Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Jackie Ennis' story

Jackie shares her story of having meningitis when she was seven months pregnant with her son.

A photograph of Sausto Makiyi and his mother

Sautso Makiyi’s story

Adele from Malawi talks about how her 14-year-old son Sautso contracted meningitis and malaria in 2014.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Laurie Ildau's story

Laurie talks about the lingering after-effects she's experienced since having viral meningitis.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Joyce Hatfield's story

Joyce talks about the sudden onset of meningitis symptoms and the after-effects her illness has had.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Sunny Glenn's story

Sunny’s mother Luisa describes the multiple illnesses he's experienced throughout his childhood.

A photograph of Daisy Mitchell as a toddler

Daisy Mitchell's story

Daisy's mother Louise shares the story of her bacterial meningitis as a newborn and her subsequent recovery.

A photograph of Reilly holding two stuffed fox toys

Reilly Parkes' story

Debbie shares the story of her son Reilly’s e.coli meningitis and the after-effects he's experienced.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Genevieve B.'s story

Karen talks about the after-effects of her daughter Genevieve's viral meningitis, which she contracted aged 14.

A school photograph of Shanel Bass

Shanel Bass' story

Charlie shares the story of their daughter Shanel’s diagnosis of meningitis, and highlights the importance of being persistent.

A photograph of Becky and another child sitting on a carved bench

Becky Evans' story

Becky talks about surviving meningococcal septicaemia at 18 months old, and her desire to help others.

A photograph of Jeri Owen

Jeri Owen's story

Jeri describes how bartonella bacteria led her to contract meningeal encephalitis, and the difficulty of finding treatment.