I just came across this website after searching for my increased health problems and worsening mental condition. I am 40 years old and contracted spinal meningitis when I was 3 years old in 1973. From what I have been told by my family, everything regarding treatment was experimental. I almost died a few times, underwent surgery because it spread to my left hip joint and had to be "scraped out." I was in isolation for several months, my family was told I would have brain damage. I kept fighting and then the doctors said I would never walk, then they said I may walk but it would be impaired. I spent 6 more months after being released on bed rest at home, which I FOUGHT against 24 hours a day everyday. Then the doctors said they thought I was "ok" but there would be future problems which they couldn't predict.
I spent my life at the top of my class, but always not being like the other kids (movements, rhythm, coordination, periods of missing important information, etc). I have a Master's degree in Early Childhood Special Education and I am a special education teacher. I specialize in autism, sensory integration dysfunction, movement disorders and serious behaviors. I felt as if my skills in these areas were instinctual-not textbooks which lead me to be more successful when the textbooks left other professionals scratching their heads.
I am currently being treated by a psychiatrist for increasing anxiety behaviors-scratching, excessive blinking, twitching of the left eye, blurry vision, joint pain, etc. I am a recovering alcoholic-sober for 388 days! I am monitored closely by my doctor and I participate in Cognitive Therapy and Dialectical Therapy. I feel relief with exercise, psychiatric medications and daily structure. But I am experiencing early menopause symptoms, increasing anxiety, blurred vision, increased obsessive habits, increased pain in my wrists with tingling in my hands and feet. I just feel like the meningitis is the cause I could never prove.
I can accept there may not be a "cure" but knowing that there is a reason would resolve anxiety. I can make plans and consult specialists if I need to. I have always been the patient with chronic medical problems that could not be determined with traditional testing. I got used to the phrases "probable" and "no significant lab findings regarding your complaints."
Can anyone relate?
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Posted in by Lisa Cochrun on 28 January 2013