Viral spinal meningitis


Posted by tim henley on 06 April 2012

I was 20 and am still having pains from this sickness in my head its been 6 months since i was diagnosed i was in the hospital for a week had a spinal tap and couldn't walk for a week too much pain i'm now 21 and my head pain just comes and goes any ideas what could help.


Posted on 24 July 2017

Comment by Mary Nichols

Hello, this is a response for Debra Francis.

Hello Debra. I suffered viral meningitis after exposure from a patient I was tending to at the hospital. I had the exact same symptoms as you with weeks where I appeared getting better then a low grade fever one day, a mild headache the next, then a full blown headache with severe fatigue and weakness that would last about 7 or so days. Then 2-3 weeks getting better and again same thiing. Symptoms followed pattern almost identical to original meningitis outbreak only milder.

You may be suffering from an autoimmune condition triggered by the virus exposure. If you are still suffering from symptoms that follow as pattern with a predictible amount of time between and a low grade fever that accompanies it, ask your doctor to check you for an autoimmune condtion or refer you to a rheumatologist who can. Request that an ANA with IMMUNOFLOURECENSE be done in place of ELISA testing or find a rhematologist who uses the first test. Turns out ELISA is done thru computer automation and is only 60% accuate at finding autoantibodies but insurances will still madate its use because its much cheaper than the Immunoflorecence because that one requires it to be manually looked at under a microscope by a trained technician or doctor. Your ordering physcian will need to request it specifically. Many people suffer with untreated autoimmune conditions because they never detect the antibodies using ELISA testing to properly diagnose them.

I suffered 2 years with relapse and return of my meningitis symptoms, slowly becoming sicker and debilitated as time passed.
After a year of testing and treatment and other symptoms that began to eventually surface my primary relented and refered me to a rhematologist suspecting an autoimmune reaction. However, because the doctors here could not detect antibodies in my blood to formally diagnose me with a proper autoimmune diagnosis I went another year with no treatment until I developed muscle degeneration to the point that protein was leaking from my muscles into my blood and injuring my kidneys causing blood to be released into my urine. Then the surmised that I suffered from autoimmune myositis but still were not agressive in treating it.

Finally, 2 years and $8000 later with no treatment or answers I traveled to India for evaluation and possible treatement there and was quarranteened in hospital upon arrive when examination discovered a targeted discoid type suspicious rash they feared was lymes disease (which us a tick borne bacteria that exists only in the Americas and did not exist in India.) A limes disease test was negative but I was ANA positive. A rhematologist was called in who drew blood and tested it under immunofloresence himself that day and it was confirmed that I was ANA positive with over 20 antibodies in my blood that the ELISA test failed to find 3 months earlier. I was diagnosed with Sogrens and Mixed connective tissue disease but systemic lupus suspect because of targeted lessions, but since I was also positive for Sleroderma antibodies they diagnosis was reserved until 2 years later when I finally developed Lupus specific antibodies and atleast 10 other symptoms to officially give me that diagnosis.

I was eventually sent home on a treatment regime and after receiving it my relapses became futher apart but eight years now and much treatment later I unfortunately still suffer from neurogenic lupus symptoms resulting from meningitis exposure and my flares still follow the same pattern, attributed to a failure in my immune system to fail to recognize that menigitis had been irradicated so it permenately programmed itself thinking I was still infected and following the same process as it followed 8 years ago to irradicate the intial infection. I know my situation is a bit rare and most people who have VM eventally fully recover but it can and does happen I'm proof.

Posted on 08 July 2017

Comment by Robyn Jackson

Hi Tim.
I had Viral Meningitis of the brain in December 2010, when I was 11 years old. I still suffer with the effects of the illness nearly seven years later. I still get headaches and problems with my sight such as double vision, blurriness etc. It is worth going to your GP, then maybe they can refer you to the right people. That is what I have done and I have been seen by the right professionals.

Hope this helps.

Posted on 06 June 2017

Comment by Nathan Wear

I have been suffering through bouts of this dreaded illness for 20 years now.Luckily,its sometimes over 5 years before it hits again but it always does.And the fear and worry of getting an attack can be almost as debilatating as the VM.If I even get a small headache now I start freaking out.This virus has left some lasting mental scars on me.But since I have had to go through it about 6 times now.I have learned some tricks that help me with pain and getting rid of it asap.By no means am I a Dr. or am I prescibing this treatment to anyone.However,this is what works for me.I take "Ester C" to build my immune system up and "Olive Leaf extract" for any virus or infection.The Ester C you can find in the vitamin section at Wal Mart but the Olive Leaf Extract has to come from a health food store.The main thing that really helps me though a round of 35% food grade hydrogen peroxide.If you have never heard of internal peroxide treatments then just look it up on Google or Youtube.You just mix a few drops in distilled water and drink it 3 times a day.I suggest doing your research before u try it as with anything.For me it not only worked but helped remove some of the fear of the VM returning as I now have something to help me with it.I take Motrin for the pain as it seems to help more than anything else.I also just wanna say that I truly sympathize with each and every one of you that suffer with this illness.I never knew that there was a pain that existed that was as intense as VM.When your right in the middle of it,its hard to believe that you will ever feel normal again but trust me,you will.Keep your head up and stay strong.

Posted on 18 April 2017

Comment by Dawn

I cant believe doctors are not more aware of the symptoms of VM. Last Saturday, I felt exhausted. But thinking it was just a moment of exhaustion, I ran my normal 3 miles anyway. Something was telling me to slow down, but persistent on my fitness goals, I did not. Sunday I felt great...lots of energy and happy until I layed my five year old down and I was not body hurt. I could not sleep at all ...I kept twisting and turning from like nerve pains. .... Then Monday morning, I awoke around 8 am with a throbbing headache, similar to migraines I used to get in the years prior to taking a nightly baby aspirin (2004). I didnt think anything of it. My body was also a little sore, but I was thinking this was from exercise. By 10 am, the throbbing in my head was so very painful, I could not see, walk, or talk. My spine felt like it was on fire. I gathered my two kids, retrieved my car from the dealership and headed to the urgent care. By this time, I was in excruciating pain and not very logical. I thought I was going to die. They tested me for flu and both flu tests came back negative. I knew I did not have the flu. The sent me to the er because they suspected meningitis. Once I got to the ER, I explained my symptoms which were: Chills, Fever, extreme throbbing migraine, spine on fire, nauseous, pain in neck and head, rib cage sore, light sensitivity. The er followed their protocols: chest xray, drugs(toradal), more drugs(for nauseous), IV fluids, blood work, urine samples, and then returned. I told the doctor I was more comfortable like a 7/8 but could still feel my brain throbbing...the pressure. I insisted a CAT scan. This came back negative. by the time the Cat scan results were back, my pain had returned in full force. The doctor stopped by again and said they did not find anything and they were releasing me. He said I must be having a migraine. ...Was he serious...I should have demanded more tests...As a migraine survivor, I never had a combination of all of my symptoms . The medical care system is awful in the USA...period. I gathered my belongings, and went home to my kiddos and jumped in the bed. I literally did not leave my bed until Wednesday I called my regular doctor and went in for an appointment. I waited there for one hour in a room only to be told I have viral meningitis and there is nothing more they could do. I had to go home and rest. . ...I went home and crawled in my bed and I have been in my bed for 8 days. I am not sure when it is okay to return to work...or at least to try to return to work. I am not sure how long my head will feel pressure. My spine, bones, and neck pain is gone. I no longer have chills or fever, the only symptom I have left is exhaustion and a slight headache (pressure ache....I am happy I found this site...It is very informative and I hope to recover from this soon.

Posted on 15 September 2016

Comment by John Nevin

I had Viral when I was a senior at UF. It was not plesent. It took nearly a year or more for my headache, backache, etc to go away. I was happy it was not Bacterial, although I wonder if at least I would have felt it was destroyed with the Anti Biotics. The key for you is to keep a daily journal, icluding pain, what you eat, what you do excercise, everything that could cause issues. You may then realize there may be another cause to your headaches? Good luck and remember you are your own best doctor.

Posted on 06 September 2016

Comment by Steph

I was diagnosed with VM my junior year of college. It started out with a few days of a terrible migraine, but I've always had them so I didn't pay any attention to it. One night, I literally could not move from my bed-my headache was excruciating and I was unable to move my head or neck. I was brought in to the ER that morning, but pretty quickly dismissed by a doctor. I knew something was wrong and kept coming back until a doctor finally looked over all of my symptoms and ordered a lumbar puncture. At the time of my discharge, I had lost hearing in my right ear and had pretty serious balance issues. My anxiety also skyrocketed, and I had chronic fatigue. The majority of my hearing has returned over the last two years, but I still feel off.

It is so refreshing to hear other people have gone through similar situations-every time someone hears I contracted Viral Meningitis, not Bacterial, they immediately dismiss me and my story because they are only aware of the dangers of the bacterial forms.

Posted on 22 August 2016

Comment by Julie Brooks

Who is the preeminent doctor or hospital in the world for viral meningitis? My nephew is in Okinawa, Japan and is gravely ill from parasite induced meningitis. He has extreme pain from the neck down if touched or even a breeze hits his skin. 12 days so far. Neurologists and infectionist disease doctors are at al loss. They are consulting with doctors around the world. Any of you know of best in the world?

Posted on 16 August 2016

Comment by Patrick White

I'm sure I set the record book having meningitis. Had it 3 times in 6 years. I was 15,18, 21. Couldn't take a vaccine for the one I had. Years have passed, now I am 47, I thank the doctors who kept me alive. Everyone that has had this, the struggles sometimes feel insurmountable. Keep pushing forward. You'll get through it!

Posted on 09 August 2016

Comment by Jayne

My husband has been diagnosed with viral meningitis and been in hospital for just over a week he is now home. He is in alot of pain with his shoulder and is on painkillers for this. The pain came while he was in hospital but not when he was first treated for it. Was just wondering if anyone else has had this pain and how long it lasted for? Thanks in advance

Posted on 05 July 2016

Comment by Colette

THANK GOD FOR ALL YOUR COMMENTS...its bringing tears to my eyes as the damn Doctors did not tell me how long I will suffer with After affects on Viral Meningites. I had it in June 2015 Dr thought it was Megrains but by November 2015 Diagnosed with VM. Lied in bed 3 Feb 2016 Hospitalized....2 weeks pains in my legs...suddenly high BP anxiety etc...another month in Bed...the the muscle crams /spasms started...June 2016 Hospitalized again...Had to do a USA trip and I cant even carry my baby...or walk 2 blocks or carry my hand bag and Ill get severe pain in my upper spinal Cord just below my neck....I cant even socialize with my caused so much fights leading to discussions of Divorce....I wish he would research the after affects...I cant even go through the whole day without needing to lay downs...I was a fitness instructor...lived very im weak...the muscle pains are so bad ...and Im on Beta Blockers...anti Anxiety meds least the Head aches went away....

Posted on 01 July 2016

Comment by Ali Bonner

I had a severe headache come out of nowhere April 2016 that made me extremely nauseated and unable to function. All I could do was lie down. About 3 hours later I felt a strange stuff pain in my neck that radiated into my shoulders. Went to bed. Next morning same headache and neck pain. I am a nurse so I was concerned that the neck pain meant meningitis. I ended up in the ER that day. CT scan was fine but spinal tap showed viral meningitis. So I stayed in the hospital for 2 nights receiving antibiotics in case the culture grew any bacteria. My headache never went away. Went home with severe headache and had to lie flat. I could only be upright for 10 minutes then I had to lie down. After 4 days of this I ended up back at the hospital for a blood patch to seal the leaking spinal fluid caused from my spinal tap they did in the ER. I felt TONS better within an hour of receiving the blood patch. I noticed that every day around noon or so I experienced a dull headache for about 2 weeks. Nothing that made me have to lie down...just annoying pain. And I was sooooo tired! I started exercising in the morning before the headache appeared every day. I also ate super healthy for 2 weeks in attempt to boost my immune system. I finally noticed no more afternoon headaches. It has now been 2 months since I had viral meningitis. I do notice a very strong pain sensation in my head when I bend over or if I am laying on my stomach and lift my head a certain way. I am not sure if maybe the meninges are still bruised and trying to heal. So be sure to get a blood patch (an epidural where an anesthesiologist injects your blood into the epidural...the blood seals the leak!)

Posted on 11 April 2016

Comment by Ryan rose

Ok first off let me say most of you would definitely know if you had viral meningitis. I got it when I was 13 I'm now 29. I remember being extremely sick with a pounding headache. It felt as if someone was smashing my head in with a sledge hammer. Everytime light would hit my eyes it was horrible pain. My grandmother to me to my dr and told her to take me to the er I was deathly sick. They did a spinal tap and it was postive for viral meningitis. Let me say I do not wish this on anyone.

Posted on 03 September 2015

Comment by fidelia

Wow, I have a lot to say. I got it,i was diagnosed years ago. Was devastated, slightly suicidal, worried about never having children or finding a partner. Who would want me with this? Anyway all I can say is that as time goes on the outbreaks get less and less,never knew i could be cured by this herbal doctor the longest I have gone without a outbreak is 2 months. I have even had a child, who is doing very fine as I got cured 4 years before he was born so he already had same cured to protect him. I have had two long term relationships, i told my sons father and he totally brushed it off, was not fazed or bothered at all! I was sooooooooooooo surprised(even though he turned out to be a total twat). He never caught it. By the time I met my second partner, I hadn't had any symptoms in a year. And throughout our two year relationship, I never got a outbreak. He never caught it. But I never told him I had it, I even went to the clinic, and they said why tell him! as I wasn't getting outbreaks. I told my sons father,just wish, you having same problems will follow the right path try laying down your problems to him here hes email

Posted on 27 August 2015

Comment by michelle

hello Debra ,I saw your symptoms,fever,sore limbs , stiff neck,headache,tearfulness,exhaustion.ive had these symptoms 3 times since May 2015 it seems to coincide with ladies time?

Posted on 27 August 2015

Comment by michellebrinded

hello, since May I've had three times,stiff neck,
Sore limbs, tearfulness,headache,exhaustion,
Being able to do nothing but sleep,though sometimes I think it coincides with ladies time?oh I haven't mentioned dripping sweats at night
I'm vegetarian and gave been for 30 yrs,I'm wondering if it's my rabbit food diet. Not sufficient enough for me?

Posted on 05 May 2015

Comment by Ashley C Michaels

HEY QUESTION HERE! Has anyone had viral symptoms(fever and vomiting esp) that came on suddenly, dissipated, and then returned? I feel like I'm over the hump but not sure...

Posted on 22 April 2015

Comment by Debra A. Francis

I posted on here almost 2 years ago. I still have the burning sensation in my lower & upper back, my underarms, my upper legs, my groin area, even in my mouth now. Soon after the burning starts my temperature goes up. Usually around 99.4. My normal temp is 97.4 so 99.4 is a couple of degrees for me. I feel very fatigued but I still work everyday, I run 2 or 3 days a week. I have had these symptoms off & on for 3 1/2 years since my hospital stay in Sept. 2011 when I was diagnosed with Viral Meningitis. Sometimes it is a few week in between but the symptoms always come back. I have had the symptoms now for last 3 days. I take Motrin or Tylenol, my temp. finally breaks 8 or 9 pm. Just wondering if anyone out there has had these symptoms as long as I've had them???? I see Neurologist once a year now. He refills my medicine & sends me on my way. No big deal. I sometimes wonder if this is coming back or is it permanent symptoms from having Viral Meningitis??? Please help if anyone else has anything similar. Thanks!

Posted on 05 March 2015

Comment by margaret

ok - forgot to ask this- i am still having spasms whch i notice when i lay down to go to bed - involuntary little twinges, my arms, hands or leg move without my intending it - anyone else experience this?

Posted on 26 January 2015

Comment by Jessica Robinson

I was diagnosed with viral meningitus in April 2013. At the time my baby was only 4 months old and sleepless nights were the norm so I found recovery very hard as I just couldn't get the rest (despite a very helpful partner and family). Initially getting out of bed felt like a huge achievement and I thought this meant I'd recovered..,how wrong I was! 8 months down the line I was still suffering migraines and mood swings so I was referred to neurology for further testing. After seeing a few different drs I was finding the whole ordeal soul destroying until eventually I met a dr who wanted to try me on beta blockers for a couple of months, she told me to completely cut out caffeine and paracetemol (they are the worst possible thing you can take for long term headaches apparently). Anyway I couldn't complete the 2 months course of beta blockers as I started to feel a bit spaced out but nevertheless they made a hell of a difference to my headaches. They gradually died off and I do very occasionally still get pain behind my eyes but migraines are no longer a weekly/daily occurrence. Just wanted to share as I haven't seen anyone mention beta blockers.

Posted on 19 January 2015

Comment by jadawn harrison

I'm so glad I'm not the only one I was diagnosed with viral meningitis in Aug 2014 literally 24 DAYS after I had a baby my VM was caused by West Nile (I was bitten by a mosquito) it was the worst pain of my life I was hospitalized for a week andi had a temp of 103, a bp of 189/110 and my sugar (I'm diabetic as well) was 389 I'm still sore the Dr refuse to give me anything for pain smh it hurts I'm so glad I'm not alone I hope they can find a cure soon

Posted on 12 January 2015

Comment by meghan

I had VM twice in1999 and dread that I may have it again. The second go round I was sent home with a shot for head pain and told to rest the first time I was hospitalized for a week. Hoping its just a horrible migraine this time because the idea of having another spinal tap scares the crap out of me. If youve had one you know how painful they are. After two bouts of VM I have no immune system...horrible migraines...vertigo..
And my doctors believe its what brought on my bipolar-disorder. You will never feel completely normal again but overtime you learn to adjust to it. Peace and continued healing to each of you.

Posted on 19 November 2014

Comment by Amy

I feel for anyone who has had this. I am in the slow recovery process.

I had a cellulitis infection in my right eye the first week in Oct. I went to insta care and placed on antibiotics. I started to feel better and by the weekend I went downhill. They dr had told me if it didn't get better to go to the Er that I may have needed more antibiotics.
I avoided going to the ER I waited another week off feeling crappy off and on. I started running fevers. The fevers got worse. Finally I decided I was in trouble when my faver was 105. Being a heart patient I was worried it was something else.
When I checked into the ER I didn't have a fever. When they were running tests and X-rays when I came back from the X-ray, they checked my temp it was 105 again.
On a hunch the dr said he wanted to run a meningitis test.He was thinking it was pnemonia but he thought there was more going on.
They did the spinal tap test but they had to do it twice. I don't want to do that again EVER. i've had lots of medical procedures but that was TERRIBLE.
I was admitted anyway with the fevers and waited for the tests. The viral menigitis came back before I got a room. Dr was surprised but worried it was bacterial as I was so sick. I would have been in big trouble. i think they put me on every antibiotic possible.
I still continued to have fevers, horrible sweats to were I was soaked the sheets, my hair, etc. I didn't have so much the headaches or back pain till much later. Plus I was hurting all over. I was given morphine every 4hrs.
After about 3 days my fevers finally broke but I could not hear very well. Everything sounded far away and like I was underwater. They kept telling me it would go away. It was very annoying.
I was in a semi isolated room. Limited to visitors only my husband. But I had to have a mask to go have tests done. Till they knew if I had bacterial. By day 4 they figured it was just viral and started weening me of antibiotics. But kept the fluids going.I got this horrible pain in my neck and down my left shoulder. However it didn't last very long since I was on morphine. I couldn't explain it to the dr since I couldn't hear very well and still really week.
The fourth day I started feeling better and by day 5 they let me go home. I started a few more antibiotics at home and told not much about what to do after that.
I felt okay for few days but the pain in my left shoulder and neck were so bad they would wake me up at night.
I went to my reg dr and he gave me pain meds. I started fevers again but he thinks part of it might be from the pain. that's when they would spike again.
I also saw a neorogologist and they told me these were all normal part of the recovery. I have a couple muscle relaxers and pain meds. They help a little. I am getting another CT scan soon to check things and see where the pain is. The shoulder pain is really weird.
I am fascinated to hear others experiences and long term complications.

Posted on 11 August 2014

Comment by Paul V

I am glad I have read all of these comments so far. I am a 32 year old, who has just been diagnosed with viral meningitis. My story started 3 weeks ago when one day my neck felt stiff, I had headaches (especially behind the eyes), and fatigue; but no fevers yet. It took about another week for the fevers to show up. I would be low grade fevers during the day. I could function at work, but my headaches would not go away, I felt fatigued, and lost all appetite. Every night, however, I would spike 101-103 degree fevers and completely soak the bed. This cycle would continue another week and then I felt better a few days. I thought it was all over and then I got a nasty 103 degree fever one night and had a syncopal (pass out) episode. I nearly lost consciousness, and couldn't feel my hands/feet for about 3-4 minutes. I went to the ER, who ran just normal blood panel on me, wanted me to have pain meds for my headaches (I declined them) and sent me home. I went to my PCP 2 days later and described to her my symptoms and it was eventually confirmed. Going into week 4, I am still really fatigued by 6pm and feel like I want to go to bed by 7pm! It's insane! But luckily my headaches are not as intense, and my fevers are now only hitting 100-101. I am hoping I am on the mend. I am not looking forward to 6 months of recovery as described by others though. Hope you all get better!

Posted on 11 August 2014

Comment by Andrew N

Hello All. I had viral meningitis back in March 2014. I was hospitalized for a week. As everyone who has had this can attest, the pain was unbearable. The painkillers at the hospital helped but not much. I spent another three weeks at home in bed with a lot of pain, no appetite, no energy, etc. I was really frustrated and scared that I wasn't getting better. When I was first diagnosed, every doctor I met with said that I would be better in a few days. Then it was two weeks and I'd be 100% normal. Well, it took 5 months and I'm still not sure I'm completely over it. My summary is this:
1) Doctors need to be educated that while some people may recover in a few days, this is a serious illness that can last for weeks, months and years. They shouldn't tell patients that this is not a big deal and they will be over it in a few days. There is no telling how an individuals' body will respond to it. So if someone is taking months to get better, it's definitely "not in their head." Their body has been through a traumatic experience and the doctors need to understand that.
2) For people who aren't getting better after a few days or a few weeks, be patient! While it breaks my heart that some people are suffering many months or years after the inception of the illness, I slowly got better. It took at least four months to feel relatively normal. I still have headaches and twinges of pain in my head every day, but it's nothing like the initial pain. I'm able to exercise and enjoy life. But it has been a full 5 months to get here. So just try to get better every day and when it feels like you aren't making any progress, just hang in there and take it one day at a time.
God Bless!

Posted on 07 July 2014

Comment by Christine Houston

There is life after viral meningitis. Was hospitalised for it in 1983 as a newly wed, remained ill (headaches, neck pain) and so tired for about 6 months afterwards. The on-going after effects for me were migraine headaches, often accompanied by nausea and vomiting. Suffered (and the family on-looking) for years with debilitating headaches. Am towards end of my menstrual cycle now (which is the most accurate predictor of a migraine which you cannot avoid) and headaches lessening with a migraine preventer pill daily. My message: Enjoy your good days and sometimes weeks. Get regular sleep for longer periods (9 hrs) than "normals" , eat fresh vegetables and fruits, get moderate exercise, avoid the known migraine trigger foods, minimise stress even if you have to take pay cuts, find a sympathetic work place. Finally, remember the juice of life is about the quality of relationships you make and that you do the thing you came to earth to do. Love Christine

Posted on 24 June 2014

Comment by karen humphrey

I am busy recovering from viral meningitis. I had been having dizziness, nausea and very bad neck and head pain. I had a few trips to the doctor who didn't seem to know what was wrong. After about 2 weeks of pain I suddenly had no pain on the right side of my body and I felt like I was going to pass out. I went to the hospital but by the time we got there I was also unable to talk so was admitted straight away. I had x rays, ECG, CT scan and a lumber puncture and blood taken. I am not able to remember the first 12 hours there. I'm informed I was sick a lot and had a fever. After 2 days I was informed I had viral meningitis. I was in for 5 days when they released me with anti sickness and 2 different types of painkillers. I've been off work 3 weeks now and I'm due back wed. I cant afford any more time off and my husband is doing everything in the house and with the kids as I was sick the first week I got home and get tired very easy as well as have really bad headache and neck pain. I came on here to see how long this will last but it seems it could be a while which with how I've been feeling makes me want to cry! I just hope I can get it under control soon.

Posted on 17 June 2014

Comment by Andie Grube

I was diagnosed with viral meningitis my senior year in high school (2008). Every day since then I've had a headache. The intensity changes from day to day. I have had 4 MRIs, 2 eegs, 1 CT scan, 1 spinal tap, and more blood tests than I can count. I've seen 3 specialists, 3 doctors, and 1 chiropractor. I've been on more medicines including experimental ones that have left permanent damage. I refuse to go to doctors anymore. I got so many diagnoses like early Parkinson's, depression, anxiety, allergies, epilepsy, possible tumors, and even misaligned spine. I've done diet and exercise changes as well as sleep habit changes. I've tried excederin, essential oils, and ibuprofen for day to day relief. I adjust per the days needs. I have recently learned I have permanent lesions and damage in the social functioning section of my brain. This could be linked to the increase in my autistic signs and symptoms I've had my entire life. I've missed more of my life because of this than I care to think about. I've lost some of my memory. I've lost countless money and strength. I'm always fatigued and sore. I've also lost hope for a solution. No doctor knows. I always get "well it's great you survived." It's selfish but nice to know I'm not alone.

Posted on 02 June 2014

Comment by Clare Charnley

I had viral meningitis 2 years which took 4 months to feel like me ahain then 6 months ago encephalitis meningitis which is been a very difficult time for me he has left me with complex partial seizures but for the last 5 days I'm having the worst head aches when to doctors to get pain killers not stop should I go to hospital

Posted on 19 May 2014

Comment by Desley Barry

It is a relief to hear that others are having similar after-effects from viral meningitis. Thank you for your posts, because i have found that my doctors know very little about these after-effects. One even told me I must have 'just slept awkwardly'!
I had a serious bout of v meningitis in 2010 at the age of 38. I needed pain relief for 3 months, but it took a year for my brain to feel normal again.
The following year I had 2 bouts of the pain again, both requiring weeks of medication. The triggers were a set of vaccinations and then later that year a simple cold.
I hadn't had any pain for 2 years after that, but now 4 years on, I have migraine-like pain and fatigue, which came on suddenly after an exhausting long-haul flight - and some stress I think too.
So the pain is not nearly as bad this time, but it is forcing me to do very little. I find painkillers don't really help me. The medication that helped me in the past was Endep - a tricyclic anti-depressant. I am reluctant to go on this, this time because it does take a few days to kick in. Rest and time seem to be my best solutions.
Best wishes to all of my fellow sufferers. It's a comfort to know others understand.

Posted on 25 April 2014

Comment by Serish Majid

My 18 year old daughter was diagnosed with spinal meningitis in January 2014 and still today she is in hospital with not much improvement. I actually cannot believe it. Poor girl can’t walk yet but we are hoping to have her up and running soon. I can imagine as a parent how hard this must be for any parent. The NHS sent me home 3 times telling me she is mentally ill yet she had brain swelling, too much fluid in her brain which was the spinal meningitis - these days the doctors don't even look into anything - they must think we enjoy heading to A&E with just a headache. I knew my daughter wasn't right so took her to another hospital and boom - they caught it!!! I cannot believe it still today - I was told she wasn't going to make it and I’m so grateful to still have her with me. I really hope no one has to go through this as it is life threatening but treatable too. I just wanted to share my experience but please always remember only YOU KNOW YOUR CHILD.

Posted on 25 April 2014

Comment by Ivy pan

I got the above symptom and believe i had virual spinal meningitis. i did even go to hospital, the doc advised me there is virus in my body and give me some medicine. but i was still suffering back pain, felt thirsty, extremely fatigu. anyone know any medicine will be released the sympotm?

Posted on 24 April 2014

Comment by Lindell

Sorry you are All suffering. I think I had some unusual form of meningitis. I didn't realise at the time. I had been camping out in the bush in the middle of nowhere at a blockade/protest camp. One night I got incredibly sick with a fever and nausea etc, even diarrhea, the fever was extremely high and I began having something I can only describe as an electrical sensation type spasm running from the base of my spine up to my neck, which was stiff and painful. It went on for hours. When the sensation got to my neck each time I felt a jerk. I was in my tent and almost alone without a vehicle and I couldn't get up anyway. I thought I was going to die. It lasted the night. It was dark, I only had a torch. It was the strangest illness I've ever had and I still can't find a proper explanation of it, but the symptoms seem to relate to meningitis. I was ok after, just a bit wrecked and it took a few days to re orientate.Years before that I think I had septacemia, the effects of which lasted for a year or more, with lethargy and other flu like symptoms, but no meningitis it appeared. Herbal medicines helped a great deal. Chinese herbs have always helped. Nutrition based on properly fermented foods can fortify the gut, where many believe disease enters. Ive never heard of someone suffering recurrent bouts of meningitis before. I was looking for info for my daughter who is sick tonight. Unbelievable that you guys go through this so often and have had such a painful illness for so long with no real treatment. I suffer hormonal migraine a lot and I find it really difficult to cope with with five children. I can't imagine how you'd get through your day with something five times as painful day after day/frequently. Something is stuck deep down in your systems like herpes sticks and recurs. Herpes messes with your immune system and tricks it and then sits dormant in your cells and can reactivate at times of stress etc. there are many herpes types. I hope you all find a solution soon. From the accounts I've read here, it seems like some of your doctors are ill educated or even negligent.

Posted on 11 April 2014

Comment by Karrie Bork

I have some serious experience with viral meningitis. I am 42 and I have had it 8 times in the past 7 years. three of them in the past 12 months. I have done so much research that I feel I know more about it than the doctors. There is no cure, there is no stopping it. It is as if there are herpes on the brain. Just like a cold sore, viral meningitis can and will show up whenever it feels like it. It absolutely is not treatable, nor is it stoppable. The only thing to be done is deal with pain and go to bed. Many are left with countless residual aftereffects that will simply be part of your life. The unfortunate piece of this fun little puzzle is that not one doctor seems to know his butt from a hole in the ground about this issue. I have seen dozens of doctors and tried acupuncture, chiropractics, medications that nearly killed me, braces for headaches, a breast reduction, tens units,neuro feedback, a long expensive trip to St. Josephs for the one of three headache clinics in the US, herbal remedies, cranial sacral therapy, body talk, diet, extensive pain management classes, and finally and mostly prayer. Through this I have also had 5 pain management professionals call me a drug addict, and when I have the audacity to react they release me from care. I own two businesses and have two children and I am a active functioning member of society. However, without some sort of pain control or help I am now forced to close my business' and go on disability because I will now become bed ridden from the ongoing pain. I hate to be the bearer of bad news but our health care professionals suck, and think that they are god and chose to believe whatever they want instead of listening to their patients. I hope they all get it and I hope they all get treated like dirt!

Posted on 25 March 2014

Comment by maria casillas

I,m very sorry for everyone that is going through all this. I just found out my 22 year old son was diagnosed with viral meningitis in the back. Im in shock! Idk what to do right now! Again Im sorry for all this pain people have to exp . As soon as I know more about his situation I will post. May God help everyone thru this

Posted on 07 March 2014

Comment by keri

I give birth to my son and got viral meningitis two days later hospital experience was terrible they failed to do a lumbar puncture,left my newborn in the room with me for 10.days then discharged him .it wad only after the fact I'd learned I'd been given iv antibiotics for's been the worse time of my life dizziness joint aches,fatigue,mood swings ,headaches,burning a lot of you iv just been left to deal with it...iv ended up with PTSD and chronic anxiety 18months in and things are slowly ,very slowly improving ...headaches are less ....sometimes I don't know what's anxiety or post symptoms anymore

Posted on 07 February 2014

Comment by Lindsey king

I had viral meningitis in 2007, I stayed in hospital for a week. I've suffered from M.E, daily headaches and drop attacks (sudden falls to the ground without warning) since then. Has anyone else experienced symptoms like this for such a long period? I also seem to pick up every bug going around. I have never felt right after having this.
Would appreciate anyone's feedback.

Posted on 31 January 2014

Comment by AlysrianXian

This will be long. Forgive me if I forget some things to my story...

I recently gave birth on 1/13/14, to a wonderful baby boy (our third child), after a VERY difficult pregnancy. I had been having contractions for well over 2 months steadily (not that anyone cared about that!), and had developed SPD (Symphysis Pubis Disorder) so bad that I couldn't walk after the 7th month of pregnancy. It was absolutely terrible, and I KNEW that something was wrong with all those contractions! No one believed me, not even after begging for an induction (6 days before my due date) and multiple visits to the ER. (My MIL actually flew out from halfway across the country to take care of all of us while I couldn't walk and was having issues.)

Even though you are in active labor after 35 weeks, unless your water has broken and are considered in "active" labor (dilated more than a 3) - they won't do anything but monitor you. Wonderful. (My water kept breaking, but coming back a week or so later, and I never dilated more than a 1.5 on my own.) My delivery took forever. This was because the on call doctor wanted all three of us currently in the Labor and Delivery ward to be delivered around the same save herself time. I'm really not kidding, as THREE nurses told me this. I sat in active labor, with a VERY slow drip of oxytocin for over 16 hours...before they finally upped it to the proper levels for induction, and within minutes he was born (3 pushes, and his head was almost out by the time the doctor FINALLY came to see me).

After the delivery, my husband got the flu while we were in the hospital. We were only there 12 hrs post delivery, total time: 36 hours~. I pushed to be released early, and I didn't want to be in the hospital with nurses waking us up every 30 minutes (it was super irritating). Two days after giving birth, I felt like I had the flu and bronchitis, too. I figured it was because when getting induced I had the flu/bronchitis, epidural headache, induction headache, hormonal headache...or something else. Normal things that I had dealt with before. (I figured most likely epidural headache, as they had done it higher then normal and it took them a while to get the needle in)

I slept another day to recover, and woke up to light sensitivity and my vision randomly fading to black. Imagine one of those older types of TVs, when you turned it off - it would slowly fade out to off. That's how my vision was. I knew something wasn't right, as this blackout thing had never happened to me before. (During my pregnancy, I had the "floaters" but was told it was "normal")

I still chalked it up to "something is wrong", but after a call to the doctor - I was assured that this could happen post delivery after an epidural and induction. I was told to take it easy, and make sure to take the little man in for his bilirubin test. He wound up having it done SEVEN times, because the hospital didn't believe it was going down. He is completely fine, and a lot of people feel this was a way to milk money from my insurance since we were released early. The nurses even had the gall to say that I should stay longer, because my insurance covered "as long as needed"! No, thanks, I want to go home! Before you ask, his bili levels were ALWAYS normal and to finally stop the torturing I had to refuse treatment on his behalf.

By end of day 3, I had developed a very serious migraine, light sensitivity, nausea, neck pain that goes all the way down my back (to my butt), and for some reason my left foot hurts to flex it (still all of this occurs). I went in immediately to the ER, but was released with a "hormonal headache". I kid you not, they released me without any pain meds or treatment. The hospital didn't even flinch at my temperature, it was 104.2 at the time. They didn't even offer to move my room away from the communal bathroom, and allow me to turn off the light in my room. I flinched everytime the toilet would flush, or someone would talk to themselves in there, because it would echo! They did do an MRI, but everything came back normal, hence this was a hormonal headache in their eyes. So, I was released with a hormonal headache and told to take it easy, while still in immense pain.

The very next morning, after another horrible night, I did an emergency appointment with the same doctor (not my OB) I had called the day before. She had to examine me in an all black room, that's how bad it was. The nurse checked my BP, and it was 210/130! My bp is usually WAY low, but they didn't tell me what my BP was. Checked my temperature and it was 103.4! (All temps over 100 are high in my eyes, and should be taken seriously as they any temperature shows a sign of infection)

My doctor immediately called the ER while I was in the room., she told me she suspected preeclampsia but wanted to do a spinal tap to make sure. I don't really remember what all was said on the phone, but something to the extent of spinal tap immediately and get there now. I do know that she made sure they could do the spinal tap as soon as I was admitted, so I wouldn't have to wait. I immediately pulled my kids out of school and went to the ER.

Even though my doctor had previously called in, I still had to wait over two hours to even have my BP checked and no pain medication at all. (They put me in the same room attached to the public bathroom, yay!) So, I basically sat there in massive pain (more so then if I was at home waiting). and covering my eyes with the hoodie of my jacket. There wasn't even a sheet or pillow on the bed, and it took over 45 minutes just to be admitted.

After checking my BP, temp (temp was gone at this point), and vitals (was just told they were high, not what they were)...they tried to give me a spinal tap. After FIVE attempts to get the needle in (what is wrong with these doctors and needles?!), they sent me down to the spinal tap machine. The first FIVE spinal attempts, I felt. The spinal tap machine? I didn't feel a thing! It was the best spinal/epidural I had EVER gotten. (To this day, the spots where they TRIED to get the spinal in - still massively hurt all day long and PULSE with my heartbeat).

About an hour later, I was removed into the ICU. We were not told why. After only spending a total of two days with my newborn son, I was admitted into the hospital then and there. Due to the hospitals ban on children (flu season, go figure) children AND husband couldn't see me for the entire length of my stay.

Well, after about 3 days (can't remember much of what happened in the ICU/Medical Ward, or where my husband/kids went), my doctor (same one that sent me to the ER) informed me that not only did I have SEVERE Preeclampsia (which I have never had, nor had EVER been diagnosed with before) AND Viral Meningitis. I also had low Vit C, low Iron, and a slew of other things (it's a long list on my discharge paperwork).

We were even able to trace back my infection date back to my delivery date. One of the main nurses in my delivery room had bronchitis and wasn't wearing a mask...and that's ALL it takes. She was around me the entire time I was in the hospital, sick. She infected me with bronchitis and then after the just made it all the more easy to get into my spine. Way. To. Go. (I fully believe that hospitals are a breeding ground for germs now)

As per the severe preeclampsia, i t was actually the cause for all of those contractions I had been having. I was never tested for it during the entire length of my pregnancy. This is due to the fact that: I had never had it before with my prior pregnancies, I am 29 (not 35+), I am far from obese (only gained 7lbs the entire pregnancy, and weighed 127 at delivery), don't have diabetes or high BP (I am known for having LOW bp), don't have lupus/arthritis/kidney disease, wasn't a fertility issue (conceived naturally), and wasn't giving birth to twins. Thus I was not considered "at risk" for it.

I wast just released from the hospital on 1/25/14. They released me with only enough pain medication to last three days. BP, oxycodone (in the highest dose that is available), nausea, and stool softener medication. I will have to call and renew all of my prescriptions tomorrow. I still have the headaches, nausea, random high BP (I had to buy my own monitor from Walmart), light sensitivity, haven't gone #2 since 1/16 (AFTER my son was born), can't eat very well (I'm hungry but for some reason can't eat solids?), and god forbid I even clean a little bit...I might pass out.

My husband currently has me isolated in our bedroom. He won't let me near the baby (I could kill him). The kids and my husband can't even come near me without a mask and gloves. (Also available at Walmart) And even after all of this: I am still contagious until 2/3/14, and nothing has changed since I was first diagnosed. Wow.

All in all, after my experience, I do NOT trust hospitals OR doctors (besides the one doctor that sent me to the ER and treated me while in the hospital). They made my son take SEVEN unneeded bilirubin tests (due to my being early released), they didn't diagnose me the FIRST time I admitted myself, I got infected IN the hospital while delivering!, I was never diagnosed with preeclampsia, and I am STILL so infectious that I can't be around my newborn. Let's not even get into the fact that for the 9 days I was in the hospital, I wasn't even allowed to see my husband, let alone my children!

This has been devastating for my family. My husband might lose his job because of all of the time he has taken off of work (they don't offer paternity leave, only maternity leave - talk about sexist!). My newborn has no idea who I am, and my older two children keep missing school. Let's not even talk about how my pain STILL has not gone away! Don't even get me started on how EVERYDAY (except two days?) since my delivery, I have been in the hospital SINCE his birth!! I feel like I live there now!

Let's not even forget this: I will not know I am completely over the post partum severe preeclampsia or the meningitis until BOTH are gone. Both of them have the same EXACT symptoms (minus the spinal tap), and both of them have no "cure". You get over both naturally, and both have the same exact problems (ie: headache, etc). So, now, I am in a waiting game. I have another appointment on 1/31/14 to see if I still need the continued use of my BP medication, but that is all. Apparently, all I can do is lay in bed to get better and avoid the hell out of my kids.

All of this could have been avoided if I had been diagnosed while pregnant for the severe preeclampsia and if I had been diagnosed the FIRST time I was admitted into the ER (or if that nurse had worn a face mask!). But, hey, I guess us normal humans know NOTHING about our bodies...right? Just another reason to hate hospitals.

Posted on 16 January 2014

Comment by Charlotte Stacey

Hi I have had viral menigitis 4x each time is a long recovery and no one ever as answers as to why all I can say is after my own research if you have at east problem and over growth in rare occasions this can cause viral menigitis as yeast destroys your immunity sugar feeds yeast and helps it grow therefore cutting out sugar and reigned carbs eating everything natural is very boring but unfortunately the way foward and it's what's helped !

Posted on 14 January 2014

Comment by Eileen Sagan

I was so glad to read the many comments concerning spiral meningitis. I was admitted to the hospital 1-1-14 and released 1-4-14. The doctor here acted like I was all better and ready to return to initial research seemed to confirm that fact. My primary care doctor did say that it could take a while longer. I was concerned that today 11days later I still feel lousy.; slight headache, body aches, sad, and so very tired and still as I call it foggy brained. After reading the many comments I see this is normal and I will. Get better

Posted on 08 January 2014

Comment by Jon C

Hi everyone,

I am a 27 year old male, and when I was 25 I randomly started having severe head pressure headaches on the left side of my head. I though i would go away after a few days, but they never did. I had some type of blister on my finger and I popped it, not thinking that it could have been a virus or bacteria/fungus and what do I do? I not knowingly itch my nostril with the same finger that was contaminated and sneezed. Ever since this occurrence and situation, it was 12 hours after that I started getting headaches.

I did see an ENT, and he said you very well may have viral meningitis, but in order to know, we have to do a spinal tap, which I declined to do because I was in school and did not want anymore headaches or issues. The pain kept being consistent, I felt as if I had consistent head pressure 24/7 that would not go away.

Fast forward 2 years down the road, I some how finished a graduate masters program, probably went to the doctor or hospital atleast 10 times because the pain was so bad.

However, just recently I was still having issues even 2 years after this situation occurred, as my head was still bloated and had pressure on just the left side. I did a bit of research and came to find out that I might have found a remedy to solve viral encephalitis and take away the pain and issues in your here, as I tried these remedies myself and it has really made a huge difference.

Viral meningitis gets to your head through the blood stream, which there is only so many ways that can happen, such as through your nose, eyes, and mouth/air force etc. You have probably heard of sinus issues or sinus headaches. Now what most people do not know or many do not know, is that we have fluid/liquid build up in your head, from various reasons such as climate change etc. When that virus enters your system, it gets stuck in the liquid. And, if you never drain the lymphatic liquid in your head, it will always stay there. Also the virus also can effect nerves in the head.

Here is the solution:

Drain the liquid that is built up in your head, and you will feel much better. Now draining liquid is a slow process, so it has to be done consistently every day and you will gradually start to see some positive chances. You can drain the liquid yourself very easily actually, which I was surprised, as I did some more research. I will leave some links to videos, in which demonstrates how to drain the liquid that causes pressure builds up in your head/sinus. Secondly, some of the head pressures and feelings you are having are from nerves, if you activate or stimulate these nerves, many times that is what it needs create blood flow and release the virus and also drain. You do this by using your tip of your fingers and applying pressure on the area that you feel is causing pressure and hold it for 10 seconds on and off, until you see some changes or release of some of the pressure.

Here are the videos below that you take a look that I found very helpful in draining your fluid pressure build up in your head/sinuses.

Let me know, if anyone finds it helps, or any comments would be great! This is has been a year situation where I had extreme had pains, I would not wish this on anyone, as it was terrible, but I found this has essentially taken away most of the head issues. it is not perfect, but it is a lot better then what it use to be.

Posted on 05 December 2013

Comment by Racheal lowes

I had never even heard of meningitis until I got viral meningitis last yr I had been feeling like I had the flu and migraine for two weeks .i got up and went to work within my first two hours at work i started having trouble keeping my eyes open because of the light I pushed through another hour intending to get to my 4 hour break when I started to stagger a bit while walking so went to my break early and took 4 Panadol my husband who works with me and mother grew concerned when they seen me crying and I wasn't able to talk well slurring my words my husband took me home though my mum said take me to hospital when we got home I needed assistance getting inside to bed I layed dawn and started shaking and vomiting throth so he took me to hospital the nurses said I was dehydrated and put me on a drip by then I couldn't look at light and kept moaning head hurts so they gave me morphine. then I started losing consciousness .an ambulance came to pick up the guy in the bed next to me and take him to a bigger hospital when they spotted me semi conscious clutching my head groaning they asked the nurses what was wrong with me nurse said I was dehydrated and the ambulance person said they should give me something for the pain the nurse said they did so the driver came over to check me he flashed a light in my eyes and said we are taking her first they thought I had a head injury i was so cold I couldn't stop shivering but wasn't allowed a blanket cause my temp was too high andmoving me was making me sick again though I hadn't eaten in the last 2 days .i only remember regaining consciousness twice more while they were putting me in a head scan machine and a needle in my spine. I woke up two days later a doctor told me I was going to isolation I had developed a small dotted red rash over my legs they thought I had meningacocIe .i spent three days in isolation until they found out it wasn't meninjacocle in that time I couldn't eat walk or go toilet without assistance and spent most of my days sleeping or lying in the dark feeling like my head was exploding.on my fifth or sixth day I was put in a communal room where I could now walk on my own and talk though I kept repeating myself. after another two nights the doctor let my children come and visit me and later that day I went home I spent a month at home recovering while my headaches eased then returned to work. I am now close to my old self though my memory isn't great and my headaches though mostly mild are pretty much daily and I keep being told by people to get my hearing checked and have been sick on and off since then with viruses ,infections ,low vitamins etc.i had the menangitis April last yr I was 24 now 25 and pray that I don't get it again though I tended to get ill often before I had it I had alwready had septicemia twice as well as a million other illnesses and once released from hospital was not given a checkup or follow on appointment and my doctor said there were no long lasting effects of viral menangitus

Posted on 19 November 2013

Comment by K Madsen

I was admitted to the hospital on September 4, 2013, finding out a few hours later I had Viral Spinal Menengitis. I was very sick several days before my husband and I decided I needed to go to the emergency room. It started with a rapid onset of a fever of 103.6, chills, pounding head ache, eye pain, neck pain, nausea & vomiting.
I have never felt such intense pain, or been so sick. I stayed in the hospital for 6 days. I was only dis-charged as they said I had Viral not Bacterial.
Its been 2 1/2 months, and I still have terrible head, neck and back pain. Thankfully, the nausea and genel feeling of "sickness" has gone away. I do struggle with fatigue, not being able to sleep at night and the feeling of No desire to do anything. Anxiety & depression. A week after I was home, I went to see my regular Doc because I felt so bad I didn't think I should of been dis-charged from the hospital. She told me that I also had the West Nile Virus. Apparently, not all of my test results had come back before they sent me home.
My neighbor had Meningitis over a year ago, and she still has various symptoms.
Her immune system is much better than mine, I catch everything! So I am very concerned about all the after effects and how long I could have all these symptoms. From what I have read, it affects everyone differently, and recovery time varies. I have seen many Doctors including a Naturopath as well. I have even had acupuncture, and anti-inflammatory / Steroid injections in the base of my head, neck & back.
As someone else said, "I'm sick & tired of being sick & tired"!!!
I hope everyone starts to feel better soon, and for those that have recovered, Thank You for sharing! And stay healthy!!!

Posted on 19 November 2013

Comment by Don Fielding

Many viral diseases have been cured by administration of high dose vitamin C both intravenously and orally with liposome encapsulated vitamin C. Read "Primal Panacea" and "Curing the Incurable" by Thomas E Levy, MD, JD. DR. Levy is well
known for his advocacy of vitamin C in the treatment and curing of many illnesses.
Another physician suggested that doctors who ignore the documented proof of the efficacy of vitamin C in the treatment of numerous diseases could be guilty of malpractice.
The evidence is there in Dr. Levy's. books, it is
up to individuals to use the information to their benefit.

Posted on 17 November 2013

Comment by maria einig

debra francis really touched my heart. i can only imagine what you r going through. i too have had similar and other strange but mild symptoms lile these. my spine aches and the tiredness is overwhelming but i just listen to my body and get alot of sleep at night but no answer from drs. but i have been watching and mr.kaufman has done alot of research on these symptoms and even cancer and he says most cases r fungal infections in the body and blood which debilitate our bodies. now after doing my own research i found this factual. now mr.kaufman suggest to ask your drs. for diflucan in small doses for a goid month or two and to cut out surgers and white foods that feed the parasites(which is fungus) in our bodies. that is why they thrive. but if we cut out these things the parasites thrive on they will starve and die. when i have tried the diet a year ago i lost a little weight and felt better had less episodes but i went back and now this very moment i am experiencing neck and back pain very tired. i did ask my dr. to give me difflucan and two drs. said no. drs. r not educated on fungus symptoms. just antibiotics but antibiotics increase the yeast in our bodies. do r research and i hope this helps anyone out there.

Posted on 29 October 2013

Comment by Glenda Johnsom

Like Vickie, I have had viral meningitis three times. I am so glad I located this site, I was beginning to think I was the only person to have this three times. I saw an infectious disease doctor last week and will get results next week. However, in the process of seeing several doctors, I also discovered I have neck arthritis. I have taken longer to get my strength back this last time. I am very thankful I have not experienced the pain several of you have afterwards. Bed rest and not over doing it is the key. We will all be just fine. Let's keep the Faith.

Posted on 26 September 2013

Comment by Linda Goulder

I feel so much for everyone experiencing this debilitating illness. Has anyone tried Liposome vitamin c ? I have used high doses of vitamin c for many years for serious illnesses in my family alongside traditional medications and have found there is no illness that doesn't respond extremely well to it, particularly now there is Liposome forms of vitamin c available which is equivalent to IV . It is perfectly safe, restores Adremal function, and helps the body to repair the damage from the virus. Check out Thomas Levy online for his work wirh Meningitis and vitamin c. You can watch a U tube story on Lypospheric c curing a man in New Zealand who was on life support with Sars virus.Watch it, you will be inspired to give it a go.!

Posted on 19 September 2013

Comment by Chantelle lutten

Hi ive had a few very rough days especially last night with stiff sore neck and aching body nausea and disziness fever extreme headache it felt like my head was going to explode and i just wanted to die it was so painful , i had a dislike to light eg computer screen, wall lamp i had grown very very lethargic i found it hard to speak my 9 yr old son was so worried he didnt leave my side all night he even prayed for me. Is it menigitis l? went to doctor today reluctantly she doesnt help much with anything we go to her for. she said its the flu go home rest.Today i have less of a headache and sore neck and energy to talk and walk, is it possible to get well on own if it is meningitis?

Posted on 18 September 2013

Comment by Amber M

I was hospitalized in September 2012 for Viral Spinal Meningitis. It has been over a year and I am still having a lot of issues. I have had a total of 7 spinal taps done, seen a Disease Specialist, MRI, Cat Scan and still I sit with a lot of questions and a lot of pain. My spine kills me all the time I feel like my Tailbone is going to puncture right through from all the pain. I was in the hospital for 4 days had long lasting fevers at home after and I started to have seizures in my sleep. I wish their was something out there that could help. I am sick and tired of being SICK and Hurting. I am a single mother of 4 and I don't have time for this to keep effecting my life. I was told by my Dr it can take weeks, months, years to never fully recovering from this. How can I go on with all this pain? Needless to say I have a Dr appointment again this Friday to see what we will do next. Best wishes to all that are fighting this horrible meningitis.

Posted on 02 September 2013

Comment by Stephanie

I recently spent a week in the hospital for viral meningitis. I am so glad to come across this site. I see that I am not alone in how I feel. This has been tough on me as I have always been an active person in work and personal life....but not since getting sick in July. I am I know that at my age it will take longer to feel better...but how long does the headaches last and the tiredness. I started this week on vitamin B12 and a multi-vitamin....I can not seem to work no longer than 2 to 3 hours a day...and I am exhausted! I feel the depression coming on and I will ask for a anti-depressant. The one question that I wish a doctor would explain is ....why do we all feel completely different? Why did the person we were before meningitis is gone? I have lost interest in things that I loved prior to sickness. I have also noticed that I am different and not sure that I like this at all. Anyone else feel like that?

Posted on 30 August 2013

Comment by Dina Adraskela

Hi my name is Dina. I am 24 and this was my worst summer ever. End of May, first days of June I was sick. I had terrible headaches, pain behind the eyes, pain on my neck, the one you cannot bend forward or backward, photophobia, sleepiness and anorexia, fever, symptoms of general sickness. I was alone with my kid, I actually fainted once but I was home alone, so I didn't go to the hospital. Anyway, everything went painfully away in 10 days, and life was back to normal for a week. After that, terrible dizziness came up, a week later, extreme fatigue, nausea, tiredness and consequently panic attacks hit me cause i didn't know what is wrong with me, no doctors could help me for 3 months, all GP kept telling it was a virus, they couldn't find it, or it was a heart problem, which the cardiologist said there was no chance. Finally, after I found out by myself that I had the symptoms of meningitis, I went to the neurologist to get his opinion and he confirmed that it most possibly was meningitis, and i am experiencing the after effects. Now I am on week 12 or so, the extreme fatigue has almost passed, of course I haven't tried something very exhausting yet, I still have some neck stiffness, not pain exactly, mild dizziness quite often, sometimes my toes tremble or I experience muschle tingling, the headaches are milder, I am often moody, or I feel like I am not myself. I now wait for the brain MRI to check out if there was any scars after the meningitis. I hope there will not be any long term after effects. Does someone experience real problems, constant ones, after the six month period? I read that 90% is all ok after six months

Posted on 21 August 2013

Comment by johnathan polis

i was born with spinal meningitis i have no problems and im 16 there is a chance of recovering

Posted on 17 July 2013

Comment by Debra A. Francis

I posted about my viral meningitis on July 3, 2013. No one has responded. Please if there is anyone out there that have had symptons such as mine, especially the burning in my back, legs & arms, please comment. Would like to know if there is anyone out there that has had this long as I, 22 months. Thank you!

Posted on 03 July 2013

Comment by Debra A. Francis

I am sorry - I meant I went in the hospital on Sept. 22, 2011. Started running temperature on Sept. 3, 2011. My story below. Thanks

Posted on 03 July 2013

Comment by Debra A. Francis

I am still experiencing symptons from Viral Meningitis. I run high fever for 3 weeks and doctor's could not figure out what was wrong with me. I was admitted to the hospital on June 22, 2011 and spinal tap came back positive for meningitis on Sept. 23, 2011. Spent 8 days in the hospital, the Friday I left the hospital I had 103.1 temperature by 3:oo that afternoon. I have had a total of 7 needles in my back. The numbers have went down each time, but not back to normal. I still run fever (most of the time low grade), sometimes it goes up higher if I don't catch it in time & take something. My back, legs and arms burn constantly. When the burning gets bad then the fever goes up. This is usally late afternoon. This has been going on for 22 months. I just don't get why this won't go away. I work everyday, I run, I take vitamins and don't let it stop me from my life anymore, but no one can tell me why the symptoms will not go away. The infections disease dr. told me I would get better 10% a week, so I should have been well in 2 1/2 months and it is going on 2 years. Anyone else out there experience the same? Please help!

Posted on 28 June 2013

Comment by Vickie White

Viral meningitis is a serious illness and I believe if I was not hospitalized each time, I would die from the pain in my head and the fever. Are there any new medications or research projects going on for this horrible disease? I would volunteer for research! I have had it 3 times and each time is worse.

Posted on 24 June 2013

Comment by Vickie White

While on vacation in June of this year,I contracted viral spnal meningitis for the 3rd time. Each time it gets worse and takes longer to recover. he first time I had it was in 1992, then in Sept. 2012 and June 8, 2013. My spinal fluid was cultured and it is the herpes type. I have never had a cold sore or genital herpes so not sure how I keep getting it. The pain is so intense that I pray to die! I usually stay in the hospital for 4 to 5 days on antibiotics and ntivirals plus high doses of pain medication. I am still not feeling myself, very tired, irritable, not sleeping well, back pain, muscle aches. My doctor is sending me to an Infectious Disease Specialist at a very good hospital in Birmingham, Alabama. I hope there is something that can be done for these flare ups at least to control the frequency of the meningitis. So glad that I am not the only one that has had this horrible thing more than once. I was told it is rare to have it more than once but must not be true! Good luck to all of you that have this thing, find a good doctor and hospital, people that take it seriously! Vickie

Posted on 13 June 2013

Comment by Ricki Aberle

I have had meningitis for 9 months now. They have cultured my spinal fluid but every test comes back negative. They cannot determine if it's viral or bacterial and have been told I have an "unusual presentation."
Am still getting headaches, fever, chills and neck/back aches once or twice a week for about 2 days each time. Biggest deterent to the "episodes" is getting adequate rest, for me this is now 10 hours a night.
Has anyone been diagnosed with an unusual cause for his / her meningitis? We are running out of tests. Thank you. Hope all improve.

Does anyone

Posted on 31 May 2013

Comment by Priestley Zuo

I'm Priestley I'm 16 years of age for all I know is I had viral meningitis since I was in Africa I was really sick throwing up middle of my head hurts eye dry neck hurts was not feeling like drinking or eating parents used to force me they found me in the back of our house in Africa laying on the floor in my throw up .
Then 3yrs ago in Philadelphia ,pa same thing happen I was in my room for three days throwing up didn't noe wat it was I was burning up eye dry lost of balance dizzy went to the hospital they pumped some water in my Vain stay 4hrs in the ER said I had meningitis and I was blessed . Now today I woked up dizzy don't want to eat throat dry head neck hurts eye dry I'm burning up but I don't want to go to the hospital I want to be immune to it I read it article say sleepiness and its hard to wake up and I'm sleepy can it kill you in your sleep I really need to know

Posted on 22 May 2013

Comment by Stephen

I had viral meningitis 2 months back. I admitted hospital 3 times. Lp done 5 times. Not able to access and get the fluid by dr. Subsequently, I refused for spinal tap.

I had dull head pain and spinal pain always. It triggered severe pain when i exhausted , playing, drinking alcohol.

So drink lot of water, rest , vitamin . Make yourself slow
Don t try to be how you were previously
Need to sacrifice
Till fully recover

Posted on 10 May 2013

Comment by mary

My son, who lives in the USA, is to be discharged from hospital in Santa Fe on monday. He was admitted with spinal viral meningitis. I'm worried to say the least, about his recovery, and what might be lingering symptoms. Ive read through the posts on this site. Does not look good. i.e irritability, memory loss, ongoing pain, muscle twitching, double vision, fever, fatigue.,

Do the symptoms reduce with time.


Posted on 16 April 2013

Comment by heather coon

I contracted viral meningitis 8 months ago.(age 46) Was in hospital for 5 days, was given antivirals and released. I remained horribly ill for 3 months and barely able to get out of bed. I lost over 30 pounds and lost most of my muscle tone.
I had no desire to eat but could force myself to drink. I had a lot of confusion and memory loss.
My coordination was really bad, as was my cognitive skills and thinking. I am now 8 months past and I still have days when I get the headache in brain stem area, fatigue, nausea and coordination issues. No back pain or light sensitivity though. Does anyone know if this ever goes away completely?
I get so angry when I read that I should have completely recovered in 5-10 days ! MRI was normal.
Would love to know if anyone else has the same issues ?????

Posted on 07 March 2013

Comment by Brandy Smith

At the age of 29 I was diagnosed with Meningitis. I am a LPN and the symptoms started at work. Vomiting, headache and stiff neck. After being told by a local ER MD that it was just a pulled muscle I reluctantly went home. The next day I went to a different hospital and demanded a Lumbar Puncture. I was in the worst pain ever. The results showed borderline bacterial meningitis. Spent the night and returned home. I was in bed for a month with severe headaches. I still have numbness in my upper left thigh. I ate pain pills every 4 hours and slept the entire time. I am now 35 y/o and still have symptoms. I take something for a headache daily. The neck pain is now dull. I walk around with my head slightly tilted backward. It is more comfortable this way. I have times when its hard to finish a sentence or remember what I was going to say. All in all I am doing well. Sometimes I have what we call a "meningitis flare up". This is where the headache is severe and with vomiting. I must stay in bed! It usually only lasts a day. But, the next few days I feel like I have a hangover. At times I feel like my brain is "off". Just thankful I can tell my story!

Posted on 15 February 2013

Comment by margaret d. kelly

I had viral spinal mengitius when i was 9 1/2 to 10 way back in 1958, let me tell you its an adventure. i still have great memory losses, i get very tired easily and often start my sentancesin miud thought, as my brain races along with all these thoughts .
i spent 6 months in three different hospitals just figuring it out, had spinal taps three times a week and finally they injected air in my brain. I did recover, took overtwo years to do so, but I finished school and two years of college. married have three grown children and a wonderful husband.hang in there. it shouldget better. they have anew system of drugs to combatt this illness.

Posted on 19 December 2012

Comment by Valerie

Hi, I have just been discharged from hospital I was diagnosed with Viral meningitis on 16th November after experiencing severe head pain. I was re admitted a week after being discharged, with continued head ache, sore ear and throat, reactive lymph nodes over (over 5cm each on the left side) Eye pain. they said the second Lumbar puncture was clear. I am tired all the time, head still aches I still get searing pain behind left eye, and my temperament is irritable and frustrated. I'm glad I found this site to see i'm not alone, I wanted to see what the after effects were as Dr's don't really know, I plan on getting right with Vitamins, Probiotics, Manuca Honey and Aloe Vera, I let you know how it works out. Good health to you all val

Posted on 02 December 2012

Comment by Tina Haley

I had viral meningitis in '07, and again this past week. The first time it took a good 6-7 months to feel complete again. Sleep all you can, and eat as healthy as possible.
Until this 2nd time, I did not know they could grow a culture to help determine the root cause of it. There are many different factors.. My advice is, when told it is positive, HAVE them grow the culture. I want to know where & what is causing this. I think it effects everyone a little different, but the extreme fatigue and pain do eventually end. Good health to all.

Posted on 23 November 2012

Comment by KATE GOLIN

I woke on 11-3-12 only able to see white, could not remember the president, my birthday, my children, ran over 102degree fever, was given a spinal tap, the fluid was cloudy. I came around 18 hours later and did remember my life, except for the last 18 hours. I was told after 5 days in Isolation I had Spinal Meningitis. I was given intravenous antibiotics for another 10 days. I still have severe headache, neck pain and lower back pain, today I I had a moment that I was unable to vocalize my thoughts for about 1 moment and tingling in my hand 15 minutes later. I have gone to neurologist for this before, usually I have an aura in my eye that turns part of my vision silver, today I did not have that symptom, but did have the other 2. I had and MRI 2 days after being admitted to hosp, also had brain EKG and brain scan, all normal. My Neurologist has ordered an MRA, asap. Has anyone had these symptoms from a Lumbar Puncture?

Posted on 20 November 2012

Comment by amber new mexico

I have been fighting viral spinal meningitis for 11 weeks now. Went in for MRI today everything looked normal. I have another lumbar puncture on Nov 29th. This has got to be the worst most painful thing I have ever gone through. Lots of spinal pain, head achez, fevers, hard time eating or drinking. How long does this stuff last????

Posted on 09 November 2012

Comment by Shynette L. Grace

I had spinal meningitis when I was about 5-7 . I am now 32 and I have bad migraines & seizures along with bad back & body aches....I don't know what to do about it but I know it's connected somehow....

Posted on 10 October 2012

Comment by Monica Randall

My son, 8, had viral meningitis in May (5 months ago.) He still complains of generalized body aches, fever-like feelings (without a real fever) and back pain, and maybe depression. I took him to the doctor and she said he just seems tired. It seems extreme to me and it is exhausting to motivate him to do anything. What should I do? Is this after effects, because nobody warned me of lingering symptoms? Should I increase his vitamins? Which ones? Thanks for any input.

Posted on 13 September 2012

Comment by Johnny

Missy, the good news is that your headaches will subside over time. Your symptoms are perfectly normal for someone who has suffered a Head injury. Headaches will come and go in various guises. You must not set yourself up to fail by doing too much. Pace yourself instead of trying too much too soon. I've been there!!

Posted on 05 September 2012

Comment by Missy

Hi. I am 42 and I was diagnosed with viral meningitis this Aug. At first I experienced a lot of balance issues, double vision and fatigue. I am doing much better now even though I still get tired easily. However I have this feeling of being under the influence ALL the time. It's like Im on my 2nd glass of wine. Not drunk but definitely tipsy. I feel spacy and I was wondering if anyone else has experienced this. Also I have noticed I don't have a lot of patience and get frustrated quickly. Does this sound familiar to anyone.

Posted on 25 June 2012

Comment by Kitty Crosby

i had viral meningitis 1 yr ago. i was in a coma for 2 weeks.i have terrible balance issues especially if i get tired, and could sleep 14 hours a day. Sciatica on both sides and muscle twitching. No ability to maintain or shift my balance and of course memory issues. Can this last forever? it has been miserable and such a long year but i am so fortunate it isn't worse.

Posted on 29 May 2012

Comment by Lynne Prettyman

My 20 year old had viral meningitis one month ago. She was fine after two weeks. She is now suffering from fevers, chills. I think it is connected. Her fever is up and down. After reading your posts, I am convinced. I will start her on vitamin and natural immune support therapy.

Posted on 26 March 2012

Comment by Hannah Palamara

Hi I had viral meningitis back in December I was in hospital a week having anti virals and antibiotics it was very frightening i was seriusly ill when i was admitted and since coming out recovery has been slow. My headaches have subsided but i still suffer with dizziness but I contracted reactive arthritis in most of my joints a few weeks after leaving hospital and have been having weekly physio to help deal with the pain. What I have found most helpful has been taking a large number of vitamins to help get my system and my immune system back on track when I stopped taking them for a week I immediately became sick for a month with colds and virus'. I take vitamin c 1000mg B complex a multi vitamin, fish oils, probiotics, Aloe Vera juice all twice a day apart from the multi vitamin which is once a day these were prescribed by my doctor. It's still a struggle at times as I have 2 young children and am exhausted most of the time but my doctor told me it could take up to 6 months to a year to be back to normal so just trying to be patient. Hope that helps good luck to you

Posted on 16 March 2012

Comment by Andy Maclean

I have just been discharged (last week) from hospital after Viral Meningitis - head pain comes and goes as does eye pain and sensitivity to light (sunglasses needed when outside whatever the weather). Pretty much wiped out every day and now have Viral Enteritis - GP thinks it is connected... Also began to notice some back pain today..

Posted on 02 March 2012

Comment by Steve Young

Hi Tim
I had viral meningitis in January (brain not back) and I am still suffering quite a bit from various aches and pains. I have found that regular paracetamol does help but the severe pains have gradually subsided over time (I am a bit older as well). I have been told this can happen for months. Is there anything you can pinpoint you do before the pain comes that you may be able to change?
Keep your chin up and I hope you fell better soon

What do you think? Join the discussion

Fields marked * are mandatory

(address will not be displayed on the website)