She pulled through – and the colour even came back to her feet. However the fingers and hand were still dusky and they also discovered her body wasn't creating cortisol, which helps the body cope with stress and trauma. They started to give her hydrocortisone and she was on this for a further year and a half. Her adrenal glands have only just started to produce this on their own again and she also wasn't passing fluid enough, so she needed to be on dialysis to remove the toxins until they finally got her body passing enough on its own.
Amelia spent a total of two months in hospital recovering. She came home in bandages protecting her hand which had started to die, and bandages on her leg and arm protecting the skin grafts. She needed to close the wounds from the surgery to her muscles and in the end they only had to remove her fingers and thumbs from her hand, which was a great difference to her original prognosis. Luckily they did the surgery at the right time to save her legs and remainder of her arm, however it left her leg muscles very weak and she only started walking at two years old.
She is now three and as happy and active as any other three year old. She has some speech delay but, other than the scars from the rash and surgery and missing fingers, you would never think she had suffered so much at such a young age.
She spent a total of two months in the hospital and we are so grateful to her doctors that they never gave up trying to save her and acted quickly enough to save her legs. There is no way we could ever repay them.
Written by: Melinda Lancaster
Video - September 2012