Meningitis Survivor Twice


Posted by Jess Alcorn on 17 March 2013

Hi :) I'm 17yo and have had meningitis twice with no long term side effects, though I have also have/had bronchitus, Nephrotics Syndrome, T1 diabetes and recently lost my sight due to cataracts but now regained after surgury.

I've never met or really heard of anyone who has had meningitus twice before and most people don't believe me when I tell them about my medical history


Posted on 05 August 2017

Comment by Bobby Blanco

I'm 65 years old. I've had viral meningitis twice. The first was when I was 32 years old. I had a staph infection that caused it. My second was five years ago. I had Lyme disease that caused it as well as causing encephalitis at the same time.

Posted on 05 August 2017

Comment by Deidre Jacobs

Good day Jess Alcorn,

i have had it 1st when i was 8months old, bacterial meningitus. 2nd time when i was almost 5 years old.

i sometimes suffer from severe head ache which sometimes last for days on end. am type 2 diabetic. wear glasses since i was about 16. look like i have been in a accident due to the marks caused by the meningitus. am currently 40 years old, married, 1 daughter, although i was told i would never fall pregnant, but the Lord carried me through all of this.

Deidre Jacobs
South Africa

Posted on 10 May 2017

Comment by nelisa mbambo

I have digonised tb manangitics and I feel depressed each and every day. how low do you have to take tretment

Posted on 21 February 2017

Comment by Norma McCarthy

Hi all my name is Norma.Omg did not know u can get bacterial meningitis a second time.WTF.that ridiculous for this day and the year 2000 April I lost both my legs below the knees.I spent 111 days in intensive care. I was 15. Id no symptoms I'm bad enough. This really baffles me.can't believe all ur's horrifying. Something has to be done NOW.

Posted on 29 November 2016

Comment by Ramie anderson

Hello my name is raymond im 36 and have had meningitis 3 times due to a csf leak from my nose which went unoticed after a cycle accident when i was 10 years old i first contracted meningitis when i was 13 then again at 16 and then again at 19 even though i had been vaccinated it was after the 3rd bout doctors sent me for scans which showed a hole in my sinnus i then had brain surgery at 21 to repair wich changed me in many ways then the repair failed i had surgery again when i was 29 which left me with highly visible lumps from accrylic that look like ive had horns removed not the worst price to pay for clean bill of health altho at 36 my looks like its cracking along all previous cuts under the skin so its ongoing untill now i do consider myself extremely lucky the 3 bouts of menningitis almost killed me but made a full recovy every time

Posted on 24 November 2016

Comment by leeanne tymon

I am currently goin through second episode oc meningitis in 8mth with my son who is 7 years. It gets no easier believe me. Last time was viral and now bacterial, alot of tests now to go after treatment to find out if there is a cause as to why he has contracted this again, he has had numerous lumber punctures canulars, drugs, blood tests, but he I over the word again due yo mh quick response in geting him to hospital after been sent home from gp with Calpol, n then tonsillitis this time was diagnosed first before I told them I no my child and no its more serious. Very stressfull time for myself and my son who is the bravest little boy I no. 😊

Posted on 10 November 2016

Comment by Garrett Moser

My mom had it 5 times and survived

Posted on 25 May 2016

Comment by Katlego Raboroko

Hi well I had meningitis when I was about 7 years old (I am 13 now), and I am so worried that I might get it again, and I still experience back pain and headaches

Posted on 12 May 2016

Comment by Gerald Greyvenstein

I was about 8 months old when I had bacterial meningitis. It nearly killed me because countless of doctors diagnosed me incorrectly, I developed a brain tumour from it, the emotional part of my brain never fully developed and I still have speech problems because of it. Thankfully, I don't remember much from it seeing as I was an infant. Lately, I've been struggling with my ears. For about two years now, excess earwax. The need of wanting to rid myself of it because it's annoying. I had acute otitis media last year or the year before for two weeks, utterly dreadful. I remember praying that it was nothing serious and that it would all go away. It sort of did, and now I have it again. Started yesterday morning and have yet to seek medical care or advice, I know the symptoms very well.. I am always so afraid of the bacteria becoming resisent, chronic otitis media is also at a high risk for meningitis. Seeing as I'm 21 and I'm still struggling with all of the defects, it will always be in the back of my mind. I am so scared of getting it again, it's very serious and a lot of people don't understand that. I would have been completely normal if I never contracted it in the first place. Please pray for me and I'm really hoping my infection isn't that serious and it can be treated without any complications. I admire everyone who has survived it. It's not something you should ever play with. Good luck to everyone currently fighting it. You can beat this!

Posted on 11 April 2016

Comment by Ryan Keen

2 time survivor of viral meningitis. First time i had viral meningitis was in the 4th grade (1997 or 98) and was in the hospital for about 2 weeks. I am now 28 years old. I was in the hospital about 2 weeks ago with viral meningitis and encephalitis. They told me cause may have been from mosquito bite while I was on vaca in the Austin/Dallas TX area. Started with pain in the lower back then in the shoulders to my neck into my head and affected my eyes. Was an awful experience the second time around. Was in the hospital for about 5 nights. I'm feeling almost no symptoms now.

Posted on 07 April 2016

Comment by Tiffany Steward

Hi I'm a mom of a 11 month old and she was in children's hospital of alabama for 10 days with bacterial meningitis at 8 months old and she is currently sick and it seems to be the same like it was 3 months ago I'm praying it's not. I sat here reading all of your stories and I didn't realize how serious this is. The doctor said she just has a server ear infection and children's ER said its a UTI. Please if possible keep her in your prayers. Thank you guys!

Posted on 05 April 2016

Comment by Shyann Johns

I had meningococcal meningitis when I was 6 years old. Unlike a lot of people on here I've had it only once and i never want to have it ever again. I remember watching TV with my mom, we were on different couches and i had to go to the bathroom. When i tried to get up to go to the bathroom, i couldn't because i couldn't feel my legs. I tried to crawl to the bathroom but it was really hard. My mom asked me "What are you doing Shyann?" I just said i couldn't feel my legs. That's how i remember it but my mom said i fell asleep in the bathroom. My mom took me to the hospital and the doctor had fear in his eyes that you just can't explain. They took me to this room where they layed me down and put the breathing thing on my face. I remember looking at my mom, I could barely see her cry because of the mask over half her face. The door slightly opened and i saw my dad come through with the same mask as my mom. I wasn't crying, I wasn't moving, I was barely thinking clearly because I was just so confuse. i didn't understand that was going on. Then the dortor gave me this pink liquid thingy. I thought it was just something that would help me go to sleep. I took the liquid and felt it like right away. I felt so dizzy and right before i went to sleep I said " Yeah, while you're guys are doing that I'm gonna go to sleep.' Then i passed out. I was flown the Portland OR. My mom said that they couldn't find a vain but they found one by my hip, so yeah i have a scar there. My mom also said if she would have waited 2 more hours i would have died. Unlike some people i didn't lose any limes nor did i die. I'm grateful for that but i feel really bad for the people who have. I'm 15 now and the only effects that i have are really bad migraines and i still take medication for my sleeping habits.

Posted on 14 March 2016

Comment by Kris Plant

I have had viral meningitis twice. Once when I was around 21 - hospitalized for 7 days and again 5 years ago - age 49 - hospitalized for 6 days. Just this week I started getting the "meningitis headache" and the spine thing , it feels stiff and like every step or bump in the road when driving you are getting the wind knocked out of you. Also, extreme fatigue. That was 3 days ago and it seems to be getting better now, my back is still touchy and still tired but my head has stopped hurting - I didn't go to a doctor this time because but I know how it feels and I'm pretty sure that it is Meningitis again but it's not escalating like it did the first 2 times - weird... but I'm thankful it seems to be going away.

Posted on 01 February 2016

Comment by Stephanie laplante

Hi . I've had viral meningitis about a year and a half ago . I got it from getting west Nile which I also survived . I'm worried about getting meningitis a second time. I get a headache and I'm nervous about it. I waited a week before going to the hospital . If it does reaccure I won't wait that long before seeing a doc. I hope it won't tho.

Posted on 01 February 2016

Comment by Tron Chatmon

Wats up everyone, I am currently in the hospital experiencing my 2nd bout with meningitis. The first time was in 2009 when I had a headache that was out of the world. I didn't go to the doctor because I thought it was a cold. Upon laying there and feeling like i was dying, i went to the hospital to find out i had contracted meningitis. After being hospitalized for about a week and a half life had been pretty good. Last week i started to get headaches again 6 years later. It was only til that Sunday when I got that "meningitis headache" (one of a kind) and came to the hospital. Me going through this previously i was able to direct the doctors in the right direction even though they were trying to say i had the flu.... 4 days later still in this hospital. ..

Posted on 13 November 2015

Comment by Jessie Leighton

My husband is 32 and he had bacteria meningitis 7 times and currently hospitalized with his 8th infection of meningitis. It started about 4 years ago. He's had staph lugdenieses, enteroccous twice, staph aureous, floral from the mouth, Acinetobacter baumannii, VRE and the new ones hasn't been diagnosed yet but looks like a new bacteria. He has pseudo tumor cerebri and has had numerous shunt placements (4) and removals, currently has no shunt or hardware yet he keeps getting meningitis repeatedly. The doctors are confused and doing there best but I am reaching out to anyone that has had similar experiences and has a doctor or facility that could help him.

Posted on 28 July 2015

Comment by Sivan fox

Wow I had meningitis about 6-8 months ago. Everytime I get a headache I'm scared I'm going to get it a second time. They never found out witch type I had because they didn't pull enough spinal fluid and I wasn't about to let them do it again. I have always been accident prone and a bit of a worry wort. Luckily my mom cares enough to listen to me even when she thinks it's just a headache. If she didn't take me in I probably wouldn't even be alive anymore. I have back pain from it still but that's it. It was the scariest moment of my life and will always be in my shadow.

Posted on 28 July 2015

Comment by Sivan fox

Oh and I'm 16 years old

Posted on 11 June 2015

Comment by Monica James

I Had Spinal Meningitis Twice As A Baby, At 8 Months And Again At 18 Months. I Only Suffered Permanent Nerve Damage In My Left Ear. I Was Very Lucky. My Parents Tell Me The Secondary Time Was Nearly Fatal.

Posted on 28 May 2015

Comment by Doris Jenkins

I had mumps encephalitis at 11 yo. I had to learn how to walk again and missed several months of the 6th trade. At age 19, I developed bacterial meningitis.. I had all the symptoms, stiff neck, headache, sensitivity to light, fever,. I was admitted to isolation and underwent Lumbar puncture. My hospitalization was more than two weeks. I recovered without any noticeable residual effects. At age 21 I again came down with bacterial meningitis. Hospitalized in isolation for two weeks, sent home only to be readmitted that night for a relapse and readmitted for another two weeks. At age 57 I took the H1N1 flu shot and developed Guiiian Barre Syndrome within a few weeks of taking the shot and was hospitalized for a week. I had numbness and tingling. in my ffeet, hands, arms, lens, back, head, and face until recently which is 5 years, I believe my immune system has been compromised because of repeat infections like this, Luckily I seem to recover without much residual effect.

Posted on 27 March 2015

Comment by Debbie Oseguera

Hi everyone, I was just released from the hospital last week with my second round of viral meningitis. Believe me it doesn't get any easier. Unfortunately, I had it two years ago and they told me not to worry because the odds of ever getting it again was so low. I was left in the ER for 13 hrs and a lumbar puncture that was unsuccessful. The numbing meds did nothing and I will never give my okay for one again. I tried telling the doc that my symptoms were the same as I had before, however they did a bunch of random tets instead of starting the treatment right away. Of course this delayed my recovery process. I can't seem to regain my strength. I'm exhausted and have absolutely zero energy. The recovery the second time around seems much harder.

Posted on 13 March 2015

Comment by Penny Alford

My son who is 27 is in hospital right now for his 4th time with Meningitis. I'm pretty certain I have more experience with it than most doctors out there. Once they started to listen to me, he received the right treatment and because I knew the signs so well, he was there within an hour. He had a seizure to start with, that was a first time I'd seen that though. They found a operated on a tumour near his meninges which was supposed to stop his nasal drip and was unsuccessful. We need to be there to protect our children and make the right decisions when they cant. Dont be bullied into decisions to be made. I stood my ground and relayed my sons personal wishes if this happened again. I almost caved, but I remember what he told me. He said Do not let any Mother Fkr give me a lumbar puncture again. The permanent problems he lives with daily were exasperated by the symptoms of not enough spinal fluid and a leak afterwards. Due to the fact his temp is down and he is improving gives me no reason to agree to a LP which for him is very risky and can impact his life further. They are on the right path, thats obvious, keep going, no need to introduce further risk. Not the right decision for everyone, but it does not have to be standard procedure. Not only do I want him to live, but I want him to have quality of life. A LP last time made him feel like he did not want to live while having excruciating lower back pain and a 6 week daily headache. Well done to ALL who have survived this!

Posted on 11 March 2015

Comment by Steve Shabazian

I had bacterial menigitius when I was a baby and again when I was 22. At the time when I was 22, prior to coming out of a coma the doctors told my wife I would be a vegetable. I came out of the coma, and was ok. It took me weeks to feel normal again. I recall the doctor saying to me that it is not normal for anyone to contract spinal menigitius two time and live. If I get it again it is possible to live. I get scared
Everytime my neck hurts and have a fever. Apparently it is due to numerous ear infections due to server allergies. Anyone have it 3 time and survive. I currently have issues with remberimg dates of things that matter and names of people. All due to high fever. Anyone else.

Posted on 20 January 2015

Comment by Natalia Gamarra

I went to a two days conference in LA and two days later I started having a severe headache and pain in my back and the whole spine. I thought I was just tired and needed to rest. Four days passed and my husband took me to ER. The doctors wouldn't let me go anywhere. They admitted me with viral meningitis. They only kept me in for three days because my health insurance wouldn't cover more. I went home and just stayed in bed for several day. Seven months now and I still have some left overs. Lot of pain in my back, spine, random headache, photosensitivity. Sometimes I feel that it never went away. I don't wish this discomfort to anyone. Now what to do? I can't excercise as I used to do because it hurts my back. I feel like an old lady and I'm only in my middle 30s.

Posted on 19 January 2015

Comment by Bunny Grace

I caught viral meningitis at a day old, from my birth mom. I've been told that to have survived months like that, without it being known I was sick, is a miracle. Whenever I tell people I had meningitis as an infant, a new born at that, they always stare at me. While I was lucky to survive, I was unlucky because I gained long terms affects of having gone for so long without medical care. I used to have violent seizures, but now-a-days, they're just migraines. My immune system sucks. And I have a big problem affecting my limbs and joints that they believe is a result of my sickness. Now, I'm sixteen, and I've just gotten it again. I'm two days in, and I'm just wondering how on earth I could've survived with it for months when I was a baby. This is pain beyond pain. :(

Posted on 22 December 2014

Comment by Daniel Canaan

I gave had meningitis twice first being Meningococcal meningitis at 7 yrs and viral meneingitas at 13yrs

Posted on 01 December 2014

Comment by sasha cornell

I'm a 15 year old girl who is extremely for and healthy I love my sports, when I was 6 months I got bacterial meningitis which I went into a coma with at 18 months I had cell division problems with contain sugars and not producing cells and now at 15 I spent a year in hospital with bacterial meningitis again, throughout my life I have had viral meningitis, in total about 8 times and bacterial 2 times I have had all my jabs for meningitis and I still get it

I know what you have been through and I believed it was very rare to get it more than once

Posted on 18 November 2014

Comment by Llodilyn

My husband is diagnosed with tb meningitis. He has been ill for more than one month up to the present. There are times when he is disoriented. It is hard seeing him like this. There are times I am scared on the thought whether he is going to live. Right now, I have to be strong for him. Sometimes, being strong is the only choice we have?

Posted on 17 November 2014

Comment by Brent Hutchinson

That's so crazy that you had Bacterial Meningitis twice!
On oct 13 my girlfriend came home after a trip -we hung out for a bit but we went to bed early because I wasn't feeling well. (I don't remember anything but my girlfriend told me) she woke up because of my loud moaning from the other room. She got up and found me acting completely mad. She said I was talking jibberish and knocking stuff over until I finally fell into the futon. She called an ambulance and they took me to Mt Sinai hospital here in NYC. At first, they thought I was just some wacked out drug addict and gave me a narcon shot. I was "acting like a zombie." It took me 5x the amount of medicine that it takes to subdue people. I would be calm for a few minutes and then I would start grawling and I would rise up in the hosiptal bed. For the first hour I was there no other patients received medical care because the doctors and orderlies were all busy with me. Finally, they knock me out.
10 days later, I wake up with my girlfriend and mother by my side and doctors and orderlies all around me. Obviously I was scared but I was so drugged up that I couldn't do much. I had awakened and I thought I was in a hospital in Asia. I thought I came into the hosiptal from a club in some crazy druggy nightclub somewhere in I had these vivid memories that I was later told were just dreams.
I got out of the hosiptal like 2 weeks ago and sometimes it's still difficult to decipher reality from the dreams.
I've had issues with my ears ever since I can remember. I also have used pills before (which lower my immune system.) My ear infection has spread to my brain and I was acting completely daffy.
God , it's the craziest thing that's ever happened to me and I've been in the hosiptal for pretty serious stuff before.
I'm so scared to get it again. My girlfriend is leaving next week to visit her family for thanksgiving and I'm scared to be alone.

Posted on 13 October 2014

Comment by Jabu

i just survived viral menengitis. Been out of hospital for four days now. i thought i knew pain but i was wrong. Now i know pain. 7 years ago i was in a coma for two weeks, i'd rather go back there than have another menengitis experience. i'm feeling very fatiqued but i'm glad to be alive.
We are survivors! Let's love life and celabrate each day. All the best to you all!

Posted on 07 October 2014

Comment by Sharon darling

I had bacterial meningococcal septicaemia twice , first time I had type y which is unusual so they investigated and found I had a complement 7 deficiency which means I am at risk of meningitis again,as part of my immune system is missing , penicillin for life to help fight infection

Posted on 26 August 2014

Comment by Lana Rose

My name is Lana I am 27 yrs old, I was born with gastroschesis and at 3 months contracted menengiccocal mendengitis and survived..I then at16 had viral mendengitis and again survived. I have had Many other close calls of death..I have no side effects except feeling extremly spiritually open and close to GOD. There a reason all were still e life to the fullest.GOD IS GOOD..bless you all!

Posted on 19 August 2014

Comment by Rata

Hi from New Zealand
I had my first bout 5 years ago on Christmas Eve - spent 7 days in hospital...and a further month recovering.
Just recently I got it again! 28 May 2014 - hospital, spinal tap etc...and the most horrendous painful headaches. 2 months off work...and slowly getting back to life now.
No idea WHY any of us would have got it twice.
I have been advised not to train for the 1/2 Ironman at the end of the year... just need to allow my system to pull it all together again. Jeepers.

Anyway - hoping we all rise above this!

Posted on 20 June 2014

Comment by Sarah butler

I have just come out of hospital today! I've had viral twice now, first time 4 years ago didn't think you could get it more than once!, I knew the symptoms and went straight to doctor he then sent me to hospital, I must say the headache is unbelievably painfull doesn't get any better than the first time, my brother and uncle have had the bacterial one and my bro got epilepsy, I've suffered from bad eye sight after the first round not looking forward to what damage if any this time it going to leave me with.

Posted on 16 June 2014

Comment by george wright

hi to those who are worried about viral meningitis well let me tell you I have had it 4 times now and its like it seems to take a little strength out of you each time, the last time I had it it made me hard of hearing and now I wear hearing aids,plus I am now an asthmatic, luckily I have not had it for about 4 years now so hears touching wood,my age now is 65 my viral meningitis has been over the last ten years,plus I have also had a mini stroke, good luck o you all

Posted on 03 June 2014

Comment by Lisa Mesa

I've had viral form just over 2 months ago and feel as if I have reoccurring symptoms which seem to be getting worse, so i'm grateful for this Web page,I don't feel hypochondriac

Posted on 21 May 2014

Comment by beatriz robledo

Hi I had meningitis before when I was a baby I'm 17 now would I get it again??

Posted on 12 May 2014

Comment by Gerry Sifuentes

I have had viral meningitis twice as well..I live here in Texas and was searching to see if others existed. .great I'm not the only one lol. I was searching to see if your able to get it a 3rd time..I am 34 yrs old first got it when I was 29 then again at 32.. As far as effects it feels as if I can remember my childhood and feel lost sometimes. I have had a few friends that have past away from this these past two yrs...I really hope I will not get this again.. it's not fun at all..

Posted on 28 March 2014

Comment by Steve Clegg

I have had it twice. Once when I was 16 and again when I was 18. When I was 16 I had viral meningitis and was hospitalized for about a month. At 18 I contracted bacterial meningitis from what the doctors assumed was a sinus infection.
Pay attention to symptoms. Distinct headache with a stiff neck. If you can't touch your chin to your chest go to the hospital.

Posted on 27 March 2014

Comment by Steve clegg

Had viral at 16. Bacterial at 18. I have memory problems.

Posted on 27 March 2014

Comment by Sandra grotto

4 times bacterial meningitis In January 1999 Blake was a active healthy 4 year old boy, he became I'll with a vomiting bug or so I thought after getting him to hospital he was diagnosed with pneumococcal meningitis he was put into a induced coma and a lumbar puncher was preformed he was very sick and we were told the bad news of what after effects to expect or even death. Blake survived but was left with complete hearing loss in his left ear. In 2009 at age 14 Blake once again was rushed to hospital and again he had this horrible disease this time affecting his left eye sight. Lumbar puncher again done and antibiotics started for 2 weeks his eye sight returned and he was sent home with a pic line for another 6 weeks of antibiotics. In 2013 Blake again took sick and was taken to hospital again bacterial meningitis. It was found this time that he had a tear of the Dura and a CSF leak which we always told the running of his nose was allergy related with rhinitis. They operated through his nose to seal the leak which was successful, Blake also has erosion of the temporal bone due to the meningitis. In march this year 2014 Blake again has taken sick and is now in hospital suffering staphylococcal meningitis How and why this disease keeps coming back we are yet to discover. If you or anyone can help me with answers I would be grateful. They have also discovered that Blake should never been allowed to have a lumbar puncher as he has chiari I malformation.

Posted on 10 February 2014

Comment by Harrison

I had viral meningitis more than twice. Although I have people saying that this doesn't happen, I'm sure he does. Maybe this should be checked. I eat healthy most of the time and I'm a clean person, so the reasons added to some websites are just non factoids and surely this needs further checking. Maybe for some reason some people are susceptible than others. The hardest is trying to justify this on your form, they think you're not telling the true.

Posted on 12 November 2013

Comment by beth sullivan

i got given meningitis though a kiss at 16months and i am scared that i am going to get it again i dont no what to do i am scared

Posted on 23 August 2013

Comment by Brittany Braden

Hi. My name is Brittany. I'm 21 and I have also had meningitis twice. Once at age 2, during which I temporarily lost function of my legs, then again at 10.

Posted on 20 August 2013

Comment by Marlie Jeanne

My name is Marlie and I had meningitis twice from ages 19-20.
On the 4th of July I left work with a migraine. At the time I thought I may of gotten over heated. (I live in Texas and it was easily 105 that day) I went home to take a nap and when I woke up I couldn't lift my head or even open my eyes. My mother took me to the ER and I was admitted and kept for 18 days.
The second time was February 1st ( 7months later) as soon as my neck and head started hurting I knew what was wrong. My mom took me back to the ER and they were shocked. I was admitted and got out valentines day. It's been 2 years and my seizures just recently stopped. I also have a hard time hearing out of my left ear. Other than that I have no longer term problems. I've never met or heard of anyone else around our age that's gotten twice.

Posted on 24 April 2013

Comment by Julie Dunne

Hello, I have had bacterial menigitis 4 times, I was 20 months old. I was born with a sinus tract on my spine which caused the recurrent meningitis and also had 2 spine operations in that time. I didn't have an after effects until 16 years ago (i'm now 40) and now i've got inner ear problems and have balance problems, dizziness and vertigo, even though it can be rare you can get bacterial meningitis more than once.

Posted on 16 April 2013

Comment by Rachael Stewart

Wow! That is a lot for someone as young as you to go through.

Sadly my son had pneumoccal meningitis twice, once aged 7 months and then again just before he was 9 months, but he could fight it the second time. I am lead to believe that he is very rare in this case as well, that there are not many people out there that have had to fight more than once.

You are an amazing person, who obviously has a lot of inner strength. I hope that you have a good support network behind you and that your future is full of amazing possibilites and dreams.

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