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Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
206 2 last month Target: 2,030
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Andy Marso’s story

Confederation of Meningitis Organisations (CoMO) member Andy shares his journey surviving meningitis and gaining a new life purpose.

CoMO member

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Leah Luckeroth’s story

Doctor Leah reflects on the importance of early diagnosis and vaccination, and how treating meningitis shaped her medical expertise.

Isabell Wachera smiling with her legs crossed

Isabell Wachera's story

Confederation of Meningitis Organisations (CoMO) member Isabell shares her experience with TB meningitis.

CoMO member

A woman with sunglasses and a pink baseball cap smiling on the beach.

Marie O’Regan’s story

Meningitis Research Foundation Ambassador Marie discusses her experience with meningitis and the importance of sharing her story.

Samantha Panico’s story

Samantha shares her experience of contracting bacterial meningitis whilst heavily pregnant with her daughter.

Jimmy Yuill's story

Actor Jimmy recounts the two weeks in 1998 when meningitis nearly took his life, and the subsequent impact on his memory and career.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Quinn Reecer’s story

Elise shares her son’s terrifying battle with meningitis after a mild fever - and how early treatment led to a full recovery.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

Wyatt sat outside with his teddy bear.

Wyatt Howard’s story

Emma shares her story of every parents worst nightmare: her newborn son's diagnosis with viral meningitis.

A young baby sat on a chair in a field

Violet Hensch’s story

Violet contracted bacterial meningitis as a newborn. Thanks to quick action and treatment, she’s now thriving and hitting all her milestones.