in July 2013
said it was unlikely to recommend the new vaccine. The committee
invited this charity, and others, to respond ahead of its October
meeting and following those submissions the JCVI suggested it would be
seeking further analysis. The publication of their October minutes
on 13 November, confirms this approach – an approach we believe this
charity, our members and supporters has helped influence. Read our response to the JCVI.See the statement and the quote from the new JCVI Chairman, Professor Andrew Pollard
MenB - the human cost
We know from our members just how devastating MenB is for individuals affected, their families and their friends.
It is the leading cause of bacterial meningitis in the UK and Ireland, with one in 10 cases dying while others can be left with serious disabilities including the loss of limbs, hearing loss and brain damage.
We take inspiration from our members. They are determined something positive should come out of their traumatic personal stories. They want us raise aware awareness and prevent others suffering. That’s why they ask us to share their experiences in print, in film and online.
Paralympics reporter and keen equestrian Diana, is 30 years old and building a new life without her lower legs, her fingers and with epilepsy
. A former record-breaking hurdler, she became ill in November 2007 but refuses to let her disabilities hold her back. “My life has changed a great deal, but I have learned to manage just like anyone else. The journey I have been through, and many of the people I have met, have taught me a lot about myself. There is always someone worse off.”Read Diana's story in full
Harry was just 11 years old when he died in April 2007 and since then his family and friends have raised over £100,000 for our charity, specifically for research into MenB. His parents Judi and Richard say: “Harry always had a beaming smile on his face and limitless enthusiasm for sport and life itself. He woke feeling unwell but with no obvious symptoms. We just thought it was a bug. By evening we even thought he was well enough to return to school the following day. It was not to be. Harry's short life was extinguished in a single day
.” Read Harry's story in full
Tilly was 15 months old when she was misdiagnosed with an ear infection in January 2007. She was supposed to be “as right as rain in 36 hours” but was soon fighting for her life. She ended up having both hands amputated. Her toes dropped off at home. Mum Sarah says: “I cried and cried thinking 'how is she going to get through life without hands?
’ We have watched our baby girl in so much pain and be so brave. She truly is an inspiration to everyone she meets.” Sarah Lockey talks to Meningitis Research Foundation about how having amputations as a result of meningococcal septicaemia has affected her daughter's lifeTilly and Sarah featured in the BBC's coverage of the JCVI's decision. Click on the picture
David Ellson, from Northern Ireland, died of MenB in February 2002 when he was two-and-a-half years old. His mother Maureen says: “The doctor told us he was very ill and they had struggled to stabilise him after the transfer. Even at that point I couldn't believe he was going to die.
I didn't think it was possible that something so bad could happen to our family, we were good people and surely bad things don't happen to good people.”Read Maureen's story in full
Jo Lofting's son, Jack, has been severely affected