Viral meningitis after effects questions


Posted by Missy on 21 August 2014

Hi. I am 42 and I was diagnosed with viral meningitis this Aug. At first I experienced a lot of balance issues, double vision and fatigue. I am doing much better now even though I still get tired easily. However I have this feeling of being under the influence ALL the time. It's like Im on my 2nd glass of wine. Not drunk but definitely tipsy. I feel spacy and I was wondering if anyone else has experienced this. Also I have noticed I don't have a lot of patience and get frustrated quickly. Does this sound familiar to anyone?


Posted on 24 July 2017

Comment by Justin Kearney

Wow, I'm glad I found this discussion. I woke up one Tuesday morning in June this year with little to no energy, then went to gym on my way to work which was the normal routine.
I couldn't lift anything so decided to go to work instead. I had the early stages of a headache setting in and was becoming very sensitive to light. I hid away in a dark area all day then come home after work and went straight to bed with the electric blanket on full with extra blankets.
Throughout the night was hot/cold sweats and a high temperature. Next morning was loss of appetite, chronic fatigue, dehydration and worsening headaches, but in the forehead region only.
I stayed home Wednesday and Thursday to try and sweat it out, but by Thursday night I succumbed and visited my GP. He checked all my symptoms and vitals, and suspected it was Meningitis, so immediately referred me to hospital.
As it was a referral, I bypassed the waiting room and went straight into triage where they started checking my vitals, with bunch of blood tests and X-rays. They decided to perform a lumbar puncture which confirmed it was Viral Meningtis (thankfully not bacterial).
I was filled with a bunch of meds via IV both arms going at once, and there was a drastic improvement overnight. I was discharged on the Saturday and stayed in bed for the next 2 weeks while living on a diet of painkillers for the headaches, and mostly water as had little to no appetite.
I lost 7kg (15lbs) over the course of 3 weeks, and am still suffering from fatigue, dizzy spells and headaches while in the last week of July. This seems to be the after effects/hangover period and I can't wait to be 100% clear of this thing.

Posted on 02 July 2017

Comment by Annie may


I had VM in May this year. I was sitting feeding my baby and all of a sudden felt stiffness in my neck and s headache. I called my dad to come over to look after my baby while I laid down thinking i was just overtired.
Within 10mins my headache had doubled and by the time my dad got here I was pretty bad.
I started getting nausea and diarrhoea and each time I walked to the toilet I was falling into the walls. My dad took one look at me and said "I'm calling an ambulance". While he was on the phone to them I was falling in and out of consciousness. The ambo came and put me in a wheelchair (which was a huge challenge to get into without vomiting).
The light from my windows was killing me I kept my eyes shut but my head just throbbed!
Once I was finally seen my the doc at the hospital they diagnosed Meningitis but gave me antibiotics as they thought it was bacterial at first. They gave me I think 3 courses over two days among taking bloods and other tests. They did so many tests because I had a lumbar spinal fusion and laminectomy last year so they didn't want to risk a lumbar puncture. So after two days of isolation they ended up diagnosing Viral Meningitis! My Neurologist was so lovely and most of the staff were too. Especially the ambos!
I seemed to be in a haze for a few weeks. Then all of a sudden I fell down with severe vertigo. I couldn't move my head off the pillow without needing to vomit! It got better after two days however to this day (2 months later) I still have it when I Turn from one side to the other in bed or look up. I'm seeing an osteo and still doing Pilates. Just hoping I catch a break for the rest of the year!

Hope you all feel better soon! It's a horrible thing to have!

Posted on 20 May 2017

Comment by Bobbie

So it was the 8th of May 2017- I had a sudden headache and extreme dizziness. Two days later I had headaches dizziness and nausea I was light sensitive stiff neck and had bad back pain. I lasted until the 14th where I went to the doctor and I was in extreme pain. He gave me anti inflammatory thinking it was Muscle related. Here is the scary part- I was lying in bed on the 16th and I started to shake, I was hot, I had tooth ache I felt like I was going collapse I was dizzy and my head was pounding. The next day I went to the doctor again I almost fainted , I couldn't move my neck because it was that stiff the pain in my back died down but was still there. I went for a CT scan that came normal.

Is does this sound like meningitis to anyone ? Unless it's just muscle pain I won't know .

Posted on 21 March 2017

Comment by Lu-Ann

I have chronic sinusitis. The last week of January I had another infection which seemed to get worse with severe migraines. After a week if no results from an antibiotic I returned to the clinic who sent me straight to emergency with a note as, the nights before I was woken with severe pain. I couldn't see clearly and my balance was off, bumping into walls and falling. I was terrified. A CAT scan and lumbar puncture confirmed VM. I was given more antibiotics and sent home. The next day the pain. Was so severe and u bearable. I could not move without vomiting. With bag in tow, my husband brought me to my GP who immediately sent me back to emerg. The lumbar puncture area was not healing properly, causing spinal fluid leakage. I was provided strong pain meds and could not sit up for a month! It's been another month and I'm still off work. Initially, after the migraine pain subsided somewhat, the pressure behind my eyes started to disipate but I'm seeing periodic bright rings when I close my eyes. My memory has been affected and I can barely remember what I was told only hours earlier. I'm exhausted most days, sleeping 16-22 hours a day, but occasionally have a day when I feel back to normal. I've been on antibiotics for 2months now for the sinus infection which won't clear, and I'm petrified of having another VM attack. The stress of not being able to return to work, the worry of this returning, and the concern for what is still happening to my body is quite frightening. I've started having blurry vision in my left eye and wonder if there has been damage to the optic nerve from the swelling. I'm thankful the dr in Emerg knew to give me a LP to outrule bacterial meningitis however I really don't think many understand the severity of VM, and more awareness is needed. Thankful I found this forum!

Posted on 16 March 2017

Comment by Kathryn Jean

2 months ago I had the worst throbbing headache ever. I couldn't handle light or loud noises. My neck had been stiff for 4 days, intolerant of much and now a low grade fever. I emailed my PA and she said it sounded like VM. No treatment given. I rested, hydrated and used Tylenol for pain.
It is now 8 weeks later with the same headache, although it is not throbbing all the time. Three weeks ago the pain was so bad I went to a large hospital near us. Well known for excellent care. I waiting 5.5 hours with no update, not even triaged until after 2 hours. I laid with my head covered with my hoodie to keep out the noise and light while others in the lobby were taken back including an undocumented alien who was brought in with hand cuffs on in absolutely no distress. These others from the lobby that were taken back were playing cards, talking and going back and forth to the coffee cart. After 5.5 hours, I left in tears.
Yesterday I had an asthma flair up and went in to see my PA, I explained that I was still having a headache after 8 weeks, some blurred vision, small lack of patience and balance problems. She gave me a breathing treatment and ordered an MRI.
The other part is the fatigue. For weeks I poop out after 1 or 2 hours. I'm in bed everyday, which is so not like me. Hoping to feel better soon.

Posted on 04 February 2017

Comment by Maricela

Hi Everyone. I am 23 years old. And in SEPTEMBER 1st 2015 I was feeling absolutely terrible. I had been planning ny daughters birthday all year and it was her 5th birthday. I was feeling horrible! And i felt so "off" setting up for her birthday just trying to finish everything. When it came time for presents i was so unstable. I could hardly move and i felt like i was in slow motion. I didnt know what was goig on and i had. Never heard of menengitis. That morning i had gone to urgent care and they told me i had the flu. Later that evening after leaving the party and going to. My room i went to bed and woke up so sick to my stomach. The next morning i was completely lathargic i was so confused and i had no idea what was going on around me. Finally after going to the doctor and coming home again i couldnt take it anymore. I went to the emergency room (my grandmother drove) and at one point they asked me if i had any kids and i remember saying no. I onviously have a little girl but i was just so confused! Anyways i was in the hospital for a week. When i got home i layed in my daughters room for a couple weeks because i couldnt bare the light or noises. It is now jan 2017 and my neck still hurts so bad. I never followed up with my neurologist but im really regretting it now. I cant do a lot of the things i used to be able to. Headbands do not work, i cannot wear scarves because i feel like im suffocating and my neck pain is unbearable most days i sleep like a pregnant lady with 50 pilillows most night that doesnt even help because my neck hurts so bad even after good rest im scared i might have it still? Or again is that possible? Does anyone use any certain pillow? My neck is to the point where i cry all the time because my neck hurts so much

Posted on 21 January 2017

Comment by Bella Adams-Mason

In bed with my 5th episode of viral meningitis and sending understanding and hope to all of you who are experiencing this for the first time.
I'm 'special' in the respect that it's very rare to have it so many times and each time is different so don't freak out and think you'll get it again or it will be the same if you do. Sometimes it's 'meningitis light' and I can get back on my feet quickly and sometimes it's a longer haul. No rhyme or reason to it but there are a few things that have helped which I'd like to share.

My advice is to get your nearest and dearest to read up on this to dispel the 'oh, it's just viral ' attitude that is so common. When you're struggling with after affects you need to know that the important people in your life understand that it's very real and just because you're ok one day does not mean that it's gone & you're fighting fit again.

Good days are great but don't push it or you'll pay for it tomorrow (& the next day!)

Investigate antivirals via your GP or neurologist - a six month course can help nuke it a bit and make attacks less frequent/ severe but theses are strong stuff and they don't like handing them out unless you push.

Take it easy on the screen time - box set binging is great to kill the time when recovering but really can cause its own issues for a tender wee brain that really needs quiet and calm.

Cut yourself some slack - you're not lazy, you're not weak and it's perfectly normal to feel like a gibbering, emotional, anxious wreck. It should ease up in time and usually disappear completely so this isn't how you'll be forever and that's something to remember.

Reading this blog will show anyone that there is no 'just' for many of us in viral meningitis. So do your research and remember that it's the exception, not the rule to have long term effects and rather than fearing for the future, be kind and patient with yourself now and that will help your recovery.

Take care Peeps xxx

Posted on 10 January 2017

Comment by Shannon

I was diagnosed with VM in Sept 2015. I was 38 years old. The trauma I experienced is more from my ER experience than the horror of VM. Felt off all day...slight headache that just kept getting worse and worse. History of migraines that would improve with OTC pain meds and sleep. That day I could not fall asleep due to head hurting more and more and horrible anxiety. Finally was able to stumble in to tell my husband something was not right.

I could not think or make decisions. Pain was so bad all I could do was cry. Could not verbalize what was going on. Went to urgent care- high fever and high blood pressure. All I could say is "something is not right." Dr said thought was just a migraine but suggested I go to ER just to rule out Menningitis. Said would be notifying ER of my situation and that I just needed to get myself there. My husband drove me and the 10 min ride seemed never ending and every bump and sound was excruciating.

I thought when I got to the ER that they could at least do something for the pain. When I got there they said that urgent care never called. It was just me- my husband dropped me off and then had to take our 2 year old to friends so he could be with me. This is when the horror started.

I could not explain my symptoms- all I could do was cry in pain. Every noise was unbearable. My husband finally got back in an hour and I was still in the waiting room. He asked about getting me someplace without as much noise, eyes rolled by all the staff. I was told I was on the "fast track" and would be seen soon. The pain got so bad- I passed out for a couple seconds- once again eyes rolled when husband expressed concern. The next thing I knew I could not move my legs. Finally a nurse supervisor begrudgingly came over with a wheel chair and tod me to get in. I said I couldn't move my legs. She rolled her eyes and manhandled me and literally pulled/pushed/dropped me into wheel chair. I was slumped over and crying. Took me in and took my vitals. I told her urgent care told me to come to rule out meningitis. That's when I started being treated like I was there for drugs.

The next nurse gave me Tylenol and told me that's all I could have because anything stronger "could interfere with testing" ( i.e. They were testing me to see what drugs I had in my system. ). I remember one doctor yelling at me telling me, " you want to have meningitis? You will have to tell everyone you have been in contact with that you have it, is that what you want?!" I refused the lumbar puncture until I could get pain meds because the thought of additional pain was beyond belief. In their minds this confirmed I was there for drugs.

I was so excited when I realized I could move my legs again. I thought if I let the screaming nurse know this she would see I was not just there to complain. She said, "sorry, you already bought yourself a night in the hospital with all your complaints." In the back of my mind was relief that it was possible a competent doctor could come along before discharge.

Hours and still no pain meds. Finally a speciallist came and said could have pain meds but would really recommend lumbar puncture. I said that was fine...she started me on antibiotics too just in case it was bacterial. It was too late to get lumber and would do the next day. Morphine barely touched the pain. Once I got in a room they gave me something else too- took some of the pressure and loud throbbing away. Was actually able to fall asleep for maybe an hour. Of course the lumber came back positive for VM. Tested for bacteria but fortunately none came after a few days. extreme pain probably lasted a solid 10 days...after that periods of headaches for a couple months.
I still experience flashbacks but as stated I think this is due more to how I was treated. I had never been to that ER before...let alone there med seeking. I am thankful for the doctor that finally took the chance to go against the crowd and consider that I might really be sick. If that was bacterial meningitis I could have died.

Thanks for having this blog. In reading it I am also thankful that I do not have some of the effects that others still experience so long after.

Posted on 17 December 2016

Comment by Kate O'Keeffe

Hi , I'm 20 and am currently at the end of my 7th week of what my GP has diagnosed as viral meningitis . It all started when I started feeling migraine symptoms (extreme headache, light sensitivity, nausea from the headache , just feeling hungover ) . It got worse over the next few days and I began shaking and shivering and feeling a loss of control over my body - feeling like id been drugged . I went to a&e and they told me I had a severe case of influenza and that 10 days would do it . A week later I broke out in a rash all over my body and I went to my GP, he told me I had viral meningitis and to just rest and take pain killers . 7 weeks later I'm still out of college - it's following a strange pattern. One day I feel fine and the next day I feel awful - pain up my spine into my head and behind my eyes , sensitivity to light and sound and no energy . After I read online about an antiviral medicine I prompted my doctor to prescribe it but nothing has changed . Can anybody offer any help ? Should I have been hospitalised from the beginning of the meningitis ? Thanks .

Posted on 14 December 2016

Comment by James F

About 6 months ago I was confirmed by the cdc to have the zika virus. I suspected it was zika because I had all the symptoms and was out out the country a few days prior to the symptoms. After a week of starting to feel better I was at the gym starting my workout and I felt this wooshy feeling and tightness in my head. I stopped and went back home. Then about 10 minutes of being home I was feeling nauseous and my heart rate jumped so high I could feel my neck vein pounding. I literally passed out for about 10 seconds and called 911. They did a million tests and couldn't find anything wrong with my heart so they sent me home. This event happened about 10 times again in the next 2 weeks. After a while the people in the er said I have anxiety. Im a male in my late 20s. Very athletic and very health conscious. Never had anxiety a day I'm my life. Finally the cdc called and asked how I was recovering from Zika. I told them the whole story and the told me to get tested for giambre (not sure if that's how you spell it) long story short I had a spinal tap done and it cam back negative for giambre but positive for viral meningitis. They really gave me no information or help on dealing with it. Just to go home and take pain killers... None of wich helped. So I have done a lot of testing on my own body to determine what causes certain symptoms and what helps the symptoms. First of all here are the symptoms.. I'm sure some of you can relate.

Wooshy head feeling, like your head is full and lots of pressure.

Ears popping

Ringing in the ears


A heart rate and blood pressure that is not consistent, sometimes fast and high sometimes slow and low regardless of your position

Muscle spasms or twitching.


Shivering /shaking

So I figured out that most of the head issues happened when I was looking at computers, phones, or driving.. Basically anything that requires a good amount of concentration.

I also found that working out or doing strenuous things made things worse. Usually the next day when I wake up.

So here's what I did to help feel a lot better.
And no I'm not advertising a product. You can find any blend of the following vitamins other places. This is just the ones I use.

Vitam mineral fusion (high quality vitam mixture)
Biom defense 50 (probiotic)
DNA Force (coq10)

All can be found on info wars life.

Also if at all possible let your brain relax. No driving. Have someone drive you around. And if you have to use smart phones use a blue light filter app. For computers use blue light filter glasses.

The probiotic one of the biggest things that helps.. Seems silly but somehow your stomach and brain are uniquely connected.

Drink lots of water and try to stay away from breads and fatty foods. That seems to set the symtoms off even more.

Posted on 04 December 2016

Comment by Scottish Laura

What is viral meningitis

It's 9 days 24/7 of constant severe pounding all over head pain and shivering with the cold and a fever fighting infection

It's tinnitus in your ears, neck pain, aversion and sensitivity to light and sound

It's 6 days in hospital, seeing several doctors and on IV antibiotics, IV anti viral drip 4 times a day, along with liquid morphine; anti sickness, paracetamol and ibrufen because that's the only meds you can take when you are also nursing your 4 month baby while you lie sick in bed

It's giving the doctors a challenge to medicate and prescribe meds which won't pass into my milk and affect my baby

It's expressing milk while trying not to vomit as the pulsating pain gets worse every minute you sit up right

It's a CT scan and then a reaction to the fluid injected into you prior to the scan so they can check for
Blockages and rule out a tumour or a clot

It's a lumper puncture which takes 4 attempts by 3 different medical professionals over 2 days taking 4 hours in total. It's when the anethnatiast says "I think we are going to have to call it a day" and then finally those ten precious drops of fluid from in between my spine are located

It's holding those 10 drops of spinal fluid and irrationally refusing to give it to the nurse to send for testing because of the fear of it being lost and knowing how precious these drops are as they will answer what may be wrong and you know you don't have the strength to go through the ordeal of another lumper puncture

It's seeing the anethnatiast the following day and him joke "I'm glad to see you can still move your legs"

It's the excruciating headache, neck pain that doesn't go away when you close your eyes or lie down

It's trying to get to sleep and 5 hours after trying to get into a position you can only just bear to be woken to have meds; bloods taken, OBs or to insert the IV drip

It's having to eat even although it's that last thing you want to do so you keep your milk supply up for your 4 month baby so she has milk for the following day

It's trying to put a smile on your face to ease your families worrying when you want to cry out in pain, but to cry or speak makes it worse

It's knowing this is the first time in 2 years that you haven't been with your lovely little girl and her baby sister not long born and the aching of your heart missing them knowing they are missing you and don't understand what's happening

It's watching your little girl come to visit frightened seeing mummy lying helpless with bruises, needle wounds and blood on the bedsheets

It's watching your husband look more tired, worried and drawn every day as he lives on Starbucks coffee and no substantial food. You promise you will be better soon and are improving to give him hope and keep him going when really you can't see a light at the end of the tunnel and have forgotten what it was like to feel normal

It's not being able to get out of bed and then eventually hobble to the toilet in agony because of the puncture wounds in your back and the black and blue evidence of the trauma you've been through

The excruciating 3 days of worry while you wait for your results to find out if bacteria has grown in your sample and you may in fact be worse than you thought and then to be told you are likely to experience short term memory loss and be handed papers listing the long lasting after affects of such an illness and worry then pray you will be one of the lucky 3% who recover with no lasting damage

It's lying in bed in hospital on the same date the previous 2 years ago that you lost your mummy. No comfort of a cuddle just a wet pillow as your friend

It's all of that or it's just "a headache" that your brother in law carelessly labels. I guess that NHS don't need there beds so much as people say as I've been gifted a weeks stay

Then it's thinking about life and how lucky and thankful you are for the family and friends who have offered you help, support, kindness and well wishes. It is treasuring those people and thanking the world that you have them in your life

Then it's a 2 week rest at home with meds to recover and you know soon you'll be putting up the Christmas tree starting to feel normal in time for the festive period where you can celebrate life, health and a special birthday

It's feeling lucky you are not one of the statistics who bear the awful bacterial meningitis who often fight for their life and loose. It's knowing that once you are home you are going to pay the £350 fee so your toddler can have the MenB vaccination

It's being grateful for the wonderful caring professional service provided free of charge by NHS Scotland knowing that when you need them they are there for you. Thank you FVRH.

3 weeks on...its wondering when the stabbing pains in your head will go away. It's wondering when the tinnitus in your ears will fade or when the fog will lift.

It's wondering if you will ever get your patience back and how long people will be understanding when they expect you to snap back to normal like you've just had a cold or something.

It's wondering, when you ask your husband to turn the volume down, how the the TV volume can only be at 7 when it feels like 67.

It's wondering what's going to happen next. What after effects do I have, what will go away and what if VM comes back. I thought I was supposed to be back to normal by now?

Posted on 23 November 2016

Comment by rose menzies

TO Kate McMunnigle
HI KATE - im very sorry for all you've beenthrough... i was diagnosed withi fibromyalgia a couple years ago... and i just can't believe the symptoms i have that apparently belong to theis illness!! HOWEVER, no one seems to believe its a really thing!! like my work...i tried to go on disability but they denied me... even with my Dr.s report! i have many many symptoms, but anyway so last week i had this terrible exploding heachache, fever, then cold, vomitig, diarhea, very sore lower stomach, and dizziness, very painful hip and leg... but i have no idea if it was flu or sth else! now after i htought it was gone, i still have the painful stomach, lower back pain, sore hip and leg, and still feel hot again and i can feel that headache is just wainting there to come back! idk and the doc seems not to think its anything... and i doubt if i cud go on disability still...
fibromyalgia (if it is indeed a 'thing') is definitely a different disease - thousands of symptoms it seems..
good luck everyone who has this...

Posted on 12 October 2016

Comment by Vincent Spiller

I had viral meningitis back in 2010 and i was 16. I had a really bad headache and couldn't move. My body locked up and everything hurt. I went into the er and they did so many tests after about 9 10 hours they did a spinal tap. Worst pain ever. I could feel it all. The cream, gas, drugs, none of it took away the pain. It was horrible. They let me out the next day and said ill be fine in a week or 2.

Yet here it is, 6 years maybe even 7 years later i still have problems. My back locks up and i get this horrible pain in my spine. I have a stiff spine and back 24/7. I cant keep thoughts in my head that easy and worse is when it hits sometimes and light just kills me. I wear tinted glasses all the time incase light hits me hard. My chin can never touch my chest and im always in pain. Idk what the doctors did but they didnt cure it. They keep telling me its over there shouldn't be any virus and refuse to test again. I hope that others dont have problems.

Posted on 26 September 2016

Comment by beata niigambo

i am 30 years now and i have suffered from TB MANINGITIS when i was 28 years and i had to stay at home for a year now i just wanted to know who can help me because i am constantly just acting like a kid and i am experiencing balance loss i am actually involve in a gyming program now and i am thinking of studying next year pls i seriously need help because i even forgot how to cook and i am being just to soft and i was tough before and after my sickness i was diognised with diobetic and i do the excerse also for me to loose weight because i gain a lot of weight pls if there is someone who knows what i am talking about pls come forward to advice me thank so much and you can send your advice to

Posted on 06 September 2016

Comment by Crystal Mallory

Glad I came across this site. People who understand.......I woke up at 3am one morning a couple of weeks ago to the worst headache of my life.....I started throwing up, severe pain in my back, hips and neck was slightly stuff but not oddly not that bad......anyways, fevers from hell that night I got my boyfriend to take me to the hospital. I knew something was severely wrong....I was getting worse, couldn't keep anything at all down.....and just never have had a headache so severe in all my life. Anyways, I knew something was really wrong.....I sat in the waiting room for about 4 hours before they even did bloodwork but then they finally got me into a room to be looked at.....I couldn't stop puking the entire time....anyways, it took forever before finally I was hooked up to fluids, some pain meds (which didn't help....) and gravol then Zofran (which barely worked...) thing I knew, I was put on antibiotics head just wouldn't stop hurting and they kept trying to get me to take Tylenol for my fever orally....SERIOUSLY!! I CAN NOT KEEP ANYTHING DOWN HOW THE F AM I GOING TO TAKE IT? Is there not anything they could give through IV??? Anyways, my fever was bouncing between 39.9C and 41C, so it was pretty bad. I fell asleep briefly and woke up shivering uncontrollably, I've had fevers but never like this either......I've never shivered like this before, it was insane! I felt so horrible, had weird tingling and some dystonia in my left arm and hand and I guess I was losing control of things on my left side.....I was scared, my BF and daughter went home and after...suddenly nurses and dr's were coming in dressed in gowns and masks.....and then an internal medicine dr came in to talk to me about the possibility of meningitis.....OMG my heart was in my throat, I was terrified....all I could think about was my daughter, being only 3 1/2.....I was terrified I would have gotten her sick! I didn't care about myself at this point.......honestly I was flipping terrified for my family!!! then the ER dr attempted 3 TIMES to do a lumbar puncture to no avail....they couldn't seem to get it done, not sure was painful and frustrating.....anyways, more internal medicine dr's come in and to me further (I had ultrasounds to make sure my organs were ok...), and then finally the head of internal medicine came on and talked to me about needing to be officially admitted. At this point with the bloodwork etc, they were suspecting Viral and not I was in for just a couple of days.....I really wonder if it's what I had.....but reading all the posts here kind of makes me think it really was that. The good thing is that when I go to the hospital I go to, they do take me seriously.....anytime I have ever gone there, it was always something very serious.....they did a CT which luckily didn't show an acute bleed or something, BUT it did show narrowing of vessels in the top area demonstrating possible meningitis OR cerebral hypertension (high pressure just within the brain). Another thing that was found, was my potassium phosphate levels were dangerously low.....which should not have been that low given I had been throwing up just one day.....

After everything, I seemed to recover but on and off I'm now getting weird headaches....feeling "loopy" and definitively finding memory lapses. I don't feel quite like myself....looking back, over the few days leading up to it...I had been getting aggravated very easily, couldn't seem to handle things as I normally do.....even now I still don't feel right. As I type this tonight, that headache is coming back tonight.....I need glasses but it is hurting to wear them which is really weird. I have a follow-up appointment with my dr this Thursday.....he is still concerned, *sigh* I can't afford to be sick either!! I have kids to look after as well as my own daughter, I'm trying to join the military as about HORRIBLE TIMING!!! I can't have this going on, it's going to ruin my life....I honestly have the WORST luck.....

Posted on 25 July 2016

Comment by Brono Sama Fonkwen

My brother had miningitis at the age of 11years. After 3weeks he developed eye problem and was able to hear. As time goes on his memory was also affected. Presently he is deaf but can speak. I want to know if there is any specialist out there who can help. I love lmy brother and i just wish he can be normal again.


Posted on 25 July 2016

Comment by Janet gillespie

After two lumbar punctures..three weeks in isolation..diagnosis of bacterial meningitis..every time the IV antibiotics are eased off..the fever and nausea return..spinal fluid ,blood are neg for meningitis and any bacteria..question..when will these fevers end?This is week 4

Posted on 21 July 2016

Comment by LEE DONALD

I have Been dealing with some health issues that doctors haven't been able to find a cause for. At first it started with pain in my jaw running into my neck, rapid breathing at random moments, chest pain, anxiety attacks, night fevers, and some confusion. now several months later the symptoms have changed slightly. I have pain in my lower back, stiff neck that radiates into my shoulders, night fevers , anxiety , light sensitivity, headaches. I have had cardiac monitors, a heart catheter, echo and was told its definitely not a heart issue. last month I had a friend who passed after 5 days in the hospital with VM. I just found this page and have read and see that many of the symptoms I have are experienced by people who have vm. I want to go to the ER but don't want to be told its all in my head, I would rather be tested just in case. these symptoms scare me terribly and with a baby daughter who needs her father, the fear has grown even worse. I don't want to be running to the hospital but feel at my wits end with how I feel and just want a answer other than anxiety. The symptoms I feel are nothing like I have ever felt with a anxiety attack. I would love some feedback if possible on opinions, questions, etc. im a 34 yr old army veteran and this scares me so badly and not sure where to turn. Thankyou everyone and im so thankful for any help.

Posted on 20 June 2016

Comment by L. Newman

I had lumbar surgery on 1/15/16. 5 weeks later I was vomiting, fever, couldn't move neck, migraine, couldnt hear, felt like a dagger going through skull into eyes.. Went to ER spinal showed viral meningitis admitted for week in hospital..had to wear sunglasses for month inside.I Still have not returned to work. Have been diagnosed with trigemenal neuralgia. Its like your skull is hooked up to a car battery with painful electric shock 24/7(head,jaw temples), imbalance, memory & eye sensitivity, issues. I am desperate for help, I need my job and life back..the surgeon said I am lucky to be alive and it wasn't bacteria meningitis...

Posted on 06 June 2016

Comment by Kate McMunnigle

Diagnosed with Meningitis as a 4 year old child over 55 years ago, sending me by ambulance to hospital. I remember severe headache, vomiting, stiff neck and very light sensitive. It was a very traumatic time in my life. Since then, I suffer from memory loss. Parts of my life are missing like they didn't happen, I became socially awkward - unable to make eye contact with people, couldn't start conversations or had a hard time continuing them, bothered by leg pain and stiffness, cold extremities, headaches, blurred vision that comes and goes, lethargy, poor balance, anxiety, depression... The list goes on and on. After years of doctors visits and worsening symptoms, I was diagnosed with fibromyalgia. I am unable to work as it is agonizingly painful in my hips, legs and feet to sit at a desk or stand for any length of time without headaches and tension. Walking is the only exercise I can do and tire easily. I don't get
a good night's sleep any more. I can't help but wonder if this all stems from the meningitis. My doctor just dismisses it. Wondering if anyone else has gone anything like this?

Posted on 31 May 2016

Comment by Catherine Vickery

I contracted viral meningitis four days after an operation to remove a pituitary tumour which had given me Cushing's Disease (not correctly diagnosed for many years). I started projectile vomiting and then followed weeks of splitting headaches where i could hear my brain 'crackling; light lightening-strikes inside my head. Several times my Consultant was called out in the early hours to perform a lumbar puncture to relieve the spinal-fluid pressure - which always eased the pain. I was in hospital 2 months. This has left me with extreme sensitivity to noise and bright lights.

Posted on 31 May 2016

Comment by Emma Burdett

I was hospitalised for 5 days in March 2016. My partner could wake me properly one day and I could not open my eyes due to the pain the light caused me. I had a rediculous headache. She got an ambulance out to me, I dont remember anything else until I woke up in hospital 24 hours later with tubes and machines hooked to me. I had VM. 2 months later and I am still suffering the after effects. Exhaustion, headaches, feeling like I am going to pass out. It's getting worse rather than better. I now get the feeling as if my brain can't keep up with my eye movement. It's horrible and affecting my life. Signed off wok again. I used to be very active, bike riding, walking, gym 3 times a week, swimming. Yet now I struggled to get through my wedding day and honeymoon, and the thought of any activity makes me want to cry. VM is not as easy to recover from as people think. I started to think I was imagining it and people didn't believe me. It is nice to know I am not alone, but I also hope we all recover very soon!

Posted on 31 May 2016

Comment by Sherry Turrentine

I was 23 when I was diagnosed with VM. My symptoms started with tiredness and confusion and neck stiffness and horiable pain. I went to the ER and the mid diagnosed me with a crick in my neck, discharged me. Day two I went to work with Nauseousness severe pain and numbness in my neck arms hands fingers feet. The pain felt like lightening bolts shooting through my body i went to the ER again and they misdiagnosed me again, said I had Rye neck, random spasm of muscles. Have me pain meds sent me away. Day 3 I pulled myself from bed and went to work with my right side paralyzed and purple rash all over my legs that looked like bruises and blood spots similar to hickies. The confusion was so severe I didn't realise I was so sick I was about to die I left work and went home. I fell asleep on my couch and awoke to my husband and father carting me to the car then back to the ER. The demanded me to be seen. At this point I was yelling hysterical "I'm dying!!!" Pls help me. "I'm dying old help" everyone was staring.... I knew my life was slipping away each second. They tapped my spine and placed me in isolation. I was imdietly air evac to st Louis and sent to isolation. I remember having my wardrobe cut off and people scrubbing me down from head to toe with sponges, they were in isolation suites with shield mask. I fell into a two week coma.
I want everyone to know that during this time I could here everything going on around me, I heard the Dr tell my mom and dad that I wouldn't make it to start preparing for arrangements. I heard the Drs as the ushered my family out of the room. Inside I was screaming out no I want my family here, I am not dying. Right then I asked God to help me. And drifted off. When I woke up the next day, I couldn't move, speak, swallow, ect.... But I began the road to recovery. It was three months of morphine, physical therapy, speech therapy, swallow therapy ect... I made it. I survived. Now I am 37 and I still feel pain in my neck at times, I still have light sensitivity, and sometimes I lose my thoughts but I am here and healthy and alive to see my babies grow. I would say if your body and heart tells you something is wrong DO NOT walk away. Demand test... Demand second opinions, don't trust the Dr, when you know something is wrong, dont stop until you find out. It would have saved me a lot of trouble pain and suffering if I had not been so easy to turn away, when the on call Dr guessed that I just wanted pain pills.

Posted on 20 May 2016

Comment by Angela Turner

When I was 10 years old I had viral meningitis, the doctor was amazed that I survived it. I was hospitalized for a long time then was at home for a long time before I could return to school. I have never been the same since, energy wise. As a teenager I had to take naps in the afternoon and ever since. Every evening I make a list for the next day and if I get 3 things off my list the next day then I'm doing good. I got shingles when I was in my 20's, nobody else I knew had it. Then chronic bronchitis for 2 years. I'm now 48 and my kids are grown up and moved out and I'm in pretty good health otherwise. I'm just tired of being tired now. I've always been envious of other people being able to do so many things. I have worked full time a few times but it never lasted, I just couldn't do it like everybody else. I just need more energy but I seem to run out fast. Any suggestions?

Posted on 25 April 2016

Comment by Harold Ramirez

Hey guys im 36 male started out with stiff neck very bad diahrrea my head felt so afull ataquicardia muscle spasms very bad dizziness burning eyes bloodshot eyes would burn very bad bloated stomach pain never got fever though, I thought i had liver issues. Went to emergency room 4 times never got a diagnosis xrays ultrasound they said it was anxiety I new I was going through something bad couldn't sleep when finally would catch some sleep I would wake up more tired than when I woke up .lost like 70lbs I swear I know I was dying this may sound funny but really I was not good dogs would howl out next to my window I moved mattress to living room dogs would howl in front of the house theres a lot of abandoned dogs I live in Puerto Rico .something paranormal I got sick around Halloween its April 23 I still have sore back so I kept looking through the internet and stumbled onto this site does this sound like meningitis I THANK GOD EVERY DAY I SURVIVED THIS I don't which this on anybody I knew I was dying I'm starting to feel better but my head throbbs when I walk up this hill were I live it felt like my neck was stiff every day and it hurt so bad the worst was that head dizzy feeling.I did so much research I'm sure this is what I had.Do you guys think is the same thing?hope y'all get better will pray for you👍you guys can call me 239-234-4378 I would like to be sure this is what I had.

Posted on 11 April 2016

Comment by Tammy K

I had Meningitis in April 2007 around the same time my daughter starting to develop epilepsy she just turned 1 year old. I was misdiagnosed 4 times before they finally figured out through a spinal tap that it was meningitis I spent 2 weeks in hospital before finally pushing to go home due to my youngest child needing me because of her seizures. it took me a long time to get back my strength like 6-8 months and to this day when it get to stressful or I get upset my speech messes up on me I slur and cant get the words out I feel so stupid and mad at myself when it happens but I need to slow down and give my brain a minute to catch up or something. but my symptoms where headache stiff neck throwing up and diarrhea and weakness of muscles. what I remember most is my head hurting so bad and the throwing up I felt like I was dying I think I almost did. but while in the hospital I had a total of 4 spinal taps and excessive antibiotics and iv because I couldn't eat I would just throw everything up . I know I am not as sharp and quick as I use to be before it but I am alive!

Posted on 11 April 2016

Comment by Kristin Sasse

I started getting headaches, fever, and neck stiffness on 2/29/16. My co-worker had just spent 7 days in the hospital with VM. My first doctor said I didn't have a rash, so I didn't have V-M. My 2nd doctor 4 days later said the same thing, but sent me to ER "just in case". I was taking 3 Advil every 4 hours for pain at that time. I went to ER, but since I walked myself in, they didn't think I had it. They did a spinal tap, and it was clear. My blood pressure was high (35 over normal on top and 40 over normal on bottom), but blood showed white blood cell activity, but I had no rash, so they sent me home with no meds. The next day I went downhill. My pain was excruciating. I only got out of bed to go potty. I could only eat 5 saltines a day. The following day I started vomiting from pain. I saw another doctor. He was a seasoned doctor. The first 3 were very likely under 28. I threw up right in front of him. He gave me a shot to control the nausea and sent me home with pain meds and muscle relaxers. I missed 2 weeks of work and lost lots of weight. I had major aversions to coffee (which I've been drinking every day for 12 years). I couldn't look at a computer screen, and lights, sounds, and smells bothered me greatly. I wouldn't wish this on anyone. Today is 4/7/16, and I'm still having neck stiffness, annoying headaches (pressure, not big pain), and I still can't drink coffee. My co-worker who had it 2 weeks before me is experiencing the exact symptoms (she didn't get a rash either, but her spinal tap came back with infection). Did anyone else suddenly get an aversion to coffee?

Posted on 05 April 2016

Comment by Neisha Dorantes

I was diagnosed with viral meningitis back in 2006. My symptoms started with a terrible headache and severe neck and shoulder stiffness. Later that night I took a turn for the worst. Numbness in the fingers and toes started then into my arms and legs to the point that I was unable to walk or control my arms. My husband then took me to the emergency room. I started for 6 days. Doctors didn't think I was going to survive and told my family to say their goodbyes.I don't remember many details from my stay in the hospital.
After I was released I was told I should make a fast recovery, but that never happened. My reflexes were terrible, I still had stiffness and terrible headaches, weakness, my head was very sensitive and I couldn't even tolerate hearing any noises such as people talking near me. My immune system was completely down. I couldn't concentrate on anything our focus on a conversation. I used to be very articulate, social, energetic and active. I am just a shell of who I used toi be.Following the hospital stay I was diagnosed with severe cases of fibromyalgia and chronic fatigue syndrome sick brought on by the meningitis.
I was able to get the fibromyalgia and chronic fatigue syndrome under control with help from my homeopathic Dr. It's been 10 years, I've been able to manage well considering. I haven't been able to hold down a job since and I still have bad brain fog and trouble concentrating and some hearing loss. That seems to be the lasting side effect from the meningitis.
I am now able to be a good mom/wife but only cause I stay home instead of working. This allows me to focus on taking care of myself so I can start at my best so I can take care of my family.

Posted on 29 March 2016

Comment by Donna Noble

I just got out of the hospital Thurs. March 24 after being in there for 9 days. I'm still a mess.
I started having BP problems 3 weeks ago and they doubled the meds within a week. My face would go bright red and feel on fire; doctors said it was from my BPissues.I have chronic back pain due to osteogenesis imperfecta and had been in major spasms for a month, which wasn't that unusual for me. Tues. March 15 I went to the family doctor and told her my face felt so hot and was red and I felt really dizzy and weak. She said it must be from the BP. The following day, Wed. I started getting the worst headache of my life. I get migraines, and this was a million times worse. I couldn't even bend over or it felt like my brain would explode out the top of my head. Thurs. March 17th, headache still worsening, and things started tasting and smelling terrible, like my senses were on overload. By afternoon, I was having hot and cold flashed and felt terrible. My son called 9-1-1 that evening, thinking it was due to the BP problems. Went to the ER were they did blood, urine and a lumbar puncture. I was so shocked when they told me it was meningitis. They admitted me and I was in isolation in the ICU for a day and a half, then sent up to a ward for the next seven days. What a stigma meningitis has even when not contagious. I just felt so horribly ill and the hospital staff treated me like I had the plague. I will have nightmares for a long time about it. Spent my 51st birthday in there, and I have to say it's the worth birthday I've ever had, hands down! I got out of the hospital 4 days ago and still having trouble eating, can't walk without a walker I'm so weak and the head, neck and back pain is still terrible. Can't think properly or remember things. How long does it take to feel better? Thanks

Posted on 29 March 2016

Comment by Mike

For those suffering with meningitis like symptoms lasting for a long period of time (stiff neck, headaches, vision or hearing issues, dizziness, nausea, etc.), please consider the possibility of a CSF leak. It is often misdiagnosed. CSF leaking causes intracranial hypotension (low cerebro spinal fluid pressure), the brain loses buoyancy and sags. This can cause pain and other strange neurological issues. A leak can happen spontaneously (like mine) or can be a result of a trauma (like a lumbar puncture).

Now the good news: a CSF leaks can be fixed with an epidural blood patch. Please research and discuss with your doctors. Hope this helps.

Posted on 29 March 2016

Comment by Umar Asir Makaya

I am 26 and had viral meningitis two months back.. Firstly I thank to God that am alive today.. And nothing worse has happened.. I don't have any memory of the things when it happened.. But it was very hard to tackle after effects... I faced problem with memory and concentration.. Which after two months has almost gone. But personally I feel I have totally changed person.. I was very introvert person.. Now I talk a lot.. I have got very aggressive also.. I get extremely happy and sad as well..

But we all should be happy that we survived.. When I hear stories of meningitis.. It's very dangerous.. I feel like am born new.. So I enjoy like that.. Even if I face issues.. I ignore it as it could have been more worse..

Posted on 01 February 2016

Comment by Ray Faircloth

I came down with a nasty cold (just a cold) on December 2, 2015. I have the hardest time getting rid of colds and this one was just beginning to be tolerable the week of Christmas. On Christmas day I was pretty much over the cold and went to visit friends about 200 miles away for a few days. I made sure none of them were sick because I didn't want to catch anything else. The night I arrived one of my friends started coming down with bronchitis. I stayed a couple more days then came home and two days later I started getting sick again... with bronchitis. This was on Wednesday, December 30th. Well, it kept getting worse and a week later on Wednesday, January 6th I felt awful and finally went to the health clinic. I couldn't focus or concentrate on anything at work. My neck was hurting, and I sill had terrible bronchitis. The doctor prescribed several things for me. When I left work to go to lunch that day, I told them at work that I probably wouldn't be back the rest of the day. Late that afternoon, I was walking my dog and my neighbors saw me out and asked me to come in to eat with them. I did. I realized I couldn't focus on the conversation and that my hands were shaking when I was trying to eat. I am the pianist at my church and was supposed to have choir practice that night. My neighbors noticed that I just wasn't right although at the time I didn't realize it. After eating, one of them took me and my dog home. I remember walking in the house and that's the last thing I remember until some hazy recollections Friday afternoon. Needless to say, I didn't go to choir practice that Wednesday night. I have no idea what I did Thursday, I didn't go to work. My neighbors tried to call me Thursday night and came to the house when I didn't answer the phone. I didn't come to the door even though the dog was barking like crazy. They finally called my son who came about 7:30 Thursday night and found me standing in my kitchen looking out the window. I was not responsive to him. So he took me to the emergency room where I was given tests to try to determine what was wrong with me. They put me in ICU and hooked me up to 6 antibiotics because they were not sure what was wrong with me. It was finally determined that I had viral meningitis. By Saturday I was pretty much back in the real world. I did notice that I didn't have bronchitis anymore. I finally was released on the following Monday. I had a terrible headache for several days after being released which was finally attributed to the spinal tap I had had while in ICU. They then performed a spinal patch to stop the leakage of the spinal fluid and my headache went away a few hours later and hasn't returned. For a week after I was released from the hospital I had to rest alot. Any exertion caused exhaustion. I guess I'm lucky in that I am back at work without getting tired after three weeks. The only side effect that lingers is I don't feel like my mind/brain is back to where it was before the meningitis. It seems like I have hiccups of the brain. As I said, I play piano, and it seems to be a struggle even with pieces I knew well. I've also noticed I can't remember if I've done things at work... even on clients that I've worked with for years. It's frustrating. But, after reading other comments, I am grateful that this is my only problem. I hope it improves with time.

Posted on 01 February 2016

Comment by tanee vincent

I first had VM in 2006 and have had it 3 times and i feel like im about to start number 4. I am so glad I found this site. As many of the symptoms i have i would not have associated with mv. But i definitely have memory probably, tired and fatigue, need to sleep at least 10hrs. Im not sure if anyone else has linked use of antibiotics and VM , on the last two times i had VM my symptoms start 6-12 hr AFTER talking antibiotics (chest infection and tooth infections) i currently have the headache and stiff neck back but think to myself why bother go to the doctor as yhey can't /won't do anything to help except pain killer which really dont help either. Thanks everyone for sharing nice to know we are not alone

Posted on 25 January 2016

Comment by Ben

I was diagnosed with Viral Meningitis in July 2015, it started with feeling very unwell a level of sickness I had never experienced before followed by indescribable severe headaches, stiff neck, photo phobia and muscle and joint stiffness, then followed by a complete all over body rash , which was misdiagnosed by my GP and I was sent home twice. After four days I could not stick it any more and presented at Emergency Depart where I had bloods done immediately and within 2 hours I was told there was something seriously wrong and I was admitted and put on Antibiotic for bacterial meningitis straight away . The following day I had a C.T. brain scan followed by a lumber puncture which confirmed the Viral Meningitis. I spent 6 days in Hospital .
After discharge I suffered still with severe headaches, dizziness, double vision and nausea, 2 weeks later I started losing all my finger nails, after that it effected my lungs and breathing. I sometimes have difficulty getting some words out when speaking and it has also effected my memory.
I was doing good up to Christmas 2015 but had another setback with headaches , dizziness ( feeling tipsy all the time ) and nausea again for about 2 weeks . I have now been told by my Consultant that these after effects could last for up to 2 years and each person may experience different after effects and that is why they dont know how much to tell us about Viral Meningitis when we get it or what will happen afterwards , but for some it can be very serious and for others not at all!
I hope this will help VM sufferers , as I know it helped me reading other peoples stories and what they were experiencing and that I was not imagining these things, as some people did suggest. I only hope they never get it .
Best of Luck everyone overcoming Viral Meningitis.

Posted on 18 January 2016

Comment by Michelle M.

About 2 years ago I was diagnosed with VM. I was hospitalized for 5 days. On bed rest for 2 months and pushed myself far to hard to go back to normal life. I can tell you, nothing is normal. Nearly every day I feel like there is a fog over my brain. I still suffer from headaches but it has gone from every day to once or twice a week. My memory makes me feel like I am starting Alzheimer's and my joints hurt so bad sometimes I think I will not be able to stand up from kneeling. I am so weak, it's like I have lost all muscle tone. I also have numbness that comes and goes in my hands/fingers, toes and calves. Sometimes, my leg muscles go into complete spasm just from bending my leg. I also have NO ability to keep my life/household in order. I have my hubby & two children, 8 and 4. My poor babies suffer in that they do not have the wife/ mother they began with. I am less than and it makes me so sad. I pray every day that God will give me back my "old" self. I used to be a very articulate, outgoing, driven person - Now, I could really crawl into a hole and disappear....I am a shell of who I once was.
The doctors just don't have info and no one offered me any therapy. The answer was always, it takes time to heal. Well, I am two years out, so now what? Now when I discuss with my doc, I feel like he thinks I am nuts. Maybe I am. Ugh. There needs to be more education for this! I feel all alone.

Posted on 05 January 2016

Comment by Lois Hamilton

i am 69 and had viral meningitis when I was about 40. I have also had lupus since I was a child. All of my symptoms including falling, stumbling, loss of memory and loosing my eye site while reading were attributed to lupus, MS or Parkinson's disease. I just found out that I have a high viral load of both meningitis and mono. These tests were done by a walk in clinic doctor who went far and above my other specialists. I am now on an antiviral drug and neuronton and high doses of several vitamins and what she calls brain food supplements. The neuronton has definitely helped the shaking in my hands, wrists and shoulders. Until now I didn't know that you could carry viruses that can do such damage for long periods of time. I hope this helps someone and I hope that I can continue to improve. Good luck to all of you.

Posted on 05 January 2016

Comment by Tammy B

My symptoms started around the middle of November with dizziness, confusion and headaches. My primary doctor thought it was a sinus infection but ct scan was clear. After my pulse shot up to 146 and fever wouldn't go away, I was diagnosed with viral meningitis on Dec 14, 2015 in the ER. No spinal tap was done because the ER doctor said it had to be viral because I had my symptoms too long for it to be bacterial meningitis. One week later I ended up in the ER again with shortness of breath, chest pain and rapid pulse. I have been off work 5 wks and have had a low-grade fever the whole time. My most recent blood test shows no infection so I am seeing an infectious disease doctor this week to find out what is causing the fever. I get short winded when I do anything that involves talking or walking. I also have an echo doppler scheduled with my cardiologist to see if the virus caused damage to the heart. I take comfort in finding this site and being able to relate to what others have experienced after viral meningitis. It is my hope that anyone with similar experiences can find comfort as well. God bless!

Posted on 05 January 2016

Comment by Kbm

I had VM at the end of 2015. The recovery was around 6 weeks, returning to 'normal' and back to work. I was in hospital for 3 days. Bed rest for about 2 weeks. Headaches and nausea daily treated with painkillers and lying down. I couldn't sit up/ stay in a seated position without feeling sick so i had to lie down alot! I felt spaced out/fuzzy head everyday. After about 4 weeks i could sit in a chair/ on the sofa etc without nausea. I still couldn't use a computer for more than 30mins until i felt sick. Still felt spaced out/ fuzzy head but if i was out i didn't notice it as much.

Posted on 22 December 2015

Comment by Alejandra Perez

Hello. I was diagnosed with VM on 12/16/15 but not with as much symptoms as most of you.. it started on the 13th as a headache and neck tightness to where I could not stand straight at all and if I did I would get extreme pressure and have to vomit.. so i had to walk buckled over to relieve the pressure..never had leg pains just the head and neck are affected.. I stood in the hospital 5 days then sent home on medication..slowly but surely it seems to get better but it seems like it is taking foever. I feel drunk most of the time n can only stand for so long before I need to lay back down.. I hope and pray for us all to be our normal selves and live back our normal lives.. GOD BLESS YOU ALL.

Posted on 11 December 2015

Comment by Leah Vadnais

I was recently at the hospital all over thanksgiving break, as I'm a second year undergraduate student. I feel as if my life is now dependent on Tylenol and ibuprofen because apparently there's nothing else they can do. I am 19 years old and can't even sit through one class because I get migraine headaches. I get leg spasms or even sometimes my legs get so weak I can't even walk. I am constantly struggling and it's only been a week since I've gotten out of the hospital. Someone please tell me what is there to do for the after effects of viral meningitis.

Posted on 30 November 2015

Comment by ratilal chandanmal bora

sever headach knee and lower back pain lower back pain at head also muscle pain in age 63 years old after that pl suggest some medication thanks

Posted on 09 November 2015

Comment by Xander5000

Hi, after a long 2 weeks of misdiagnosis and horrible pain. I have been diagnosed with viral meningitis, the headaches are horrible and i struggle to walk, because of my dizziness. It is hirrible right now, but what i want to no is will it get better and how long will it be?

Posted on 19 October 2015

Comment by Carrie Massey

My name is Carrie. I am now 41. I was diagnosed with VM for the first time when I was 25. I was a perfectly healthy, mother of two, never a headache, never even took as much as a Tylenol. I would go on to have 8 diagnosed cases of VM in a 6 year period.

The first time I had it, took the docs 4 misdiagnoses, one being brain tumor. I was down completely for 3 full weeks. I lost two nerves in my neck which resulted in a total loss of muscle in my right shoulder. ( extremely difficult with 2 babies).

Exactly 1 year later, the same horrifying headache returned. For those who have had it, you will never forget that pain, and for me, it would haunt me for years. I was hospitalized the second time and sedated. I was 98 lbs and had no energy. The pain was horrible.

Over the next year I saw just about every specialist there is and underwent thousands of tests. I saw a cardiologist for the onset of raynauds syndrome and shortness of breath. I saw rheumatologists and neurologists. Test after test. Not one could tell me what was happening. I began to think they thought I was crazy. I thought I was, except I wasn't. I did my own research and diagnosed myself with Mollarets syndrome. My doctor said, no that's not it! He said " lightning struck twice and will never happen again" the third year came, and just a few months off schedule, it happened again, only this time the neurological effects presented first. I woke and had to look in a mirror. My entire left side was numb. I fell getting up, face was numb. I called my neuro. He said I think you're having a stroke, meet me at the hospital. Those were the most terrifying words I had ever heard. I had yet another MRI, CT and spinal tap. The next day the headache started. I called my doctor, he said he could no longer handle my case and referred me to university hospital. A week later, I saw a doctor who finally told me what I had. Mollarets syndrome!!! Great news to finally have a name, bad news, not much to do about it. I took antivirals until the next year, when I got it yet again. There seemed to be nothing anyone could do. I was in so much pain that after 3 years I had to take the pain pills I was given and never took. I would have to take these for 4 years just to function, work, care for my kids. I thought I would die from this. I had many many diagnoses and suggested diagnoses, including, lupus, RA,west Nile, Lyme,MS.. Just to name a few. I have been on EVERY drug, including methotrexate, they were all horrible with horrible side effects. I was losing my will to live, in so much pain all day, crying myself to sleep every night. If it were not for my children, I would have given up.

Two years later, after 3 more, it stopped. Just stopped. I thought that would be the end. It was not. I developed psoriasis, severe ongoing headaches, the nerves in my neck never returned, the numbness and pain down my left side is still there, I have poor memory, confusion, and had to have several lymph nodes removed last year. Now, the headaches are coming more frequently always with severe pain in left side. Memory is worse, vision issues starting. I do not take any medication any longer and haven't for years. Nothing is helping, and even more frustrating is, I can't get a doc who knows what to do. It's bad, very bad most days I feel like crying. I have read articles about brain lesions and tumors as a possibility of having this horrible virus, and that is my biggest fear now. I let this all go years ago, it refuses to let me go. I fear this will always be with me.

I only went into SOME of my story, but you get it. For all those going through this, be strong and be your own advocate!! If you don't, no one will. It shocks me that there is still so little known about this disease. Good luck to you all.

Posted on 15 October 2015

Comment by Steph

Gosh I am glad I came across this webpage, but now I am also scared. I got very ill a week and half ago and went to see my primary care after an incorrect diagnosis of pneumonia from the doofs at the urgent care. I have been waiting a week for my blood work to come back to confirm my primary care doctor's suspicion that I have VM. I am getting anxious that the weekend will come and I will still not have any answers. I hate going to the ER, but I am still very sick. The fevers are gone, but everything else is there. What should I do?

Posted on 12 October 2015

Comment by Shim MPharm

In response to your questions Sarah Perry and anyone else with symptoms, I've been in the same position as you 18 years ago (1997 on 16th birthday), dont worry and be strong, you will get headaches for a while after you leave hospital, pain killers may or may not help or just take slight edge off it but pain will be present some what..... I had mine for about 3-4 months after, then they went away - the lining and cells of the brain need to repair and get back to normal (I can still get headaches often to this day but can manage and nothing like after the illness). Like wise with the tiredness, I took multivitamins to get some energy and health back, and again i still get tired a lot more easily than my friends that are the same as me to this day..also can get bit more temperamental and impatient at times....its just one of the things to get used to and manage, and to be grateful to still be alive. Hope this helps and good luck.

Posted on 01 October 2015

Comment by Teresa

I have been recently diagnosed with vm via spinal tap. I have been out of work and bed ridden 2 weeks now. I was hoping this would be over soon. After reading everyones posts i see thats probably not going to be the case. I am glad i came across this site tho at least now i wont be suprised with the after affects. I wish everyone well and hope research finds a cure for our problems. Bless you all.

Posted on 29 September 2015

Comment by Sarah Perry

Hi ive just come out of hospital with Viral Meningitis. I feel dizzy all the time and i feel so low. Im anxious about everything and im tired all the time. how long will it take till i can start doing things? does anyone know. I still get really bad headaches to the point where im screaming in pain. All i want to do is go back to work and get my life back on track. Can anyone help answer some questions for me?

Posted on 07 September 2015

Comment by Jennifer Levi

for those of you who have had viral meningitis more than once- please please ask your drs about Mollarets Meningitis- there is a way to manage it and help suppress other episodes of viral meningitis from happening again.

Posted on 10 August 2015

Comment by Wendyruizcoakley

I've had viral meningitis 5 times,last time was 4wks ago,Dr's in hospital said it wasn't but having a lumber puncher yrs earlier to diagnose that it was viral meningitis I knew for sure i had it again,I've suffered with my balance since the 1st time I ever had it and every time I get it my balance has gt worse,so scared of getting it again and I so know I'm going to

Posted on 14 July 2015


I was diagnised with Viral Meningitis 11 years ago aged 31. No symptoms at all other than dizziness and others then noticed slurtred speech and coordination issues. No real pain as such or vomiting but i went down hill very rapid. In the 10 minutes it took for my brother to drive me to my local ER when he opened the car door i could no longer walk. My limbs then twisted themselves and i remember very little after the doctors testing me that first day. I was so far gone by the time they gave me the lumber puncture/spinal tap that i didnt feel it at all.was later told it was probably a result of chicken pox which id not had as a child. I became unconcious for days then woke covbered in tubes and drips. I was told on discharge having spent over a month in isolation that if id have gone back to bed to "sleep off the diziness" as id planned i would not have woken up.Anyway i lost my ability to walk and speech. The speech started to come back after a few weeks though was jibberish for ages but the walking was a long hard slog. was back at work 5 months after i was hospitalised but realised going back full time was silly as id no energy and my memory has to this day been effected. I thankGod for sparing me every day though and realise how short life is.

Posted on 01 July 2015

Comment by Daphne Solomon

I was diagnosed with viral meningitis 2 weeks ago. I just went back to work today. I stayed 4 days in the hospital. Although I am happy with the care, concern and treatment i recieved .... upon discharge, I don't think I was made aware of what to expect. I was not prepared for the massive headaches from the spinal tap, the days and days of fogginess, unbalance, and semi drunk feeling. I was sent back to the ER after 2 different follow-ups appointments. First my Primary sent me back because my blood pressure was sky high and then when following up at the office of the Infectious Disease Dr that actually released me from the hospital ...I was told that i should not have any sign of a fever (although it was low grade in their office) and was sent back to the ER... to HAVE ANOTHER SPINAL TAP DONE!!!!!! I cried and cried and didn't want to do it and after the ER Dr did his own 4 or 5 hour assessment... He agreed that he felt it unnecessary at that time. So... Expect elevated blood pressures, ongoing fevers, being irritable, not really acting like yourself, perhaps being sent back to hospital, being weak and unstable on your feet, out of breath, tons of headaches. I truly am grateful to finally feel like myself again. I pray if you are going through this that you are strengthened and healed!!

Posted on 09 June 2015

Comment by Nic

My friend sent me this link after I said I'm surprised that I'm still feeling dizzy, having throbbing sound sensations, feeling fatigued and suffering from painful headaches a few weeks after having viral meningitis. I thought I would have recovered by now as the doctor only signed me off work for one week. I really feel for those of you who have suffered for years following your diagnosis. I just wondered if anyone went to their GP about these after effects? I was thinking of making an appointment but I'm not convinced there is much they can do. Any advice? Thanks and wishing you all improved health.

Posted on 08 June 2015

Comment by Sheryl Hines

My heart aches for all of you. I lifted all of you up in Prayer to the Lord Jesus, who is our Healer. I went to the ER twice with symptoms of VM. I wouldn't let them do a spinal tap, they said if I had the bacterial form, I would be dead. I am in my middle 50's, and suffer post x3weeks with a lot of the symptoms listed by others. I am dumbfounded that ANY doctor who has taken the oath to protect life does not take VM seriously enough to do some type of research to help alleviate the long term affects of this desease. There are too many people on this web-site who share and suffer with the same symptoms for this not to be taken seriously by our Medical Community. The ER doctor I saw stated I had neck strain and a virus...and sent me home. I had to go back to the ER three days later, due to the fact that I believed that what I had was not serious. I am so very thankfull for all of your post, it has given me reassurance that I am not going crazy.
God Bless all of you with His Healing.

Posted on 11 May 2015

Comment by T White

I've just returned from an overseas trip to New York, where I ended up in ER with suspected viral meningitis. It started with flu-like symptoms, then worsened to severe fever, extreme head pain (stabbing pain, which got worse with movement), severe dehydration, high blood pressure, and cramps and nerve pain in my lower legs. The medics weren't able to confirm the diagnosis because I refused to have a lumber puncture (knowing that if I had it, I wouldn't be able to fly home). It was a truly dreadful experience. I improved slightly with pain medication and I.V. hydration over a period of 12 hours, but the fever keeps coming and going, and 10 days later, I still have a bizarre drunken, fuzzy feeling in my head. I find it hard to look at a screen, or to read print (it makes me want to vomit). I'm also incredibly sleepy day and night, and my limbs feel very weak and sometimes numb. I'm also totally exhausted - just showering and getting dressed feels like running a marathon! I've decided to scale back everything I do and try to recover through complete rest.

Posted on 06 May 2015

Comment by Chris

I will say i feel a lot better after reading the info here. I just got out of the hospital with viral meningitis about 2 weeks ago and at first felt a world better but the exhaustion is so extreme and i feel half drunk a lot of the time. I was worried that this is not normal but it appears that it is. Its nice at least knowing.

Posted on 14 April 2015

Comment by Caro Wills

It was good to read other comments on here I had viral meningitis at age 22 in 1986 and it nearly killed me, they also told me it wasn't the severe form. I lost my memory, the only thing I knew was my first name although most of my skills remained. It came on very suddenly, felt sick, stood up then it seemed like I had been struck on the head with a baseball, projectile vomiting, fever, stiff neck and severe cramp like pain in every part of the body. The spinal tap was horrendous, it was a teaching hospital and the person doing it, although supervised had never done one before. I was weak like a baby for three months but it was another three months before I recovered. There are parts of my life I can't remember but I was lucky to survive it.

Posted on 07 April 2015

Comment by Chris Helms

Viral meningitis in 1988 age 17. Came on suddenly, bent forward to reach something and my head "exploded". Had to crawl to phone to call husband at work because I couldn't tend to my 3 month old baby. He took me to ER (small town). They just gave me a pregnancy test and pumped me full of Demerol, which only resulted in major vomiting. I went home and 3 days later, days that I cannot recall, my husband took me back to hospital. I remember having a spinal tap because it was the most painful thing I had ever had, including natural childbirth. In hospital 8 days and Dr. told my husband he had better notify my family because it didn't look good. They wasn't sure what to do, so they called in an internal medicine specialist from a larger city to come take care of me. Most of time was delirious with fever and can't recall anything. They said my fever reached 105.9 and had me on ice packs. The day I went home I felt severely spacey, and my speech started slurring. Had slurred speech and extreme fatigue for 6 months. Lost some hearing, can no longer do math in my head, and lost my photographic memory, and my short term memory as well. Had coordination problems, my arm would literally go the opposite way than what I wanted it to do. That has improved, but not totally gone, still have balance, dizzy, headaches, and every now and then certain smells bring on that entire feeling like a big wave, then fades out. They said it was viral, but I never left the house, was in new town, didn't know anybody, and my family never got it. I was just getting over a severe sinus infection, so they figured that must have caused it. Have a bad time now with back and legs, and have had 3 back surgeries and a foot reconstruction because a tendon just 'fell apart". Have been tested for everything from diabetes to thyroid and all negative, the only thing they can't figure out is why I have had an elevated white blood cell count to this day ever since I had it. Blood work appears that I still have an infection, but I'm not "sick". I kept getting tested for other problems because they say viral isn't that bad. Reading your comments helped me to know that I'm not crazy......Thank you all for sharing, and wish you the best.

Posted on 31 March 2015

Comment by Ben

I had it around 35 years ago. I got it from mumps, since being an idiot kid I went swimming ignoring the pain in the ears. The thing that got me was the headache while at school a day later, and the school nurse scramming for ice packs since my fever went sky high. Then the lumbar puncture in my spine at the hospital, which was just as painful. I spent quite a while in hospital.

Since then I got a degree, served in the military, and worked in banking and IT. My mathematic abilities were actually tested as one of the top 5 in my district, so no damage on that part. I do get dizzy easily, and drowsy quickly. I learned to cope with it, and now I can work around it with a scheduled microsleeps in between, and ensure I drink enough fluids. The drowsiness subsides when I walk or do some basic exercises.

There is the frequent migraines. But it doesn't stop me from functioning. The one thing I still get is sleeping paralysis. That scares me up to this day. It last 10 to 30 seconds, but it feels like hours. I am not sure if it was caused by meningitis, but it started while in the hospital.

Posted on 31 March 2015

Comment by sophie cook

I too have after effects of viral meningitis. The headaches, dizziness etc but one encouraging thing is there is light at the end of the tunnel. You will get your lives back eventually. Hang in there and think positive !!

Posted on 05 March 2015

Comment by margaret

I was shocked to be hit with viral meningitis out of the blue at age 58 last September. I had severe headache, hit with a shovel level - starting in back of neck radiating through head, vomiting bile for several days, loss of balance, fuzzy eyes, red eyes, highly acute hearing and sense of smell - burning pains in my lowe back and thighs and inability walk, difficulty in hreathing....
6 months on still get headaches especially if stressed, very tired and fatigues, need to sleep 10-12 hours, poor short term memory, poor concentration - employers initially sympatheric but havent got a clue - pushing me to do more and more - viral meningitis is misunderstood and much ignorance remains - I think i will need to leave my job

doctors need to have more training in this field, viral meningitis is thought to be mild - what a joke!!! its life changing

Posted on 24 February 2015

Comment by Olivia S

I got diagnosed with viral meningitis 11 days ago and returned to work today, my headaches are still constantly there and feel dizzy/sick/tired constantly and now and again blurred vision. Have I gone back to work too soon? I can't afford financially to be off work as I do not get sick pay! When should all this go away? Any help would be great xx

Posted on 09 February 2015

Comment by Bernadette Anderson

I caught viral meningitis 2/1/15.

I when to hospital with a sever headache that started at the back of the head, vomited while waiting in a & e, I was kept in overnight and had a lp done.

I recieved a letter from the hospital a week later dignified viral meningitis, shock was an understatement.

I have since suffered more headaches, eyesight issues including photophobia and pain around the region where th lp was and the back of my left knee. I am unable to Ben my knee the way I use too.

I am also suffering what seems like drunken episodes/fuzzy head/light headedness/spaced our.

I'm just curious how long these symptoms will last for me.

Oh and still unable to get rid of a viral cold I've had for months which I think caused it in the first place.

I think more people need educating on vm after affects as it seem people thing you will get over it like a normal 24 hour bug.

Posted on 09 February 2015

Comment by Emma clarke

I got diagnosed with vm when I was 14 it was hell I got diagnosed again this year 2nd week into january also came down with phenmonia, i really didn't think that I'd be here now the pain is horrendous, i was in hostpital 2weeks, my temperature finally came down after a week they had keep swapping the antibiotics as wasn't working, all could think about was stay strong try think positive so could get home to my little boy he's 5 this may, it's so hard, i thought it would be better being at home with family but the recovering process seems to be taking forever, not very patient person. Headache and back pain still there.has only been 2 week of being home though

Posted on 05 February 2015

Comment by Dave Grusman

I have had Meningitis 3x in my life..

1992 Bacterial which took part of my hearing and left me with long term headaches and bouts of extreme irritability. It took years to level out and know that I was lucky to survive and still be able to function.

In 1996 and 2009 I had Viral and the 2009 bout actually did the most damage. It took half of my vision and left me feeling " Gumpish" as I call it. I have the hardest time remembering simple words or names of things. I use to be a great problem solver and a man of action. Now I have issues with having patience. I feel your pain and hope frontage best for all of you. With having it three times the medical
community is baffled but yet nobody will spend the time to figure it out. Most people are in disbelief when I tell them 3x but trust me I feel it. Happy to be alive and mostly functional but fear if there is a 4th time it will be my last even though they say viral isn't as bad. We know it is

Posted on 03 February 2015

Comment by Michaela

Got Viral Meningitis on Halloween 2014. Its been 3 months, still have headaches, stiff neck muscles and tremors in head and neck and poor memory. I also still have days where I can't read ... feels like my eyes cant focus on a single word. I'm a student and I lost my courses last semester. My academic performance has significantly dropped as far as coursework and memory ability on tests. Hopefully my memory will return with time.

Posted on 12 January 2015

Comment by Emily W

I was diagnose with VM on St. Patrick's day March, 2014. I had been having excruciating headaches for several weeks. They would come and go. Sometimes they were so bad I couldn't see, or I couldn't walk because taking steps hurt my head. After I was diagnosed I took a week off work, I then went back to work for a week but had to work with lights off off, door shut, and flat on the floor. Sitting up gave me excruciating headaches.

My headaches, muscle tremors, and poor memory lasted for about 6 months. The only leftover symptoms are occasional headaches and extreme weight gain. Has anyone else experienced weight gain? I have gained 45 lbs since being diagnosed.

Posted on 12 January 2015

Comment by mommy6

I got vm the week before Christmas. I've missed two full weeks of work and have been back to the Dr three times since. I am on my second round of anti-virals since i got out of the hospital and still feel awful. Still exhausted and throwing up occasionally. My job requires extensive concentration and research. One mistake could cost thousands of dollars. After reading some of these posts, I'm terrified i won't be able to return to my job. I'm a single parent and need to work. The Dr never explained recovery would take this long or that going back to work might not happen. I'm supposed to go back to work Monday but today have been vomiting again. Not really sure what to do. :-(

Posted on 08 January 2015

Comment by metria jackson

I was diagnosed in 2009. Excruciating headache, lower back pain, and a stiff neck. I knew there were after effects of having this. I still get this weird feeling from time to time. The head ache returns if I strain myself anytime. My speech has been affected as well. I've always been able to enunciate words easily, now not so much. I won't even get started on the short term memory loss.

Posted on 05 January 2015

Comment by Johnny D

A friend and I got it about four months ago. I remember very little of that time. We were on the phone a couple of months back and laughing at how stupid our conversation was because we kept forgetting what we were talking about. It clearly causes minor brain damage. It's recoverable for adults, but not so much for young kids. I'm feeling like I'm back to 90% at least. Mainly just the slight brain fog and tingling lips and feet. Also sleeping 10 hours a day.

Posted on 03 December 2014

Comment by Rose T

balance problems, feeling muddle headed or 'drunk' yes this is very familiar, doctors and employers do not sympathise, they need to educate themselves about after effects of viral meningitis, it can take a long time to recover. I have been advised to take it slowly, very slowly. a couple of weeks back I decided I must be better, 12 weeks in to VM - overdid it and was hit with extreme fatigue and extreme headaches returning, along with muscle aches and stiff neck. not the same as the initital infection but still a little reminder not to rush things. I am a very busy person usually, enjoy intellectual stimulation, but the brain just isnt up to it right now, I am hoping it will improve. Yes, cramp in left leg, not sure why the left but it seems others have experienced this, yes, continual feeling of pressure in head, never completley goes, still bothered by filtering out conversations in noisy environments, tired all the time. If you have had a lumbar puncture the hospital should know whether it is bacterial or viral and attempt to identify which type in order to treat. Best wishes for full recovery.

Posted on 01 December 2014

Comment by Becca.L

When I was 8 I found out i had meningitis. It was the worst thing I have ever been through. It started one day when I had this severe headache and I was crying cause it hurt so much; after awhile it did go away and my mom thought nothing of it. But one night when my mom went out on a date with my step father and I was home with the babysitter things took a turn for the worst. I don't remember much but I do remember feeling woozy and getting double vision and staggering down the hallway to my room, I also felt very tired and so I decided to go to bed. I was asleep for awhile but not long because than the headache came back and along with me throwing up all over the place,just than my mom walked through the door while I was calling for my babysitter. One of the after affects this had on me was short term memory lose so I don't remember much after. All I remember is my mom screaming and calling an ambulance also me in a a gurney and getting IV put into me than I was in a plane on my way to Edmonton and than I wake up in a room hooked up to a bunch of machines and me only being 8 I was scared. While in the hospital they explained to me what I had and was actually very lucky I had come to the hospital while I did because the meningitis that I had if not treated right away would have killed me. My mother was scared so much. After a week or 2 in the hospital I was sent back home. The after affects of meningitis for me was short term memory loss not severe but I forget stuff easily like if u tell me something and I go walking to get it ill forget what I was Doing. Also I have anxiety and I had depression because at a young age and to go through an experience like that and having to cope one can only imagine. I'm now 13 and still to this day afraid that it will come back because when people bring it up I panic and have a panic attack because I don't want to go through that experience and pain again. I don't know what inspired me but I really wanted to share my expiernce and I thought here would be the perfect place because its with people who understand what I went through; when I tell this story to other people they give me a sympethetic look and say sorry i wenti through that gets tiring after awhile.

Posted on 01 December 2014

Comment by Tonya Guess

My husband was diagnosed with viral meningitis on halloween night of this year he now has some memory loss and confusion its hard to sit and watch him struggle all I want is my husband back do any of yall have memory loss or confusion because of this disease

Posted on 10 November 2014

Comment by Jennifer

I am 19 and was diagnosed with viral meningitis 6 weeks ago. It all started when I was feeling generally run down with a chest infection and flu like symptoms. A couple of days later I woke up with the most severe headache I've ever experienced and as I made my way to the bathroom I could hardly walk properly I was so unbalanced - I felt like I was drunk (really drunk). No pain killers worked and I spent the day in bed in the dark. By the early hours of Tuesday morning I could take no more, I was vomitting rings around myself and crying with pain so my Mum and Dad took me up to A&E.

I was kept in hospital for scans and tests. Some nurses were quite cheeky as they believed i was an over dramatic teen who had come to hospital with a head ache. After 2 nights in hospital on drips and after having a lumbar puncture I was diagnosed with Viral Meningitis. I was let home to recover after being told that there isn't anything the hospital can do to treat it other than give me pain killers.

Even up until now I am still experiencing an annoying pressure in my head, extreme fatigue and I get agitiated very easily. I have been putting up with these after effects after reading some reviews that I could potentially never get rid of this feeling. I have just this week returned to college and work but still feel like I'm definitley not 100% and constantly feeling like I need to go home and be alone. It's getting really depressing as I am normally a really lively and bubbly girl who is very busy and active.

My GP is unsympathetic as he says that the virus should have left my body "a week or two after it first came" but I feel like referring him to this forum and say "look!". I'm getting so down about feeling so sick and tired all the time. Has anyone else experienced this? Does anyone have any tips to cope with the after effects?

Posted on 10 November 2014

Comment by shasha robles

I was just diagnosed with West Nile meningitis and it's taking over my life I found out two months ago and it's hard for me to walk I have pains everywhere I feel like we're goes on my head and all I can do is lay down her popping pills and anxiety pills I feel like I'm living in hell I feel like I'm the only one on earth feels like this but now after reading all of everyone's comments I'm just like wow why is this happening to all of us why isn't there any cureI can't live a normal life I'm 36 years old constant head pain my eyes hurt they're always red my head twitches I can't a conversation with anybody sometimes I feel like it's hard to breathe causing anxiety that I have I wish there was a website where we can all talk about things because it would really help sucks because sometimes people don't believe me at all and I had this just an act and I hate itsometimes I just want to go back to the hospital but keep me forever because I feel useless but if we sit here and I'll think about it we are in this world for a reason and God has a plan for all of us and it's something that we just all have to be strong and deal withI have been feeling weird pain sensation in my head like swelling and evening and it's been going on over a year and I'm liking River person in the summertime I love to go out to the river and they said the mosquito gave it to me and I know I've had it for a long time when I just found out I haven't lost no weight it's not making me Sucked up or anything my stomach hurts sometimes it just ruins my life and it sucks I hope you all feel better and I hope things all get better for everyone of you and I will pray every night god bless you

Posted on 10 November 2014

Comment by karen andersen

I had viral meningitis when I was two weeks old and it did severe damage to my brain. I have a VP Shunt and am doing well. However, I am now 57 and two weeks ago I was diagnosed with Viral Meningitis again. My question is, I am having severe leg cramps this time. I have had no headache to speak of, due to my shunt I suppose, but my legs and hip are cramping so bad.

Posted on 10 November 2014

Comment by karen andersen

I have been reading the comments and they all sound so familiar. I had meningitis when I was two weeks old and almost died. I have it now and I am 57 years old. I have been reading the stories and I have painful neck pain, severe leg cramps, and my vision is not really very good. I do have a VP shunt in my head now. My problem now is since having this last bout with Meningitis (confirmed with a lumbar puncture), my left leg is cramping so bad. I can't get it to stop without soaking in a hot tub of water. Then is returns. Any suggestions would be greatly appreciated.

Posted on 29 October 2014

Comment by Rose T

my experience started very suddenly, with what I later discovered were all signs of viral meningitis, my neck felt very stiff and i felt breathless with pains in my chest, any movement created sharp pains in my body and legs, lost ability to walk without severe electric shock like spasms - it was terrifying, both the gp and paramedics failed to identify the problem. It was not until a week later I was finally admitted as an emergency to hosptial, the utter helplessness and fear does not seem to be acknowledge by health professionals. the pain from the pressure on the brain and spinal cord was crippling, the hopsital treatment was excellent once I got there. all types of meningitis are serious and an awareness campaign needs to highlight the need for early diagnosis. I had no other symptoms prior to the sudden onset of the headache and other symptoms. I also experienced sore eyes, bloodshot eyes, headaches and spasms of the limbs at night, slept for very long periods for several weeks, extreme fatigue, 10 weeks into recovery and virus inot dentified by lumbar puncture having excluded the most serious ones. it remains a concern that even the so called mild virus forms can be so damaging.

Posted on 20 October 2014

Comment by Dale Brent

Looking for answers and help. I have had what sounds like viral meningitis 3 times. I had a spinal in 2010 and 2014. Neither test showed meningitis. The doctors were unable to come up with a diagnosis. My symptoms started with nausea and lots of sleeping. Then a horrific headache which was mainly focused in the back of my head and blood pressure went crazy. I had a slight fever each time. I was in the hospital 2 of the three times. The symptoms lasted 8+ weeks. This last one in 2014 started in April and finally went away by mid September. Back to just my usual Rheumatoid Arthritis symptoms. Any information is appreciated!

Posted on 20 October 2014

Comment by K. Mirarchi

I am very grateful to have found this site with these stories. I feel found. I was hospitalized September 13th, 2014 in a Boston hospital with Viral Meningitis. After a 4 day hospital stay I was released feeling like I couldn't do anything without help. I've been a very able competitive athlete my whole life so this was not my norm. Since then I have not felt myself and I keep thinking something else has developed as a result of the Meningitis but after reading all your stories.....I have all the same symptoms you all have shared. Foggy, headaches, fatigue, muscle weakness, cracking in my ears. I have been saying to the people closest to me "I just don't feel like myself" seeing that I'm not alone certainly helps me pull strength and carry on. Health and healing to you all.

Posted on 20 October 2014

Comment by TriState Resident

I identify with Nancy McLaughlin. I just had a visit to the ER last night, and I don't see the dr much, but I do typically have a problem with trusting healthcare professionals. I really don't believe that headaches, mucus production, consistent ear irritation, sudden ear pain in my left ear over the course of this past week, their findings of fluid on my ears, and sudden stiffness/pain unilateral to my left neck region is just a cervical spasm as they wrote on their discharge instruction. I sometimes neglect to provide history on little insignificant signs when I am in front of a healthcare professional (for some reason), but I identify with Nancy about the imbalance and disconnected speech. I would like the opportunity to get a peer dialogue going if you don't mind. Let me know if there is opp to speak offline, PM, or email.

Thanks sooo much everyone for your input.

Posted on 13 October 2014

Comment by yvette O'Shannessy

I was diagnosed with meningitis in February last year I do not know wether it was viral or bacterial, but reading through some of these comments mine just doesn't seem to add up to yours... I don't suffer from any diseases such as herpes.. when I suffered from it, at the beginning it was just a horrible cold and I felt "not myself" and "weird" its hard to explain, I had some nausea but no vomiting and no bottom issues, I had that for about a week, but then one day I was in the shower and I felt like someone grabbed a hammer and hit me with it very hard on the head this continued on and off for a few seconds each, each time worse then the last I was driven to hospital where I was diagnosed with a migraine put on fluids and sent home they said to return if the pain did. So I got home slept for about 30 mins then BAM there's that hammer again went back to hospital and had 3 excrutiating lumbar punctures, and diagnosed with meningitis the doctor didn't specify which one clearly or I was just in too much pain and haziness to fully comprehend what he was saying.. though now I feel as I have some left over damages from the experience.. one is quite good (I used to suffer from terrible migraines) but since the meningitis I have had two very minor ones and that's all which is unusual for me but the bad ones are, my left eye vision has deteriorated, I'm very sensitive to sunlight now, and find I bump into things more and my speech is pretty terrible, ill go to say one thing but it will come out another... Do you think I had the Viral or the Bacterial meningitis out of pure curiosity and if my experience is "normal"?

Posted on 10 October 2014

Comment by Kim S

I also was diagnosed with hsv meningitis with encephalopathy. I've been hospitalized with meningitis 4 times in 10 years. It all began 20 yrs ago with the first attack. It took the 4th time to get a definitive diagnosis. Sadly, the neurological damage bad already taken hold. I now have 3 herniated discs and nerve damage in my cervical spine, 1 herniated disc in thoracic spine and 2 herniated discs in lumbar spine. I also have peripheral neuropathy primarily on the left side of my body. I have severe muscle spasms in my neck and shoulders. I have chronic migraine type headaches or cluster headaches (migraines that last 3-4 days). I also have crazy mood changes and short term memory loss. And also have bladder control issues. I can relate to all you all are going thru. That said-the tools that help me: 1. Carry a small notebook and write loss of notes. I feel more in control and helps me be more independent.
2. Find health care that understands your disease (this was the hardest!)
3. I changed my diet to whole foods and paleo. Chemicals, fake food, artificial sweeteners, diet soda- are no longer in my diet. This made the difference to getting as healthy and functioning as possible. Prior to this, I spent most of my life in pain in bed.
4. Take b50 or b100-helps energy and meditating! Take fish oil-feeds brain and helps memory! I'm also now looking at essential oils-peppermint oil helps headaches.
5. Give medical marijuana a chance. For me it has prevented numerous ER visits to break a 3 day migraine(my Dr recommended as only other treatment to"break" these headaches is morphine or dilaudid. And if it could be a minor outbreak-there's another lumbar puncture. And who wants that?!
6. Understand that the more often you have outbreaks, the higher risk of stroke and dementia. Find ways to keep your brain active. I do sudoku, puzzles.
7. I try to be very present and purposeful-especially helps my memory.
8. Become your best medical advocate. I've gone to neurologists, pain management, spine specialists, infectious disease- As I learn to manage my disease, I'm teaching my Doctors.
I hope this is helpful to someone. My heart goes out to all of you suffering. There is better info now than there was when I started 20 years ago.

Posted on 03 October 2014

Comment by Lisa Ann

Wow this page has been helpful. Scary yet comforting. I went to the ER about a week or so ago with 103+ fever, stiff neck and worst headache of my life. I get migraines and this was like nothing I'd ever experienced. After a traumatic tap I was hospitalized. The ID doc said I didn't have Viral Meningitis even though one tube came back positive and the other inconclusive. All of the drs I've seen since have said it's viral meningitis.

I did have a leak from the tap and had to have a blood patch which was pretty awful. I've been having some weird and scary symptoms like problems with thoughts and speaking and a constant feeling of my hands being asleep. I'm also exhausted after doing the smallest tasks. I was given IV acyclovir.

While sad, it's encouraging to see that I'm not the only one that's had these issues. The doctors keep saying "oh it's been over 10 days you should be totally fine and back to normal" but unfortunately I'm not and it's very frustrating. I have a demanding job and have to speak to surgeons in an extremely articulate and intelligent fashion which seems to be difficult to do right now. I hope these symptoms will go away with time!

Till then I hate going back to the ER because they make you feel even worse about yourself and the condition. After my blood patch I asked the doctor for pain meds and she said to suck it up and put ice on it!!!

Posted on 03 October 2014

Comment by Nancy McLaughlin

I am a 43 year old pediatric nurse. I first started having headache symptoms on September 7th and then was admitted to the hospital with a diagnosis of viral meningitis on September 9th. They only kept me for 1 day...pumped me full of fluid, pain meds, and nausea meds. Once they knew it was viral, they sent me home. I had to go back to the ER 3 days later due to severe headache and got more fluids, IV pain meds and was released.
Now it's about 2 1/2 weeks since I first started having symptoms and I'm still having a hard time. I have daily headaches at the base of skull/neck, occasionally feel nauseas, have constant ringing in my ears, and feel like I'm in a total fog. I can't concentrate or remember basic things, and have had a few bouts of feeling very depressed. I've had so many people tell me that I look great or that I don't look like I've been sick. I don't think they understand that even though I look ok, I feel miserable. And to be honest, it's confusing to me as maybe I'm overreacting. I have moments where I do feel ok, and other times where I feel like the pain and headache are starting all over again. I saw my regular doctor on Monday and he openly admitted that in his 30 years of practice, he's only seen a few meningitis patients. He suggested I take another week to rest up. Now I'm trying to set up an appointment with a neurologist to try to find some answers and support. Im a pediatric nurse and I can't even imagine going back to work in a week and being responsible for someone else's health at this time. I'm ding my best to get through my days with my 3 young kids.

Posted on 03 October 2014

Comment by rayann

I am really looking for answers. I am in hopes someone will help me with some questions I hae as I am a bit afraid and very confused. I was diagnosed about two years ago after I was referred to an infectious disease Dr. I was referred as I, after being told I had herpes 2, continued to have outbreaks every month around my period. At times I would get so very sick with horrible headaches, back numbness, extreme tiredness and my ears felt as if I was in a tunnel. One ear was left with pain that has never went away to this date. The pain is only when I clean my ears but it is intense. This has been my first flare up since I was diagnosed and put on acylovir. My question is this. Is it normal to feel fine one minute and the next to feel as if you are so confused, that your mind is slow and to feel so tired all of the sudden. I fear that it is going to leave me with some sort of brain damage. Is this possible.
The infectious disease Dr told me he was diagnosing me with Mollaret syndrome as I had every symptom and the fact that I had recurrent outbreaks herpes 2. He then excused himself saying that I was just a very unlucky person. Please tell me if I need to worry about any long lasting effects on my brain or with my personality as this is what is scaring me so bad.

Posted on 03 October 2014

Comment by rayann

Hello everyone.I too am a sufferer of Mollaret syndrome. I was diagnosed two years ago after I for the first time broke out with genital herpes. I continued to break out the next five months in a row. Then referred to infectious disease dr. was then diagnosed with Mollarets. Recurrent Viral Menegitis. I am just getting over a 10 day attack. My first in two years. Horrible, depressing symptoms. The most horrible of which is the fogginess of the mind. For me, it is like my personality gets lost in a fog. I will go in and out of this all day accompanied by headaches and clogged up ears. You just feel like you are in an exhausting fog. Scary. I am in hopes that this will play out in maybe another 3years as this is typical of this condition, but there are some that suffer for years and years. I pray for all sufferers of this terrible condition for which there is no treatment, I do stay on acylovir daily but that is just to supress the herpes. To add to that I have not even had sex for 7 years prior to being diagnosed with herpes which trigged the mollaret. My Dr told me that the herpes was so aggressive on my body that it would have not stayed dormant for any length of time in my situation. He told me I had to pick it up off toilet seat from going to restroom immediatly after someone and had to of had open sore on my butt. I did have open sore and knew exactly when this would have happened. So imagine how rare it is too pick up herpes from toilet then for that herpes to cause a even more rare mollaret syndrome. Unlucky is exactly what he said i was. That was an understatment. to all be blessed and know you are not alone.

Posted on 19 September 2014

Comment by Kathleen fox

I was diagnose with viral meningitis in January this year had a brain scan which was followed by a lumbar puncture. After 17days & 34 bags of intravenous drugs a blood rest daily I was given the all clear and allowed home. I feel fine but my family say my personality has changed dramatically as I lose my temper too quickly.

Posted on 16 September 2014

Comment by Gillian Bird

I am 68 years old. I had viral meningitis when I was 6/7 years old andnearly died. On recovery I was prescribed pheno barbitone which I took for about 5 years. At that time I tended to get coughs and colds easily during which my temperature would be high.
I grew up and these health problems decreased,
I got married and gave birth normally. It was after this that I developed essential tremor in my right hand. I am lefthanded.
I saw a neurologist in 1977 who diagnosed the tremor as having been triggered off by birth trauma linked to childhood meningitis.
My tremors now affect both hands but so far I can adapt and live with this.
Recently I had an MRI scan which showed muliple lesions onthe brain. The doctor said that he could not tell if these lesions are linked to the tremors or early meningitis,
Any help or comment on similar experiences would be helpful.

Posted on 08 September 2014

Comment by Kandi Petty

I had VM in 2006. I am now 41. I have suffered with headaches everyday. Finally, in 2009 I found a lady who did cranial sacral therapy. It was a lifesaver!! I still occasionally have a dull headache but nothing like I was having. It was like I had been in a coma and finally woke up. It literally helped me become myself again! I would suggest everyone that's had VM find a massage therapist! The lining of the brain swells causing all the bones in the head to move out of place. They need to be taught to go back in place. I still have memory issues. Not only between 2006-2009 (where I had a baby and don't remember much of it!) but even before then. I have trouble trying to think of a word I want to use... So frustrating, hoping my memory will come back someday. I still have massage therapy once a month to keep headaches at bay...

Posted on 05 September 2014

Comment by Jo-Anne Weiss

I am 63 years old and had viral meningitis when I was 30. At presentation in hospital, as well as the usual signs of neck and back stiffness, joint aches, nausea and general malaise, I also had a herpetic blister on my right buttock, a temperature of 43deg and hypertension. When I was 35 I suffered the first of what appeared to be relapses, with the added symptoms of dysphasia and nystagmus as well as the herpetic lesion on my buttock. Lumbar punctures were inconclusive and I was discharged after one week and accused of malingering over "just a migraine". For the next 25 years I suffered 2-3 attacks per year lasting 7-10 days characterised by neck and spinal rigidity, joint aches, nausea, vomiting, photophobia and vertigo, as well as a temperature over 42deg and raised BP. All of these attacks were accompanied by a herpetic blister on my right buttock. Despite this I had accepted the diagnosis of migraine and treated each episode symptomatically. Until 2010 when I was treated by a newly arrived Russian doctor who was curious about the herpetic blister and swabbed it and sent it for path. Result was that it was HSV 2 virus and was 99% the likely cause for the meningitis. He placed me on valcyclovir daily or when symptoms occur. This regimen has helped, but I will not take lifelong daily antivirals and prefer to take as soon as symptoms of tingling at herpes site occur until symptoms abate. Apart from the expense of daily valcyclovir I don't know what side effects there are from taking it continuously. Researching the symptoms I found that this condition has been known since 1948 but not named until 1992 - Mollaret's meningitis.
I am arranging a referral to an infectious diseases specialist and a neurologist to review my whole medical history. It has taken at least a year of my life so far where I have been flat on my back, miserable and depressed and sometimes suicidal. If you have felt the same please know that you are not alone. If I can help with any further info or if you have any questions you can write to me at

Posted on 01 September 2014

Comment by Dave Y

I had VM 3 years ago, my long term effects are sore neck like a heavy head sensation, pounding headaches, and episodes that include dizzyness, loss of hearing and I feel like I'm going to pass out but I normally just sit down with a glass of cold water and it passes around 20 minutes. Another thing I noticed was my nose is runny a lot. Some days it almost feels like the VM is coming back but the feelings only last about a day and with lots of rest it subsides. VM is horrible

Posted on 28 August 2014

Comment by Michael Wood

Just returned to work.

three weeks ago - pins and needles and numbeness in left side of body. Migraineesque symptoms. I have never had a mingraine before.

two weeks ago - admitte dto hospital with severe headache. Vomiting.

released after diagnosis of viral meningitis.

one week ago severe headache vomitting returned. released with advice to rest.

Today - returned to work. Tiredness, headaches (Very low pain and dull) remain.
Speech loss of words and memory is fuzzy. Trying to return to myself but it;s hard. I know my humour has changed and am aggressive more. Because I feel peoples reactions are different.

This is hard.

Posted on 26 August 2014

Comment by RACHEL R

I've been out of hospital 8 days now after spending nearly 5 weeks in there. An ambulance was phoned for me when I was severely ill. I had terrible headache, bad neck and skin pain, vomiting, severe dizziness and didn't have the ability to focus, walk or hold my own head up properly. Took ages for a diagnosis but was eventually told it was viral meningitus. Came as a shock to my friends and family and I'm only 22 and usually very fit and healthy. I don't remember much as my memory isn't too good but I spent nearly a week asleep (almost in a coma). Thankfully a professor in neurocare tried many many medications which didn't work, until she found the one that did. My speech was very slurry when I came round and I had dreamt this when asleep which I was convinced had really happened. I was very confused and not myself at all. I am now out of hospital and have psyhio sessions at home. I've had problems walking but this is now improving with practise. I'm still on medication but constantly feel like I'm half drunk. I'm just praying this goes. I also can't be alone just in case I fall as I have quite a lot of random wobbles but haven't fallen thankfully. I'm just greatful to be alive cos I was given a 50/50 chance of survival. Cherish your loved ones and be greatful you're still here every single day. X

Posted on 14 August 2014

Comment by Emily Lindner

So thankful I am reading this. My husband got VM in March 2014, 5 months later we are still battling the symptoms. He used to be such a laid back guy now is stressed and anxious, exhaust easily, vacum cleaner or loud noise gives instant headaches. The only response we get from Dr is rest and try not to get stressed. Lookiing for a good physician in Brisbane Australia, or good websites??

Posted on 07 August 2014

Comment by Samantha Lewis

In March 2014 after a spinal tap I was diagnosed with viral meningitis and continue to have the same symptoms five months later: headache, severe neck pain, burning eyes, muscle weakness, joint pain, fatigue and the top of the head is quite tender and feels hot. I'd really appreciate hearing from anyone who can give me advice on practical physical relief home treatments (not internal medications) that can relieve some of the discomfort with positive results. Thank you. Samantha Lewis e-mail

Posted on 07 August 2014

Comment by Alan Tinnion

Hi i'm 52 and just had viral meningitis ! Started with a cough then got pain in my head ! Week later blood, head scan, lumber all ok ! The only thing they said was to many white blood cells ! But now is when it starts ! The day i am released i seem as i can not put my words together properly ! Hot and cold sweats, Tingly fingers, tingly lips, Tired and now pains in my chest and back ! Not 1 Doctor has told me how i caught this but 1 did say it may last about 14 days ! that's past as well ! From what i have read it looks like an injury to the brain ! or Nerves !

Posted on 06 August 2014

Comment by Sharon

I have always known I had meningitis as a child. We have joked in the family that I would be a genius if I had not gotten it. It was in December and according to my Mom, I was 6 or 7. She doesn't remember what I had exactly or how long I was in hospital. I got to come home a few hours Christmas day. There were 6 of us so she was busy. According to my sister I almost died but as I get older, according to my mom, I get less and less sick at that time. She remembers less so it becomes less. I remember being in a bed with only my panties on and was horrified and was covered in ice and had fans all around the room blowing on me. Ever since then, my symptoms have been clumsiness and redness. I am almost always a shade of red. Less as I get older but my skin has changed. I have what I call razor burn on both sides of my neck and my chest always looks like I have a sunburn. When I exercise I do not sweat until my body is already at a high temperature so, again, very red. In fact my family nickname is big red. I have had all sorts of tests and they all come back - you are just sensitive. I have had my 2nd acupuncture treatment and she believes she can cure me. She says this illness is still in my body and my redness and fire are my body trying to fight it. I hope she is right but I do not see that ass a symptom with anyone else. Am I the only one that is still boiling?

Posted on 25 July 2014

Comment by Della

Hey everyone im 23 year old female
I first had virual meningitas back in 2009 i was extremely ill severe head aches light sensitivity throwing up constantly i had a lumbar puncture i was in there for 2 weeks i had a scan done of my brain and basically got told that the fluid round my brain indicates i have virual meningitas and that it will never go away for rest of my life i thought it wud never happen agen 5 years later I've literally just come out of hospital again diagnosed by the same thing i had all the same symptoms as before yet another lumbar puncture so painfull this time i feel like ive got memory loss i keep forgetting what i have and have not said to certain friends n family they turn round to me and say you've just said that and im left all confused not remembering saying or not saying it at all.
I literally feel for everybody who has written their stories on here because virual meningitas is soo scary i really felt like I was going to die in hospital the first time i got diagnosed everybody stay strong and for everyone who has survived thru this god must have a load of angels watching over us. X

Posted on 24 June 2014

Comment by Lori Matles

In August it will be the 10th anniversary of when I contacted viral meningitis and encephalitis. I have brain damage in two parts of my brain. I am functioning pretty well except the pain that is in my limbs. I exercise 6 days a week and am on Cymbalta and Meloxicam. For a while they really helped but now it is getting worse. I have started seeing an osteopath and have some hope. The pain wakes me up at in the middle of the night and I wonder if it will ever get better.

Posted on 16 June 2014

Comment by dr. Rachmat Tubagus

hello I'm a physician from Indonesia,. thanks for post article about experience with Viral meningitis. now i learn about meningitis. All of you can read my article

Posted on 12 June 2014

Comment by Caitlin Nicole

when I was about 3 or 4 I had meningitis. When I was around the age of 6 I had to start wearing glasses and my doctor said it was because of meningitis I have terrible eyesight. No one in my family have glasses either

Posted on 21 May 2014

Comment by Lea

Just took a month to recover from viral meningitis and leaking spinal fluid. Still tired, slowly getting my strength back - and I am usually a tough cookie. Anyway, just wanted to comment to a few of you who wrote comments aboutaving had meningitis multiple times. Talk to your Dr. ASAP about whether your meningitis might be caused by NSAID meds like advil.

Posted on 13 May 2014

Comment by Abby Williams

Hi, I'm 21 and suffered from meningitis middle of April. I was diagnosed after a lumbar puncture after 2 weeks of yo-yoing from DR to Dr to get an answer for my constant migraine and dizziness. I was told I was very lucky to have caught it in time. I was in hospital for 2 weeks on IV antibiotics etc. Whilst in hospital I experience and excruciating upper back pain radiating to my mid abdomen. I was told that it must be a side effect to the many medications I was on. However 3 weeks post hospital and treatment, I am still experiencing these excruciating periods, they can last from half an hour to several hours. The pain is so strong I am only able to curl up in a ball and wait and hope for it to pass, which it always does after time. I don't know if anyone else has experienced this and can shed some light with how they dealt with it?? I'm cabin crew for long haul flights, i just flew this weekend for the first time and struggled greatly, and would like to get this pain under control in some way.

Posted on 12 May 2014

Comment by Tamara Glass

I have had 3 spinal taps and Viral Meningitis all 3 times I was eventually diagnosed for discoid lupus after going to the Cleveland Clinic was an awful thing, fever of over 105 pain headache nausea you name it, I am very glad that I have not had an " episode" in over 5 years. Thank you to the Cleveland Clinic & my ex-husband.

Posted on 12 May 2014

Comment by Tamara Glass

To all who have ever had any meningitis I feel your pain.

Posted on 01 May 2014

Comment by Terri Cichosz

April 2014, 52 years old, female, was high energy, gym 3-4 days a week. Had a lump removed from my breast, non cancerous. One week later diagnosed with severe Pnemonia. My doctor specializes in Internal medicine. He wanted to hospitalize me but knowing I still had stitches from my surgery might expose me to MRSA he put me on 400mg Moxifloxacin HCL. I had the sounds of poprocks when I would breath. Low grade fever, completely soak my pjs several times a night, dehydration, low oxygen count. After being down for 10 +/- days I thought I was on the mend. Go back to the dr to find out I now have VM. All the same symptoms as before but now the severe head/neck aches. Plus the fuzzy vision and confusion. I've never vomited in fact I'm probably the only one who had put on weight being sick:( which leads to depression). I work 2 jobs, single and desperately trying to figure out how I can kick this so I can pay my house payment and monthly bills. It sounds like we were all active healthy people before our illness and now were either on many medications or in pain all the time. How can we get our lives back? I need to go back to work so I am pushing myself. What are the side effects or health risks if we go back to work too soon? I can suffer thru the headaches for Max of 4 hours but will I cause any permanent damage to my body if I go back to work too soon? What are the health risks ? How do we know when we can return to work?

Posted on 28 April 2014

Comment by Erin S

I recently had viral meningitis. When I got home I had a bed-wetting episode that caused the doctors to think I was having seizures. I also felt like I was tipsy for a while. It goes away.

Posted on 28 April 2014

Comment by Molly

I was diagnosed with aseptic menigitis in October 2013 and I'm going back to the doctor in a couple of days because I think it's back or think it never went away. My head hurts well really it's my whole body and my mind is very foggy I just don't have any energy feel awful all the time. Now my hair is falling out I have smooth bald spots on the back of my head and I'm only 29. Just wish it would all go away want to be healthy and feel great again.:(

Posted on 16 April 2014

Comment by jae farrell

I was diagnosed with VM on December of 2013. I've been in and out of the hospital since the not to mention countless followups at my drs. Office. I've had three lumbar punctures since then and its now middle of April. I still have terrible pain in my back, neck, and head. Light and noise sensitive, always feeling fatigued, can't concentrate, and have horrible mood swings. So far drs. Can't give me an explanation why I'm notfeeling normal yet seems like all they doin for me is keeping me on pain meds. Which helps rrelieved pain but once I stop them I'm back to square one . Getting so frustrated I'm not getting a solution. Since December sleep is impossible and I'm go in through pretty bad depression. Physically/mentally I feel I'm just a mess. I'm about to see neurologist wondering if I'll get better news from them. I feel drs. Don't believe what I'm experiencing. Feeling hopeless being a father of four. People around me just don't understand what's going on. Glad to find this site and know other people are having similar experiences and its not jus me. Tired of lumbar punctures, tired of the pain meds, tired of feeling like this.

Posted on 15 April 2014

Comment by Kevin Thompson

Hello. I'm 51 years old. I was diagnosed with meningitis about a month ago. Since discharge from hospital I've had debilitating headaches on and off. Some days I feel fine. Other days I cannot go to work. I sometimes get the stiff neck and loss of coordination as well. Does this sound normal? I don't know how I am going to feel from day to day.

Posted on 15 April 2014


My daughter was diagnosed with viral meningitis when she was 2years old. it affected badly and rite now she can not walk again. Which exercises are good for her body muscles?

Posted on 07 April 2014

Comment by Ora Roberts

9 years ago was one of the worst times in my life. I ended up in the ER 4 times and was finally diagnosed with Viral Menegitis. The neurologist came in and told me he wasn't sure which one I had. If I was dead in 3 days then it is bacterial. I was by myself. My husband was a truck driver. I managed to drive myself to the hospital in severe pain. My head was exploding and it felt like a wheel in the back of my head was turning in circles. I was in hospital for 4 days. I left the hospital in severe pain and with high fevers. I also had a very high heart rate. I had several cardiology appointments and am still on medicine for heart rate. It took me 3 months to start feeling a LITTLE better. I feel for anyone who has gone through this. My faith in God is what helped me through this. I thought I would die. I also have issues with post traumatic stress from viral Menegitis and am still on meds from it! Hang in there everyone!

Posted on 26 March 2014

Comment by Rachel

Hey everyone, I am 19 years old and I was diagnosed with viral meningitis in February 2012 and was admitted to the hospital and sent home with lots of meds and instruction to rest and keep fluids in my system. I never had migraines and was always active playing varsity sports and participating in several clubs and worked 2 jobs in high school. About 2-3 months after getting over meningitis, I began to have headaches a lot and went to my primary physician and they said lots of teenage girls get headaches, it is probably just hormones and they put me on birth control to help regulate and balance the hormones. The birth control has helped some, but now. over the course of the past 3 months I have developed severe migraines, light sensitivity, noise sensitivity, nausea etc. as well as a stiff neck, sore muscles and sometimes fever. I have been trying everything to stop the pain from Ibprofen, Tylenol, various herbals such as fever few and butter bur, even some nausea medicines with the pain killers. Ibprofen seems to work the best for pain, but it only takes pain away for 2-3 hours, and even though the pain is gone during that time, there is still a constant pressure all over my head. It feels like a balloon inflating but can't go anywhere. With the stiff neck I cant even touch my chin to my chest and causes a pain to shoot down my spine if I even try. I want to think that these migraines are just migraines and I can get medicine for it, but all these symptoms remind me of the awful time I had meningitis. I am seeing a doctor this week and may have to have a referral to a neurologist. I just want to know if anyone else has had these problems after having viral meningitis? if so what is your take on things and have you found anything that helps?

Posted on 17 March 2014

Comment by Mala

It’s so reassuring to read so many similar comments, yet so sad. I had aseptic meningitis in Aug 2013. It was either viral or due to systemic lupus erythematous. CT scan was OK, lumbar puncture was done – I forget if there was something wrong with it. I’ve had headaches every single day since then. They were getting better but for about a month now they’ve been getting worse. If anyone has any tips on what I should try or theories on what is going on in my head, please suggest away. Pain: I’m usually OK in the morning. Most days I’m OK till 11 and then it starts getting worse. I get a shooting pain headache most times when I cough, sneeze, bend down, tilt my head back, reach for something, or sometimes even just laugh. I also get a shooting headache sometimes when I stand up. It happens quite a lot when I drive and sometimes in the office. I’ll be fine but as soon as I get out of the car I get a horrible headache that I need a minute to collect myself. The shooting pain normally goes away after a few minutes but the solid headache stays. I have never experienced this kind of a headache before. It is very different from my rare headache prior to meningitis. The headache is on all sides and my neck. It hurts the most on the top and the back of the head. It feels like my head is pressurised or too tight. Rest usually helps and ibuprofen helps. Extreme light also induces a stronger headache. I had an eye exam and they dilated my pupils on a sunny day! Don’t do it! Sunglasses, hood, hat – nothing helped – it was a terrible waste of a beautiful sunny day! Activity: When I have energy I can run and that does not make the headache worse. I still snowboard, although the shooting pain every time I do up my bindings is quite excruciating. I cannot do push ups, planks, sit ups, yoga, anything with jumping and any kind of staining is too painful. I also cannot play ultimate or swim lengths any more. I work in an office and my concentration is still good but I find it really hard to work after noon. For the last month, with increased headache, I am also very tired and I get more nausea. I have not been able to workout. Even just walking is impossible most evenings. (Not this evening, I went for a 5 k run and have enough energy to write this! Whoo hoo) Medications: I was given a prednisone pulse therapy in the hospital (1000 mg per day) for meningitis. I slowly tapered off and stopped taking Prednisone in January. I take 400 mg Plaquenil for lupus daily, I take around 2 Tylenols per week and 800 mg of ibuprofen. I try really hard not to take pain killers. In January I managed a few weeks without any pain killers. I have tried taking some migraine medications but they had no impact on the headaches. I have also tried osteopathy, massage, acupuncture, and meditation without success.
Any suggestions? Thanks :-)

Posted on 07 March 2014

Comment by Linda Kuck-Miklusak

I have had encephalitis once and viral meningitis once. The events were two years apart. The encephalitis was worse, such horrible pain. I couldn't move without my head, neck and back without hurting. 8 days in the hospital the first time and five the second time. I was sent to an infectious disease doctor and tests confirmed that the meningitis was being caused by the chicken pox virus, I take Valtrex 500 mg every day, and will be taking it the rest of my life. So far it has been four years without a recurrence, I do however have memory and muscle weakness issues. The doc said probably from the meningitis. It may go away and it may not. It is something I can live with though and I havwe learnewd different ways to help myself. I'm just happy to wake up in the morning!

Posted on 03 March 2014

Comment by Lysy Perez

I've had viral meningitis 4 times . I just had it again on February 17,2014. Prior to this time in 2007. I'm currently pregnant at the age of 32 and I am 27 weeks pregnant. It started out with headache sensitivity to light , I couldn't move my head up or down left or right , my eyes hurt so bad just to look at something , dizziness , tired ect it's been a week since I've been out of the hospital and I'm suffering really bad depression . I hope this goes away but I know it'll be back with a vengeance . This is a disability and should be treated as such . The Doctors have no clue why I get this !!!

Posted on 21 February 2014

Comment by Rose bartolotta

My grandson, at one month had viral meningitis. He is now 2 yrs. and 3 months. He cannot pronunciate his words and has vocabulary of about 10 words. Please comment

Posted on 18 February 2014

Comment by Connie McGeehan

Help!!! Need some answers. My dad has been in the hospital almost three weeks. They say he had MRSA and viral meningitis which caused a very minor stroke. My dad is talking crazy and is not making any sense. He was walking and talking fine until they put him in the hospital. Once in a while we think he's coming around and then it's right back to square one. We are not getting any answers from the Doctors. If anyone has any idea what is going on I would greatly appreciate some help.

Posted on 07 February 2014

Comment by Alyssa Papke

I had viral meningitis for several weeks and was diagnosed about 1 week after I graduated high school. I had a very traumatic spinal tap, it took them 7-8 sticks into my spine before they got any fluid. I was diagnosed with a sever case and sent to the ICU for 4 days, they released me and not even 24hrs later I was back in the ICU because they had ruptured my spinal sac and I was dumping cerebral-spinal fluid and didn't have any surrounding my brain. I ended up having to have a blood patch on my spinal sac and another 5 days in the hospital. It is two years later and I suffer from severe migraines, back pain and high blood pressure, the doctors keep shuffling my medications and telling me that in time my body will heal, but I'm 20yrs old and in college I don't want to be curled up in bed crying in pain I want to be having fun and learning . . .

Posted on 03 February 2014

Comment by Jennifer Weitz

WOW! I feel like a test subject & just get a puzzled look from doctors. Having viral meningitis 4 horrible times..spending weeks in hospitals at the time. I'm 38 now & my first experience was when I was 19 (2 wk hospital stay) then 31 I had it and it was severe med flighted to boston & spent 21 days in mass general.. then at 32 another bout spent 27 days in hospital & still came home with a pic line & I.V. drip meds thhen I thought I was in the clear and now at 38 had my 4 th bout spent xmas in the hospital total of 7 days but its been a month & I just dontt feel right..depression is off the charts irritable,my vision has declined severly, I am on a antiviral but I can't seem to get my happy laid back always smiling personality stinks! I'm so sorry to see ALL these people experience this as I do cuz it really screws up a highly functioning household..I have 2 kids that r high level athlets. & a fiance that travels a lot and I feel like I'm letting my family down when this comes on & now Im afraid this 4th time has done a job on me.

Posted on 31 January 2014

Comment by Susan Tyler

My 29 year_old daughter was diagnosed 1 1/2 years ago with viral meningitis after contracting the Noro Virus. She had severe headpain, a stiff neck and extreme dizziness. After about 3 weeks, symptoms dissipated and she returned to normal activities. Late November, she came down with a bad URI, which led into extreme head pain, like someone is squeezing her brain and electrical impulses are racing through it. This is accompanied by varying degrees of diizness, feeling like she's drunk, slowed speech and even facial irregularities. Doctors are calling it Migrains with a misrepresentation in the visual field. An MRI and Lumbar Puncture were negative. She's on.. meds: a tricyclic, and something to lower blood pressure, but no changes. She can't work, or drive and has moved home temorarily I hope. I'm wondering if it's all related to the meningitis.

Posted on 22 January 2014

Comment by Jared

I was diagnosed with Viral Meningitis in Sept. of 2010. I was able to kick it quite quickly with the help of a nurse who went out on a limb. She came in and saw that I was not doing well at all so she pumped me full of Morphine and once the pain went away it stayed away. Since then thought I have horrible muscle pain and constant muscle spasms in my neck, back and legs.

Posted on 21 January 2014

Comment by Robyn Quinn Hakeem

Response to Christie you.cry a lot? Do stop crying even if u r depressed and eventually your migraines will go away. I figured this out about myself and it worked. I forced myself to laugh watch comedies make jokes etc...prayer helps too...if you find that itt hard to stop crying after you have made progress just keep fighting. It works keep laughing forget the pain of the past or rather accept it forgive it and move on. Keep forcing yourself to laugh and one day you won't have to'll finally have a reason to...because you will be healed

Posted on 10 January 2014

Comment by Frustrated

I had severe form of encephalitis in May 2013. I was misdiagnosed a couple of times and I'm left with several residuals, besides problems with short term memory, I also have difficulty breathing and have irregular heart rate (increases abnormaly when I just stand up). I'm interested if anyone else experiences this? Paul (posted on August 14th, 2013) any improvement in your situation?

Posted on 22 December 2013

Comment by Zach L

I'm just out of hospital one day having been diagnosed with final meningitis. I was only in hospital for 1 wonderful day and was sent home with nausea pills antifungal and Percocet. I'm a little concerned because my pain level going in was a 10 out of 10, if I don't take my Percocet he goes right back to a 10, so it's really not getting better I'm just managing the pain. How long can this last?

Posted on 19 December 2013

Comment by Christie Michelle

I'm so glad that I found this site. When I was about 26 I was diagnosed with Viral Meningitis. This was only after weeks and weeks of debilitating headaches finally landed me at my doctors office. They tested my blood and found that a had a very high white blood cell count. It took way too long for my doctor to finally tell me what was wrong with me, which was extremely frustrating. My main symptoms were horrendous migraines that were constant, extreme sensitivity to light and ANY sound, vomiting, back and neck stiffness/pain, and brain fogginess . I basically laid in bed for months, in the dark, with no sound. I made the rounds to many different specialists and no one could figure out a solution for me. I was lucky in that I was able to take about half a year off work. I was sick for about 2 years in total. (my mom had to inform me of this time period because I seem to have blocked out some of it, or had some memory loss)
I began to feel better on my own and was able to start seeing friends, working and exercising. However, I now am suffering for a fairly serious bout of depression. I also am starting to get headaches again and find that the slightest cold or stomach ache will put me in bed for days. I'm afraid that the people in my life just DO NOT get it. I'm still battling something here but since I usually look just fine, no one believes I'm still suffering. I'm moody, emotional, tired, and I don't have the patience that I used to have. I snap at people that don't deserve it, then feel guilty and spiral into deeper depression. Any suggestions on how to improve life quality, or treatments that worked for these after effects would be really, really appreciated. Thanks!

Posted on 03 December 2013

Comment by manali Dixit

Hi guys, thanks all for your comments. .I was diagnosed with viral meningitis in 2010 dec.i still get scared when I remember the black day in my life..I was all fine and in a min I started getting bad headache, very high fever, stiff neck, nausea and I family took me to emergency ward..I underwent lumbar ..and it came out positive. .the doc said I had viral meningitis. .I was in ICU for 03 days..dnt even remember anything ...but after 03 days I felt exhausted like I had no bones in my body. .was in hospital for 15 days...even today I feel very tired always. ..dnt feel like talking to anyone. ..get frustrated very easily. ..and worst part is get severe backaches coz of which im nt able to do any exercise and started putting on weight like there is no tomorrow. .im very depressed ..request someone to help us all in our situation. .

Posted on 03 December 2013

Comment by caroline codling

I have just came out of hospital, heaving been in four 4days, I had unbearable headaches and doctors said I had vm, was put on an antibiotic drip and didn't feel to bad, now that I am out of hospital I feel worse, very dizzy, have nausea off my food, and head and neck pain. will this improve at all

Posted on 19 November 2013

Comment by Tammy Johnson

I have been struggling with many of the same symptoms discussed in this forum. It began a month ago where I had extreme frontal pain headaches and severe fatigue followed with the half drunk feeling. I also get back and neck pain. I have been in and out of hospital and Doctor believes it is viral. I asked if I should have a spinal tap, but Doctor seems to think it won't change the outcome and it is not a pleasant procedure. I am getting tired of not knowing what is wrong with me. I did have a CT and it came back normal. Should I push for a spinal tap? I appreciate your feedback!

Posted on 16 November 2013

Comment by Bruce Ritenburg

I'm a desert storm vet 44yrs old. Started having flu like symptoms them I started to get really bad headaches and neck pain. Went to ER and was admitted to the hospital 2 lumbar, 2 MRI and numerous vials of blood were taken. Dr'd dx's vm, stayed in hospital for 11 days then went to follow up with neuro and was admitted again with neck pain and headaches the Dr's have giving me some type of steroid that seems to help with the neck pain. After reading these posts I take comfort in knowing I'm not alone
God Bless

Posted on 10 November 2013

Comment by Vanessa denslow

Hi everyone, I have been reading your comments and it is true how debilitating VM really is. I was admitted to hospital in June 2012 and spect 10 days having intravenous acyclovir and have since then been re- admitted to hospital far too frequently - my last admission was September 2013 when then diagnosed me as having Mollarets meningitis.
I am on anti- viral tablets all the time and have to a degree learnt to control and manage the illness. Just recently though my husband has said I say random things and have no memory of them seconds later and don't even remember having spoken.
My father was diagnosed with Alzheimer's at 68 and I also find I wonder how much of my memory problems are related to the VM or if I actually have Alzheimer's too I am only 52 but it certainly is worrying.
I am lucky enough to be able to work but only for 4 hours a day and manage to cope with my busy job .
It is reassuring to read others are experiencing similar problems but I wish there were support groups. It is a disease/illness which is not given the attention/support it needs.
It has left me feeling very alone

Posted on 04 November 2013

Comment by Sunshine

I have just found this site and I am so relived to find out I am not the only one going through this. I spent most of 2012 with headaches and went to the Dr only to be given beta-blockers to try and stop them then on December 21st I was rushed to hospital by my husband with such a bad head I was in tears I couldn't open my eyes and felt terrible, before I new it I was in there for 2 weeks missed xmas and new year. I've never experienced pain like it Christmas day I had so many drugs I was hallucinating and in and out of consciousness. I came out in January. It took me 3 months off work with fatigue I couldn't drive and felt wobbly and still had a bad head and the neck ache drove me mad. I went back to work and it is now October and though I feel much better I still get Neck ache and headaches. my husband feels like he is living with an old lady and its very hard he doesn't understand. I have massive memory loss all the time and im just very frustrated. I guess its just good to here that its not just me if you know what I mean. because you feel like once your out of hospital and got the clear that you should be better normal even. but its not its slow and hard work. However this is not the case for all my brother in law also had this and within 2 weeks he was back to his normal self. I couldn't believe it ! so I hope that more people have an experience like his than mine (ours) if the do ever end up with this horrible thing. I feel like it will never go.

Posted on 29 October 2013

Comment by Leslie Bestulic

I was just checking online with my symptoms this morning as I had viral menengitis three years ago. Lately I've had fatigue, joint pain, and weakness. In an unexplained way. I have also had a cold and flu like symptoms twice in the last couple of months. I also get low blood pressure at the onset of these 'colds' and have felt faint and anxious. I do lead a very active life and I'm 53 years old. I was just wondering if it had anything to do with my past event of menengitis.

Posted on 21 October 2013

Comment by Chad Armel

Hello, my name is Chad. I woke up on Tuesday September 24th at 6:45 am with the absolute worst headache I could ever imagine. The pain was horrible. This was my second day of vacation and we planned to take my two year old to a local cave. I did not want to let him down, so I sucked it up and went. I was miserable the entire time, and so sick/nauseous, but tried to keep a smile on my face. When we left, my wife took me straight to the E.R. where after a CT scan, and then a Spinal Tap, they diagnosed me with meningitis early Wednesday morning. I was in the hospital until that Friday when they released me. I thought I was feeling much better until the ride home. It was a sunny day and between the sun and every bump in the road feeling like a crater, I was miserable. I had really thought I would be back to work by October 2nd, but did not return to work until October 7th. After two full weeks back to work, I only get slight headaches, but there are definitely some side effects that I cannot seam to get rid of. The first is that my body overheats all the time. I am constantly sweating. The temperature is now dropping into the 40's and 50's here and I am still very hot all the time. Overall, I felt as if I was moving along just fine until a couple days ago when all of a sudden thinking became very frustrating. I was configuring a computer at work a couple days ago and simple mouse clicks that used to be very easy for me to remember, were frustrating me so much. I often times, as many on here experience, feel foggy and out of it. I get tired very easily, and the amount of sleep that used to be satisfactory for me no longer is. I get very frustrated easily. I also noticed that my legs feel stiff and heavy when I walk alot, which was never the case before. I am also still sensitive to light, especially certain car headlights. Anyone with a similar story, feel free to reach out to me.

Posted on 14 October 2013

Comment by Kath pugh

I have had Viral Meningitis twice. A very mild case when I was 17 and a very serious case in 2008, I was 33. I spent 2 weeks in hospital lost 20 kilos in 2 weeks, I walked out of hospital weighing 47kilos. It took me 18 months to recover but 5 years on I still suffer side effects, poor consideration, vagueness, tiredness, memory loss, dificulty finding words/speech when trying to have a conversation, sensitive to noise. My immune system is poor and I also have post natal depression hard to say if this is linked? . Thankfully I hardly ever have headaches but when I do get a miagraine/flu I am so scared of getting VM again. It helps to know that others have side effects but were do we go from here are their things we can do to improve our brain activity which may have been damaged ?

Posted on 28 September 2013

Comment by Caley Bell

Hi im caley I have just had my second bout of viral meningitis. I first had it in 2009. And thought it was a migraine. After having the headaches, stiffness, and finally vomiting I went to the emergency doctors who sent me to hospital. Where I had a lumbar puncture that revealed I had viral meningitis. It was horrible. I was in pain and on a drip for at least a week and then in for a week or so for observations. I had a three year old daughter and missed her terribly. Then came back home and was exhaused. Ive just tonight come out of hospital after contracting it again. This time round wasnt as floppy or drunk like but vomiting was bad. Headaches still really painful and are now worse since ive been discharged. My head is hurting that much its making me cry. Its a horrible piercing pain. Paracetamol is not doing the job can any body recommend any strong safe painkillers.thanks

Posted on 27 September 2013

Comment by Kim Long

I was diagnosed with meningitis almost a week ago, staying in the hospital three days. They stopped the antibiotics when the knew it wasn't bacterial. Now at home for several day, I feel worse than ever--headache, backache, no appetite, fatigue. Thinking that I might be able to miss a week-to-10 days of work, I now have serious doubts. Reading your stories has me worried. Have I really caught a disease that will change my life?

Posted on 26 September 2013

Comment by Lyn Campbell

I too have had viral meningitis. This happened approx 10 years ago. I despair of ever feeling normal again. The tiredness, fuzzy head, aches and pains, shocking memory. The funny thing is that I used to be excellent at spelling - but not any more. Some days I get so depressed about feeling like crap all the time :(

Posted on 25 September 2013

Comment by Christine Pownall

I have been diagnosed with viral meninjitis 3times and each time have had lumber. Punctures and hospital stays of up to 12 days. The worst headaches and sickness I could ever imagine. The last attack was in August this year and I am still off work. I feel like I am permanently under water and am very dizzy and feel sick most mornings. Sometimes when I get up I literally fall to one side and have to grab something and wait for my balance to return. I am currently on anti viral medication called aciclovir. I am very emotional and irratible and find words that were on the tip of my tongue just disapear. Very very frustrating. One of the worst things is that because I look ( normal ) people think I am fine and they really don't understand. X

Posted on 12 September 2013

Comment by Debra A. Francis

I was diagnosed with Viral Meningitis on Sept. 23, 2011 after running a high temperature since Sept. 3, 2011. I spent 8 days in the hospital, really bad headaches & fever was my main complaint. The urologist was able to get my headaches under control with medicine. 2 Years & 1 week later I am still running temperature 2 to 3 days in a row about every 8 to 10 days. I have a burning sensation in my back, legs and arms all the time. This has been over two years & dr's can't tell me why I still have this. I am still taking medication for headaches. Anyone out there similiar to my case? If so e-mail please at Thank you!

Posted on 12 September 2013

Comment by Margie Bilyeu-Clark

I am 33 years old and when I was 25 I had come in contact with viral meningitis. I was doing school on line I had to nearly take a year off because of this disease. It had started out as a cold then the next morning I had a headache really bad and my balance was off and I had the sensitivity to light. If I had to go to the bathroom I had to crawl or I would fall down. It was horrible because my daughter was 3 years old and I could not get up and play with her at all. I went a whole week at home laid up taking Tylenol thinking that it would help it did not at all. I had went through this for three weeks. I had lost weight because I could not eat at all and if I did it was a liquid diet because I could not sit up other wise my head felt like it was going to explode. after a couple of days with these headaches I went to the hospital they had done a spinal tap and found nothing. so they sent me home and a week and a couple of days had went by and I went to my husbands doctor he told me what I had and he prescribed vicadin and naproxen for the swelling and the headaches with in three weeks I had started feeling a little better but not a 100%. To this day I still get really bad migraine headaches and they are worse then before. I also have short term memory loss because of it and my balance is still of some times and more irritable and short tempered. The pain of this disease is very horrible.

Posted on 04 September 2013

Comment by Joyce Jansen

I developed viral meningitis, encephalitis and seizures as complications of West Nile Virus 8/20/12. I started with sudden onset of nausea, fever,headaches, rash and weakness. I was treated for dehydration and given Tylenol for the fever and headaches. After six days of semi consciousness, the seizures started. I was hospitalized for 3 1/2 days, but only aware of the last 2 hours. Pain in arms and legs has decreased with medications, but still having hip and elbow pain (both elbows), chronic fatigue, extreme exhaustion. Although balance is better, still feel "Fuzzy" or under the influence when tired. After losing most of my hair, it is growing back with a different texture. My vision has improved, but still not as good as it was before illness. Don't tolerate car trips more than an hour at a time. Can only tolerate about 2 hours of mental work before needing an hour or so break. I was employed as a Director of Nursing in a Health Department, but i don't see myself working as a nurse for some time yet. I know the brain can be very slow to heal, but good to know that I'm not alone!

Posted on 02 September 2013

Comment by Janyce Shehan

Wow...... More food for thought......
2006 Diagnosed with SLE.. Lupus
2008 Viral Meningitis
2009 Fibromyalgia
2012 Chemical Sensitivity
2012 Irritant Associated Vocal Cord Dysfunction
2012 Dysgeusia and Parosmia = Taste and Smell distortion.

Symptoms include Headache, Extreme Fatigue, Light Sensitivity, Cognitive Issues, Double Vision, Gait problems, Tinitus, hands tingling, swelling of extremities, pain all over body intermittent and stings, burns, throbs, aches.. Legs swell upon sitting, and burn upon standing, Irritants/chemicals cut off my airways I choke and have to wear a mask to leave home, food intollerances, taste and smell distorted to the point of can only eat about 10 single foods, balance, fog, irritability, Insomnia, sweating, tachycardia, tremors on inside upper body, headaches, ear ache, itchy spots, and no doubt others that my frazzled brain can't think of, oh yea, can't read due to inability to comprehend, chemicals in print choke me, cardboard boxes choke me, air conditioning choke me, have to have air purifier in my home and car and wear a mask in car for diesel chokes me, feet throb, legs don't want to bend, can not do steps, and I was a realatively healthy working person attending the gym and swimming laps...... reduced to disability pension and a life of endless pain, frustration, loneliness and I justs exist to see my grand children and my family ..... I am 56.... if anyone wants contact or 0427777556 mob . Cheers...
Your Stories your ailments so resemble a lot of mine, I feel for each and every one of you, and I had never included Viral Menengitis in my list of ailments until I read this, I truly thought it had come and gone and that was that, I had no idea and no did any DR or ED tell me of any... I now feel let down by the system for that illness too.. For there is no help WHAT SO EVER for my Irritant Associated Vocal Cord Distortion or my Chemical Sensitivities, or my Taste and Smell distortions... I have self helped and researched eg, mask, air purifier, water purifier etc etc.. My Dr told me Sorry I cant help you, I don't know anyone that can, I am sorry it happened to you, and I don't know why it happened to you...... no specialist help nothing...... feel free to call, I still am alive and I still like trying to live a life of smiles and fun and outings and everything else........ cheers.............

Posted on 02 September 2013

Comment by Kerri R

I had viral meningitis in August of 2012, took me a full month to be able to get back into the swing of life. Now, a year later, the slightest cold will land me in bed for up to a couple of days. I am an active 40 year old mother of 3 and I am rendered useless with just the sniffles. I sleep for 24 hours straight. When I try to get up, I get a headache just like I had when I viral meningitis. A common cold never affected me like it does now since I've had meningitis. I've lost 3 days at work this year because of colds. It used to take at least strep throat for me to call out of work.

Posted on 02 September 2013

Comment by April swanson

I had bacterial menegitis in 1979 at the age of 7. I was in the hospital for about a week and missed 3 or 4 months of school. I grew and developed fine with no lasting side effects. I do have aches and pains but no more than most people my age.

Posted on 28 August 2013

Comment by Paul G. Rockswold

I would be in heaven, if one other person said that they had experienced the same thing as me, or could tell me what the heck was going on with me! I have been to the best hospitals in the U.S., including the Mayo clinic. I contracted viral spinal meningitis insefiliitis, 20 years ago. I had a positive spinal tap ~ was sick at my parents house for 3 months. Bad headaches around my brain (whole skull area), eye pain, back and neck pain, and leg pain.

I started back to work and school after 4 months of recovery, and my meningitis showed its ugly head. Another positive spinal tap. More headaches, back pain, memory loss, leg pain, etc. 3 months of recovery. Back to school and work, Bam another bout of positive meningitis (I do not believe I had 3 separate events) I just think the illness lay dormant in my system.

Every 2 - 4 years, I am hit again with all the symptoms I have listed above. Minus the positive spinal tap. Just a month ago, I was hit with the headaches, backpain, eye pain, leg pain, dizziness, memory loss, etc.... and I lost my job because I was unable to keep working.

Has anyone out there, anyone experienced the same thing. Especially if there is a doctor who reads this, is there anything that can help me. Help my symptoms. Mayo believes that I have sort of a Mollerets meningitis that keeps on giving.

Thank you for taking the time to read this.

Noah (Paul R)

Posted on 19 August 2013

Comment by sharleen hughes

am 30 and and 5 years ago i was told i ave viral meningititis was very ill ened up in hospital for a week recoved quicker than i thought but i had it again nearly a month ago another hospital stay twice still not myself at all this time its been worse headaches feelin drunk warn out feed up and feel down wish it wud go away but worryed it could b worse next time asw ive had it twice more than likely been told i could get it again its the worse thing ive ever been throught with my health my head as never felt sooooooooo in pain in all my life !!!!!!!!

Posted on 14 August 2013

Comment by Paul

I started to get severe headaches in November 2012, my neck was aching, dizzy feeling, tinnitus and nausea. I had every test under the dim except a spinal tap, the dr says he suspected viral meningitis but has never confirmed it! Its now august 2013 and i'm still suffering, with asthma type symptoms and have had a complete loss of appetite, also my heart has been irregular! Has anyone that has been diagnosed as actually having had viral meningitis been left with breathing problems? I'd really appreciate any info!

Posted on 07 August 2013

Comment by Traci Sandstrom many of you, I'm glad I found this site. I had meningitis in April 2009 and still experience unusual tiredness, dizziness even while sitting still sometimes and horrible brain fog/block. I kept wondering if anyone else feels this way. I really wish there was a solution to it all but I'm not sure the after effects will ever go away.

Posted on 07 August 2013

Comment by Naomi Forder

I'm 21 and was diagnosed with viral meningitis 2 weeks ago. I've been out of hospital for a week, I felt fine while I was in there (still felt a little nauseous, little headachey but was better than I was) but now I've started feeling sick again almost all the time. I feel constantly tired even though I've had a good night sleep, my 16 month old daughter is really good so I haven't been tired out dealing with her. I feel snappy all the time with my boyfriend and its caused a huge amount of friction between us. He doesn't understand what I'm dealing with and thinks because I'm out of hospital I'm over it! How long does it take to feel normal again? I go back to work on Saturday and I'm worried they won't understand as I'm cleared to be back at work. I feel very vulnerable at the minute, can anyone help? I just want to be able to eat properly again and not feel so exhausted all the time.
Thanks, Naomi.

Posted on 06 August 2013

Comment by Olga Trollip

My name is Olga, I was 33 when I contracted viral meninitis almost a year ago. Now I still feel aftereffects of it, especially when I get tired. I start having a sort of a fever, when my neck and my head feel hot, yet my hands and feet go ice cold, then I start feeling weak and on a verge of fainting. At the same time my heart rate goes so high I feel like I ran a race, when in truth I have been in bed for hours. Sometimes I can go on completely healthy and normal for months (if I don't over work myself). So I have to be careful how much I do. I can even exercise at times, but very little. 2 months ago I was able to do a 10km race (i walked), but few weeks later I ended up in bed again not able to go to work. So it seems like a very slow recovery that I need to learn to accept.
The most frustrating part is when people tell me I must go to the doctor. Honestly I will feel verys stupid telling the doctor I feel tired. I know where it comesd from as I know my body (I live in it). I know how I felt when I first ended up in the hospital and how I felt during the recovery. Non of the symptoms are new, so I don't see the point asking for an opinion from a doctor who will tell me I have had meningitis. However, reading all the comments does shed light on the length of the recovery. Makes me feel much better that I am not the only one still struggling almost a year later.

Posted on 30 July 2013

Comment by Pamala burke

I was diagnosed withviral menigitis 3 weeks ago, stsyed in the hospital for 2 weeks! I also had increased pressure on my brain! I am home now and still suffer from severe headaches stiffness in my neck and light sensitivity, is this normal?

Posted on 10 June 2013

Comment by haleigh newman

I got a very had headache in march of 2013. It was constant, never going away just changed in intensity. I was working full time as a baker, I would get very dizzy at work drop things, etc. went to the dr and he took me off work while he ran tests ( 2 weeks) mri's, ct scans, sleep study, blood work, etc. Nothing worked so in may they finally did a spinal tap and found I had (or have) viral meningitis. I am still off work.. has been 3 months now. I don't know when I will be able if ever to return to work, my headache is still constant, I have very low energy and get dizzy and spacey all the time. Can anyone else work with this? is there any financial help for this disease, it truly is disabling and I have a family. The stress of not being able to work does not help. Thanks!

Posted on 30 May 2013

Comment by Brandon buck

A couple of dasy Before I got viral meningitis, my body would hot, but only my chest and neck for 10-20 min, it would happen two times in one day. The next day, I was congested, the following, fever and congested. The pain in my head where the Mengies were started, from a pain to 8 out of 10. My neck was extremely stiff. But the doctor said my neck was only stiff when he moved it side to side. Went to the hospital for the day, got a spinal tap. Didn't have bacterial meningitis. My head pains got worse, where Advil or another pain relief did not work. When I laid down on my bed, the pain went away, but when I stood up, extreme pain shot through the top of my head. It's been a week and a half. Ive been to the gyms few times because I'm an exercise freak. I have noticed today my body has gone through the same heat pattern, on my chest, and neck. Could I be getting viral meningitis or any other type?

Posted on 22 May 2013

Comment by logan long

Hey my name is Logan I found out last week I had viral meningitis! I was in the hospital for 4 days and I felt better by day 4 but I've been out for a little bit now but one thing that has never stopped is these horrible headaches does anyone know how to get rid of them???

Posted on 15 May 2013

Comment by Doug Miller

I was diagnosed with Viral Meningitis in April, 2012. I'm now 60. I have been extremely healthy my entire life so this hit me like a ton of bricks. I was out of work 6 weeks and took another 4 or so to kick it...or so I thought. I developed tremors, fatigue, headaches, pains in my neck (base of neck), and dizziness. At first, I thought I might have contracted Parkinson's Disease, based on the symptoms. However, after researching the long term effects of Meningitis and reading your posts, I feel much better about not contracting Parkinson's. As I've read your posts I don't feel alone and it helps having a much better understanding.

Posted on 11 May 2013

Comment by kris oneill

Does anyone experience tightening at sides of neck and pulsating at sides of neck as well as base of neck? Also anyone having sharp chest pains? Seems like I'm dizzy w headache in forehead and eyes majority of my days. I'm 5 wks post diagnosis. any sililarities or coping is appreciated. And can we get back to exercising hard w these kind of headaches?? Thanks

Posted on 05 April 2013

Comment by Olive

Had viral meningitis 2008. Appeared to recover ok but now getting severe headaches. GP done tests but no reason for them. With new GP as moved house so doesn't know me or previous medical history. Could headaches be result of meningitis.

Posted on 14 March 2013

Comment by Kathy Davis

Hi all. Glad I found this website. I'm different from the other respondents since I got viral meningitis a month ago at the age of 65! I feel much better but not as good as I was. One strange thing - I've started getting migraines again. Had them since age 12 but they went away with menopause. Now back. Anyone have experience with migraines recurring? KD

Posted on 05 March 2013

Comment by lisa sparks

My sister was diagnosed with viral meningitis last week. She was better for a few days and now is back to the way she was when rushed to er. I have read all these posts and my heart is there anyone that has had a complete recovery with only minimal side affects.

Posted on 27 February 2013

Comment by Janie

Hi guys,
It's really interesting reading all your messages, they're all appreciated. I was diagnosed with Viral Meningitis in March 2012. My first week out of hospital I was still vacant and my speech was terrible. As I started to be able to do more, more problems arose. In all Viral Meningitis has affected all my Cognitive Skills- balance, co-ordination, propreception, fine/gross motor skills, reading & writing, mood swings, and extreme tiredness more like a rung out cloth feeling!... and there's still more, concerntration, memory and understanding.

Even up to almost a yr on I still have problems with these issues, especially when tired but I hope for all of you who are a few months of into recovery aren't worried by the thought of a yr until symptoms improve. There is a fairly steady improvement, each month there would be something that seemed better, then a month or so that would be the status quo, then another improvement, but where cognitive skills are concerned you definitely have to work at them.

I'm a 400m athlete so having problems with these skills were certainly infuriating as they had been at their best as part of my training. Prior to being ill I was training x6 per week. I'm now edging into my training again. I really nope this helps those feel better with more info, I contacted the Meningitis Trust who where a great comfort and happy to impart with info. I look forward to any responses. Take care & look after yourself xxx

Posted on 23 February 2013

Comment by Vanessa Randall


I'm 19 and on 1st October 2012 was when everything began for me... was diagnosed after I was actually treated for viral/ aseptic meningitis, though they thought I also had bits of encephalitis. I had been feeling rough a couple days prior with headaches, but then I 'woke' up (luckily my boyfriend was staying in my halls at uni) being sick, talking gibberish, confused and I barely remember any of it.

I was discharged from 2 hospitals and twice went back in an even worse state. Losing a couple days as I have no memory of it. Was in a hospital about 5/6 weeks and was the worst time of my life where I kept relapsing during treatment and when they cut down. I had all the brain scans going and they couldn't see anything. Not to mention 8 lumbar punctures and will have a 9th in Easter holidays...

I'm now on anti inflammatory pills since coming out of hospital, but suffering horrific headaches some days and feel ill most days. I have awful memory too as if i've been drinking the night before and it's all hazy as well as feeling hungover when i wake up. It's hard being away from my family when i'm still in recovery and want/ need looking after some days. But its worse that it's ruining my university experience and it's beginning to make me depressed.

I wish I could say that 'at least i'm here today' but I don't think i would have died. I hate living like this so much and I really hope it can get better soon. Only my mum and dad know exactly the ins and outs of horrible events in hospital and my friends don't know. I can joke about things now which is just my way of making me feel better about it all. But it annoys me that everyone thinks i'm ok now that i'm out of hospital.

Another thing i should add is, I never went to the doctors about anything before this and lived with anything i was feeling. This was a wake up call and people don't need to go through being in hospital and I urge my friends to go now anytime they feel ill and i;m always honest now with how i really feel.

With the pills i still get incredibly vivid dreams and i'm still scared about going to sleep here in case i don't wake up and my flat mates think i'm out or something. I hope this goes away in time.

Posted on 19 December 2012

Comment by nia montague

Hi my name is nia and i was diagnosed with viral meningitis when i was 10. Im 20 now. I still experience bad headaches and get dizzy from little to heavy activity. I really do need more information on post meningitis because i dont think this is normal. Looking at some these responses i see things similar that go on with me. if any one can provide me with anymore information i would greatly appreciate it.

Posted on 05 November 2012

Comment by Kate

Hi Missy, I'm 29, I was diagnosed with Viral Meningitis mid-September this year. I'm still off sick and suffer with regular headaches, neck and back pain, dizziness and being spaced out.
If you're interested, I'm writing a blog about my experiences of VM to benefit other sufferers, amuse my family and friends and also to process everything that has happened. Have a read:

Posted on 23 October 2012

Comment by Luis

I am 15 and was diagnosed with viral meningitis. Whenever I play a sport I get really dizzy and start to get a really bad headache. Has this happened to anyone else that has had it?

Posted on 12 October 2012

Comment by Tanya southwell

Im amazed I thought it was just me. I had spinal menegitis when I was 2. My mom said 1 min I was fine then the next by spine instantly started curving back word, high fever, hulusinations everything. My spinal fluid traveled down to my knee and they had to do surgery to repair it. I spent two weeks in a comma and 3 months in the hospital. I'm 27 years old and I would say my pain is unbarrable almost everyday. My pain is in my back and neck, and gets to the point where my left leg goes numb or I get shooting pains in it. My neck is always stiff and my back always hurts. My memory has gotten extremely worse in the last 2 years, I find I get bad anxiety and depression. My energy is pretty low most of the time. I've tired talking to doctors about it but they blow you off or tell you no there's no side effects. In my life its hard to get your family on my side as well. Well after reading all the comments I'm beginning to think there wrong. It's nice to finally hear I'm not alone. ~🌸keep fighting the good fight and God will take care of us🌸

Posted on 11 October 2012

Comment by Jaclyn McManus

I got meningitis 3 years ago when i was 18 and I have had after-effects the same as you. I kept trying to find if anyone else had them but I couldn't find anyone with the same symptoms as me. I sometimes feel like im in a dream and I sometimes feel like I've been drinking, the same as you. This gets worse when I am tired and the next day I feel like the details of the night before are a bit hazy, as if I had been really drunk when I hadn't even had one. When I HAVE been drinking, I have terrible memory loss and I get drunk really fast so I tend not to drink much any more. When I was in hospital, I didn't go into a coma or anything but on my worst day I couldn't move my arms or legs because they were so weak and I couldn't speak - it was like baby talk that was coming out even though I knew what I wanted to say in my head but my mouth just couldn't form the words and it just came out in these funny noises. At first I was getting terrible migraines almost every day (now it's only once every week or 2) and it took me over a year to get any strength back in my muscles.

I also feel like I have quite a short temper and I feel myself getting angry or frustrated at the simplest things when the logical part of my head is telling me to stop being so silly. The drunk thing is my main after-effect though and the thing that annoys me the most, because with it comes the slight memory loss. As soon as someone reminds me then I can remember it fine but I find it hard recalling it myself. Glad to hear that apart from that you are doing ok though.

Posted on 05 October 2012

Comment by MRF Helpline

We’re sorry to hear that you’re struggling with the after effects of viral meningitis. It is a very serious illness and we do know that recovery can take quite a long time and the extent of the after effects is not always understood. You may be interested to know that we are currently funding a study in England about the longer term effects and you can read about it on our website:

Posted on 02 October 2012

Comment by Caroline Garza

I was diagnoses with viral Meningitis in November last year. I have gone from a high functioning working person to stay at home tired one. I struggle with memory issues and still get horrible headaches. There seems to be a lack of fully understanding this disease in Houston by some of the treating physicians. Many are still surprised that a year later I am still dealing with this. I would appreciate hearing from anyone who also had the viral form especially in the US.

Posted on 19 September 2012

Comment by @prettymess612

In 2006, I found out I had Meningitis..I was only 20 years old and I had no idea what that was. When my doctor explained to me what Meningitis was and what type I had...I was freaked out! Because, she warned me...if I hadn't came to the ER any sooner, I would have possibly died the next day! Ever since that day, I realized..people should find out more about themselves! The pain and agony that I went through with 1 week of Meningitis was the worst week of my life! I blew blood out of my nose for 2 literally felt like, someone was squeezing and twisting my brain like a wash cloth..the pain in my head and back was so bad, that I can actually compare the pain to the day I saw my uncle right after he was murdered! Meningitis is FOR REAL! just to know, some horrible bacteria was living on my brain and spine is more than enough to cope your research please, because it kills!

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