We went back to the JR Hospital for a week of rehabilitation which did Ben the world of good. But at this point Lee and I started to panic about the next steps; that's when Tina from the Foundation stepped in and gave us so much support and reassurance. Coming home was the biggest challenge - going from 24 hour care to an empty house was a horrible feeling, but it got easier as the weeks passed.
Ben has had weekly physio to help with his walking and rebuilding of his tummy muscles and left-sided weakness. He's also seen a speech therapist, had another MRI scan, eye test, seen a neuro-psychologist and a community paediatrician, but all in all the future is starting to look brighter.