Chronic Fatigue


Posted by Elizabeth Eales on 22 February 2010

Has anyone expereinced Chronic Fatigue Syndrome after Meningitis. My daughter had Pneumococcal at 13 months of age. She is now nearly 19 years old and has been plagued by this ever since she was ill. It has stopped her from going to school normally and is now affecting her college and makes it impossible for her work as well as function on a daily basis. She aslo suffers depression and this year we had to give in to anti depressants which has helped but not sorted the Chronic Fatigue. I just wondered if anyone has had a similar problem.

Liz (Charlottes Eales Mum)


Posted on 16 June 2017

Comment by Stefanie Lamboy

I contracted viral meningitis after a camping trip in 2004, 13 years ago, at age 26. Our first child was just 2years old at the time, and what WAS the prime of my life was about to end. After arriving home, the symptoms started, the most intense head and neck pain of my life began that week...after 2 hospital visits, the inability to even speak, vomiting, nausea, and intense pain, being sent home..I was brought back to the hospital. After hours of being left in the ER room, in pain, sick, and shaking a nurse finally suggested a lumbar puncture. I believe those idiots at the hospital thought I just had a headache and was seeking drugs. Nothing could be further from the truth, after the spinal fluid was positive, they whipped into action, and transported me by ambulance to another hospital to be placed in isolation for several days. The following months consisted of reaccuring head and neck pain, illness, and hospital visits, and generally not feeling well. Fast forward to 2017, I am 39 now, can no longer work as a cake decorator, my husband and I have 3 children, and everyday I feel awful, best way to describe it...its like having the flu 24/7. My energy levels are terrible, chronic pain and fatigue rule my life. My health has further deteriorated over these years, I had shingles while pregnant with our 2nd child, I have a blood clotting disorder, prone to phlebitis, get sick easily, recently hospitalized last fall for gallbladder problems and internal bleeding. I take handfuls of vitamins and supplements just to get by, if I don't, I wouldn't be able to even get out of bed. If it weren't for this meningitis ruining my health, I wouldn't have to rely on opioids to control the pain. The dose that used to work for me has been systematically cut back due to this epidemic of opiod abuse, and the laws imposed regardless of how long one has been on a medication, and their legitimate need. I would in a heartbeat, give anything to get my life and health back. Meningitis literally ruined my life and affects my family. My husband and I used to go hiking, camping, swimming, and were very active. Now it takes all I have just to get by day to day. One thing that has helped a bit with energy is D-Ribose and L-Carnitine, which I learned from Dr. Jacob Teitelbaum's book about CFS and FMS. I also know that you have to educate yourself, and advocate for yourself especially with regard to trusting your body and relaying what I have learned with my doctor.

Posted on 10 August 2016

Comment by Nikki O.

I am currently recovering from viral meningitis from 2 weeks ago. My biggest obstacle right now is constant fatigue. Doing the simplest of tasks exhaust me. Not to mention the occasional vertigo spells. I can't think straight. And I startle so easily! Loud sounds-no bueno. I have never been this sick ever! I had to go home on home health from the hospital-and use a walker because of my balance issues. I want my body back. I always feel out of sorts. I pray everyday the God will heal me.

Posted on 08 February 2016

Comment by Lynne briggs

I have had bacterial meningitis end nov I am a very busy foster carer with three girls of my own 4 grandchildren and three foster children the fatigue is killing me I am trying to keep things normal but find by Thursday or Friday each week I collapse even just a simple sore throat seems to knock me off my feet feel so fed up/depressed it's really getting to me how long will I feel like this ???? 😨

Posted on 02 October 2015

Comment by Janie Kaminski

I was treated for meningitis 3 months ago. I've never been the same. I feel hollow and tired almost constantly. And if presented with anything as simple as a cold, I'm totally wiped out. My doctor has been all but rude about my feelings that there is something wrong with me. Now, seeing the experiences of others - I truly realize that I'm not wrong.

Posted on 01 June 2015

Comment by Michael Genteman

Wow! In 2011 on my B Day my sister found me unconscious. I.C.U. 5 days. Docs said viral meningitis. Incredible memory loss. Short n long term. Unable to do math in my head. Get lost going to places I've been to many times. Headaches and the worse is C.F.S. I sleep 13 to 17 hrs. a day. I'm 61 and have a 10 year old son. I take Ritlan and it help for 6 mos. Now I can take it and go back to sleep. Add it all up and the depression and anxiety from the guilt of not being a good father and more. It's just an excuse. Just buck up they say. Going to the store is a major accomplishment for me. Zero motivation to do thinks I use to love. Has anyone tried stimulants like Adderal? I just want the old me back. I pray and I pray. Thanks for making me not feel alone. It helps. M. Genteman

Posted on 06 May 2015

Comment by chris

It is nice to see this information. I came out of the hospital with viral meningitis just a couple weeks ago and i rebounded great at first but now i barely have the energy to move and i was very concerned about long term effects. It is nice seeing that apparently what is happening is common at least. Its the case of at least i know what to expect...knowing is always better than not knowing.

Posted on 16 July 2013

Comment by Denise Dahll

I also had meningitis many years ago, and now suffer from chronic fatigue and fibromyalgia. I have always wondered if my problems now came from when I was sick, because I am a completely different person now, I have no energy, am in constant pain, and have no desire to go do things with my family. What should be my next step to find some sort of relief?

Posted on 26 March 2012

Comment by steven levy

I had bacterial meningitis 3 weeks ago. I made a fast recovery after 5 days of hospital and 10 days of IV antibiotics. But I am tired, very exhausted. I don't know how to overcome this. Ideas? Food? Exercise? What works?

Posted on 19 February 2011

Comment by Erin Gomez

I am hoping someone can relate to me and maybe give me advice. I contracted bacterial meningitis 2 weeks ago. At first I thought it was a simple flu, I lasted 4 days with temperature starting at 102.9-104.7, since I have no insurance, and I make a little over the limit to qualify for government help I did not go to the doc. on the 4th&5th day I began to hallucinate, of course throughout this entire time I had hot & cold flashes, stiff neck, vomit, vertigo.. basically the whole 9 yards.
I called the ambulance because the 5th day I had a migraine that blinded me, plus hallucinations would not stop, and fever increased. I stayed hospitalized 2 days and luckily felt better immediately after anti-bacterial & all sorts of meds. I lost 15lbs during that time.
It has been a week since I have been out of the hospital, I still have an annoying cough, my body is constantly aching, headaches and I have been very emotional, and have been extremely and unusually exhausted. I cannot even go up one staircase without feeling exhausted, or even clean my home without my arms and legs feeling I have weights on them. I really cannot do any physical activity. I no longer go to the gym, my house is a mess cause I live alone.. HELP what is wrong with me?

Posted on 09 November 2010

Comment by Victoria Hewell

I have wondered what is wrong with me. I am so tired and weak some days I can hardly function. In January 2010, I contracted bacterial meningitis as the result of a cerebro-spinal fluid (CSF) leak following a sinus surgery accident. The bacteria involved was methicillin-resistant staph (MRSA). I nearly died and spent several weeks on IV antibiotoics. It took months, but I thought I had recovered. Then, lately I have completely lost my strength. I am glad to have found this blog. I was ready to give up on life. I hope there is a solution.


Posted on 19 March 2010

Comment by Claire Wright (MRF Medical Information Officer)

Many of our members have also suffered chronic fatigue following meningitis, which can last for varying lengths of time after recovery from illness. In addition, depression can certainly affect those who are living with ongoing problems.

It may be useful for you to take advantage of our befriending service which would put you in touch with people who have had a similar experience. Alternatively we can post literature to you regarding other similar experiences if you contact our helpline on 080 8800 3344.

Best Wishes


Posted on 03 March 2010

Comment by Gill Want

I had bacterial meningitis and scepticaemia two years ago at 49. I feel as if I have been struggling ever since with extreme tiredness and migraines. Every time I have a cold it seems to take weeks to recover and I currently have vertigo for the second time in a year. I know I could have a much worse legacy from such a horrible disease but I can't tell you how relieved I feel to have read this blog and to know that this feeling of weakness and tiredness is normal. I am afraid I don't have any suggestions Liz but it is good to know other people understand what it is like. Best wishes, Gill

Posted on 26 February 2010

Comment by gillian lappin

I had CFS/ME before I contracted bacterial meningitis and septicaemia.I have always felt there is a link as the symptoms I had with meningitis were just like a very bad ME relapse.thE chronic fatige was much better before I took Meningitis but has relapsed badly since.Me charities like Action for ME (IT HAS A YOUNG PEOPLES BRANCH) m.E association are great support.

Posted on 24 February 2010

Comment by Liz Eales

Thank you all for your replies. We was not sure if there was many others that suffered this after having Meningitis. Charlotte is now nearly 19 years old and its been so hard coping with it all.

Onor you reply was very interesting and we have been considering some therapy for Charlotte and will think about now getting this from a neuro psychologist.
I have also posted a long reply to this discussion on the facebook page.

Thank you all once again Liz.

Posted on 23 February 2010

Comment by Sheryl Hilton

My son had meningitis and meningicoccal scepticaemia in Sept 07 aged 11. He made a very good recovery but 6 months later started to suffer from Chronic fatigue. Now, nearly two years later he still has chronic fatigue. He is very slowly getting better, but it is slow. He goes to school approx 3 short days a week and we have to take each day as it comes. Mornings are very difficult for him but as the day goes on he improves and by late afternoon you wouldn't know he had CF at all. He has great difficult sleeping at night, often not falling asleep until between 12 and 2am. We are being supported by medical professionals but unfortunately there does not appear to be a short term solution.
The most useful way to handle his condition, we have found, is for him to pace himself and not overdo it the days he is feeling really good, which is difficult for a 14 year old boy.

I wish you all the best and try and stay positive. There is no reason why our children should not make a full recovery and that helps us stay positive.


Posted on 23 February 2010

Comment by Onor Crummay

Hi, I contracted bacterial meningitis last year in my first term of first year of uni. I had to suspend my studies because I was incredibly tired all the time, confused, and very emotionally unstable.

A year on I am back at uni but only because of a massive support network behind me. If I do too much, I crash and end up holed up in my room.

The only thing I can advise is that she needs to firstly 'keep her pecker up'- she's doing really well regardless,and secondly, to remove as much as she can in her daily routine. This is the only way I can cope, with extended deadlines, help from the Disabled Students Association etc.

As for help with depression, after I was examined by a neurologist I spent one day a fortnight with a neuro psychologist who really helped explain what had happened to me, what was going on inside my head to make me feel the way I was etc.

What is more is he compiled a detailed report on me which I am able to provide people so they understand if my behaviour is a bit strange or I am struggling at any one time.

Best wishes

Posted on 23 February 2010

Comment by Alison Deuchars

I had Viral Meningitis 9 years ago at the age of 34 and suffered very badly from chronic fatigue. 3 years ago, I had a few sessions of cranial sacral therapy and after the first session, my energy levels were amazing I didn't want to stop doing things in case the energy went away. A year ago I had Manual Lymphatic Drainage Therapy which has helped enormously as my lymphatic system wasn't functioning correctly and 3 weeks ago, felt well enough to join a gym, I go twice a week and have had no reaction to the additional exercise. (Note, I retired from competitive sport 18months prior to my illness and was still training - weights & cardio 4 or 5 times a week)
If you can find a practitioner (I went to a privet physiotherapist practice) in your area, the cranial sacral may be worth a shot.
All the best Al

What do you think? Join the discussion

Fields marked * are mandatory

(address will not be displayed on the website)