Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
242 2 last month Target: 2,030
11.9%
A close up photograph of Jule Shafer holding a dog

Jule Shafer's story

Jule contracted bacterial meningitis aged 32 and has since recovered, but with lingering neurological after-effects.

A photograph of Savannah Young as a child

Savannah Young's story

Due to complications from a serious childhood injury, Savannah has had meningitis four times. Here she shares her story.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Tracey Fallan's story

Tracey talks about how the after-effects of bacterial meningitis have impacted her physical and mental health.

A photograph of baby Thain Mearns

Thain Mearns' story

Jennifer talks about her son Thain’s hospitalisation with meningitis aged eight months and the effect of the illness on his development.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Elizabeth Marie Knight's story

Mike talks about his daughter Elizabeth’s death from bacterial meningitis after lake swimming, and the importance of raising awareness.

Melanie Kee's story

Hazel shares the story of her daughter Melanie’s meningococcal septicaemia aged five and a half, and her gradual recovery.

A photograph of Jake Maroney

Jake William Maroney's story

Jake has had meningitis six times as a result of complications from cholesteatomas. Here shares his story, including the after-effects he's experienced.

A photograph of Asname Mohammed Reda

Asname Mohammed Reda's story

Reda's fever and headache turned out to be symptoms of viral meningitis. Here he describes his illness and his slow recovery.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Sarah Cowan's story

Sarah had meningitis aged 4, and has had debilitating after-effects in the decades since, but has struggled to get treatment and support.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

C.J.’s story

C.J. shares his experience of viral meningitis and how its after-effects have impacted his quality of life.

A photograph of Jamie Thomas

Jamie Thomas' story

Jamie shares his difficult recovery from meningitis and the effects it's had on his mental health.