They tested again for jaundice and took him away to fit a feeding tube. It was the longest hour of my life.
He came back to me and the nurse fed him a bottle of milk and I was almost relief as we were moved to the ward while they awaited his new test results. It came back clear for jaundice but this time they knew he had another infection.
It was probably the longest day of my life as doctors came in and out and told us bits and pieces. It was just after lunch that Thomas took a turn for the worse and doctors decided they want to try and get a central line into him so he could be treated more easily. They took him away for at least an hour but unfortunately his veins were flat so they couldn't do anything.
The doctors returned with bad news that it was GBS and I looked down at the tiny bundle in my arms and told myself he was going to die...that nothing could protect him from the infection.
They assured me that they would do everything they could to help him. We called our family members, some who had even met him yet and they all travelled to see him because we really didn't know what was going to happen.
The doctors took him away again and for longer this time as he'd had to be resuscitated twice as he had two mini seizures.
The moment they bought him back I felt so much emotion when I saw his little eyes looking at me. I hadn't seen them since the Monday morning and now it wa the Thursday. But at that moment my eyes locked on his he stopped breathing, went blue and they had to resuscitate him again.
They took him straight back again and had to ventilate him which meant we had to move to PICU where Thomas spent four days fighting for his life and then fighting a breathing machine.
We spent three weeks in hospital together and he was such a little fighter. He never gave up once and he's continued even now.
Thomas has recently started at special needs school and is behind in his development especially with his speech and communication. He has cerebral palsyand epilepsyand struggles to do things independently but he has so much determination for someone so young. He never gives up and will try and try again.
He has an infectious smile and is an amazing little boy who has a long way to go but we wouldn't have him any other away.