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meningitis & septicaemia can kill in hours!

People who are faced with meningitis and septicaemia have to act fast to help save a life.

Meningitis Survivor Twice

20 comments

Posted by Jess Alcorn on 17 March 2013

Hi :) I'm 17yo and have had meningitis twice with no long term side effects, though I have also have/had bronchitus, Nephrotics Syndrome, T1 diabetes and recently lost my sight due to cataracts but now regained after surgury.

I've never met or really heard of anyone who has had meningitus twice before and most people don't believe me when I tell them about my medical history

20 comments

Posted on 18 November 2014

Comment by Llodilyn

My husband is diagnosed with tb meningitis. He has been ill for more than one month up to the present. There are times when he is disoriented. It is hard seeing him like this. There are times I am scared on the thought whether he is going to live. Right now, I have to be strong for him. Sometimes, being strong is the only choice we have?

Posted on 17 November 2014

Comment by Brent Hutchinson

That's so crazy that you had Bacterial Meningitis twice!
On oct 13 my girlfriend came home after a trip -we hung out for a bit but we went to bed early because I wasn't feeling well. (I don't remember anything but my girlfriend told me) she woke up because of my loud moaning from the other room. She got up and found me acting completely mad. She said I was talking jibberish and knocking stuff over until I finally fell into the futon. She called an ambulance and they took me to Mt Sinai hospital here in NYC. At first, they thought I was just some wacked out drug addict and gave me a narcon shot. I was "acting like a zombie." It took me 5x the amount of medicine that it takes to subdue people. I would be calm for a few minutes and then I would start grawling and I would rise up in the hosiptal bed. For the first hour I was there no other patients received medical care because the doctors and orderlies were all busy with me. Finally, they knock me out.
10 days later, I wake up with my girlfriend and mother by my side and doctors and orderlies all around me. Obviously I was scared but I was so drugged up that I couldn't do much. I had awakened and I thought I was in a hospital in Asia. I thought I came into the hosiptal from a club in some crazy druggy nightclub somewhere in I had these vivid memories that I was later told were just dreams.
I got out of the hosiptal like 2 weeks ago and sometimes it's still difficult to decipher reality from the dreams.
I've had issues with my ears ever since I can remember. I also have used pills before (which lower my immune system.) My ear infection has spread to my brain and I was acting completely daffy.
God , it's the craziest thing that's ever happened to me and I've been in the hosiptal for pretty serious stuff before.
I'm so scared to get it again. My girlfriend is leaving next week to visit her family for thanksgiving and I'm scared to be alone.
Ugggghhhh

Posted on 13 October 2014

Comment by Jabu

i just survived viral menengitis. Been out of hospital for four days now. i thought i knew pain but i was wrong. Now i know pain. 7 years ago i was in a coma for two weeks, i'd rather go back there than have another menengitis experience. i'm feeling very fatiqued but i'm glad to be alive.
We are survivors! Let's love life and celabrate each day. All the best to you all!

Posted on 07 October 2014

Comment by Sharon darling

I had bacterial meningococcal septicaemia twice , first time I had type y which is unusual so they investigated and found I had a complement 7 deficiency which means I am at risk of meningitis again,as part of my immune system is missing , penicillin for life to help fight infection

Posted on 26 August 2014

Comment by Lana Rose

My name is Lana I am 27 yrs old, I was born with gastroschesis and at 3 months contracted menengiccocal mendengitis and survived..I then at16 had viral mendengitis and again survived. I have had Many other close calls of death..I have no side effects except feeling extremly spiritually open and close to GOD. There a reason all were still here..li e life to the fullest.GOD IS GOOD..bless you all!

Posted on 19 August 2014

Comment by Rata

Hi from New Zealand
I had my first bout 5 years ago on Christmas Eve - spent 7 days in hospital...and a further month recovering.
Just recently I got it again! 28 May 2014 - hospital, spinal tap etc...and the most horrendous painful headaches. 2 months off work...and slowly getting back to life now.
No idea WHY any of us would have got it twice.
I have been advised not to train for the 1/2 Ironman at the end of the year... just need to allow my system to pull it all together again. Jeepers.

Anyway - hoping we all rise above this!
Rata

Posted on 20 June 2014

Comment by Sarah butler

I have just come out of hospital today! I've had viral twice now, first time 4 years ago didn't think you could get it more than once!, I knew the symptoms and went straight to doctor he then sent me to hospital, I must say the headache is unbelievably painfull doesn't get any better than the first time, my brother and uncle have had the bacterial one and my bro got epilepsy, I've suffered from bad eye sight after the first round not looking forward to what damage if any this time it going to leave me with.

Posted on 16 June 2014

Comment by george wright

hi to those who are worried about viral meningitis well let me tell you I have had it 4 times now and its like it seems to take a little strength out of you each time, the last time I had it it made me hard of hearing and now I wear hearing aids,plus I am now an asthmatic, luckily I have not had it for about 4 years now so hears touching wood,my age now is 65 my viral meningitis has been over the last ten years,plus I have also had a mini stroke, good luck o you all

Posted on 03 June 2014

Comment by Lisa Mesa

I've had viral form just over 2 months ago and feel as if I have reoccurring symptoms which seem to be getting worse, so i'm grateful for this Web page,I don't feel hypochondriac

Posted on 21 May 2014

Comment by beatriz robledo

Hi I had meningitis before when I was a baby I'm 17 now would I get it again??

Posted on 12 May 2014

Comment by Gerry Sifuentes

I have had viral meningitis twice as well..I live here in Texas and was searching to see if others existed. .great I'm not the only one lol. I was searching to see if your able to get it a 3rd time..I am 34 yrs old first got it when I was 29 then again at 32.. As far as effects it feels as if I can remember my childhood and feel lost sometimes. I have had a few friends that have past away from this these past two yrs...I really hope I will not get this again.. it's not fun at all..

Posted on 28 March 2014

Comment by Steve Clegg

I have had it twice. Once when I was 16 and again when I was 18. When I was 16 I had viral meningitis and was hospitalized for about a month. At 18 I contracted bacterial meningitis from what the doctors assumed was a sinus infection.
Pay attention to symptoms. Distinct headache with a stiff neck. If you can't touch your chin to your chest go to the hospital.

Posted on 27 March 2014

Comment by Steve clegg

Had viral at 16. Bacterial at 18. I have memory problems.

Posted on 27 March 2014

Comment by Sandra grotto

4 times bacterial meningitis In January 1999 Blake was a active healthy 4 year old boy, he became I'll with a vomiting bug or so I thought after getting him to hospital he was diagnosed with pneumococcal meningitis he was put into a induced coma and a lumbar puncher was preformed he was very sick and we were told the bad news of what after effects to expect or even death. Blake survived but was left with complete hearing loss in his left ear. In 2009 at age 14 Blake once again was rushed to hospital and again he had this horrible disease this time affecting his left eye sight. Lumbar puncher again done and antibiotics started for 2 weeks his eye sight returned and he was sent home with a pic line for another 6 weeks of antibiotics. In 2013 Blake again took sick and was taken to hospital again bacterial meningitis. It was found this time that he had a tear of the Dura and a CSF leak which we always told the running of his nose was allergy related with rhinitis. They operated through his nose to seal the leak which was successful, Blake also has erosion of the temporal bone due to the meningitis. In march this year 2014 Blake again has taken sick and is now in hospital suffering staphylococcal meningitis How and why this disease keeps coming back we are yet to discover. If you or anyone can help me with answers I would be grateful. They have also discovered that Blake should never been allowed to have a lumbar puncher as he has chiari I malformation.

Posted on 10 February 2014

Comment by Harrison

I had viral meningitis more than twice. Although I have people saying that this doesn't happen, I'm sure he does. Maybe this should be checked. I eat healthy most of the time and I'm a clean person, so the reasons added to some websites are just non factoids and surely this needs further checking. Maybe for some reason some people are susceptible than others. The hardest is trying to justify this on your form, they think you're not telling the true.

Posted on 12 November 2013

Comment by beth sullivan

i got given meningitis though a kiss at 16months and i am scared that i am going to get it again i dont no what to do i am scared

Posted on 23 August 2013

Comment by Brittany Braden

Hi. My name is Brittany. I'm 21 and I have also had meningitis twice. Once at age 2, during which I temporarily lost function of my legs, then again at 10.

Posted on 20 August 2013

Comment by Marlie Jeanne

My name is Marlie and I had meningitis twice from ages 19-20.
On the 4th of July I left work with a migraine. At the time I thought I may of gotten over heated. (I live in Texas and it was easily 105 that day) I went home to take a nap and when I woke up I couldn't lift my head or even open my eyes. My mother took me to the ER and I was admitted and kept for 18 days.
The second time was February 1st ( 7months later) as soon as my neck and head started hurting I knew what was wrong. My mom took me back to the ER and they were shocked. I was admitted and got out valentines day. It's been 2 years and my seizures just recently stopped. I also have a hard time hearing out of my left ear. Other than that I have no longer term problems. I've never met or heard of anyone else around our age that's gotten twice.

Posted on 24 April 2013

Comment by Julie Dunne

Hello, I have had bacterial menigitis 4 times, I was 20 months old. I was born with a sinus tract on my spine which caused the recurrent meningitis and also had 2 spine operations in that time. I didn't have an after effects until 16 years ago (i'm now 40) and now i've got inner ear problems and have balance problems, dizziness and vertigo, even though it can be rare you can get bacterial meningitis more than once.

Posted on 16 April 2013

Comment by Rachael Stewart

Wow! That is a lot for someone as young as you to go through.

Sadly my son had pneumoccal meningitis twice, once aged 7 months and then again just before he was 9 months, but he could fight it the second time. I am lead to believe that he is very rare in this case as well, that there are not many people out there that have had to fight more than once.

You are an amazing person, who obviously has a lot of inner strength. I hope that you have a good support network behind you and that your future is full of amazing possibilites and dreams.

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