The ICU staff held our hand every step of the way and told us that Ruairí would continue to be kept alive until we were ready to let him go. A social worker and Chaplain also came to see us and we talked through how to tell Micheál that his little brother was going to die and how to break the news to family and friends but we never felt any pressure.
A friend brought Micheál up to Dublin and when Micheál got to the ICU he climbed into Ruairí’s cot as he did every morning and we sang our songs and chatted away to Ruairí.
Rob and I wanted Ruairí’s departure from this world to be beautiful and peaceful and again the ICU team told us exactly what would happen when the ventilator was turned off and at that moment, one nurse stood in solidarity behind us and her presence was incredibly comforting.
The Chaplain and nurses dressed Ruairí and organised the paperwork and we brought him home that night by car. We however decided against a funeral and instead organised a celebration of his short life in our local church.
As best we could, we explained to Micheál that Ruairí had come from a seed and we were planting him like a seed again and he would grow into a magnificent yellow flower.
Micheál continues to ask endless questions about what happened to his little brother and we continue to explain simply that he died because he was very sick but he just wants us to bring him back.