Monday he started fitting , nothing could stop him, his temperature was sky high, packed with ice, nothing worked. Must have been two or three days till eventually he did stop. By this point I was told it would be dolly steps for improvement. Zak eventually left PICU and went to the ward still having feeding tubes in.
Three weeks after being admitted to Addenbrookes we were getting transferred back to our local hospital thinking things were on the up. In transfer Zak had a rash appear on him, which slowly got worse over next day or so.
Friday I got call to get to hospital ASAP, Zak was fitting again and by then they thought he was coning. Once again my world collapsed after thinking we were on the mend, and once again he had to be ventilated and transferred back to Addenbrookes. This time we were told to expect the worst, but amazingly on the Sunday things started to slowly improve.
After another few weeks we were sent back to our own hospital where it soon became apparent to me that my little boy wasn't going to be the same as he was.