Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
271 1 last month Target: 2,030
13.3%
Livia Wilson

Livia Wilson's story

Livia's parents share their experience of losing their daughter to meningitis and the work they're doing to raise awareness of the disease.

A section of the meningitis flag, showing a yellow, purple and blue geometric design.

Aoibhe Carroll’s story

Confederation of Meningitis Organisations (CoMO) members Siobhan and Noel share the story of losing their four-year-old daughter Aoibhe to meningitis.

CoMO member

Alice Jenkins' story

Alice reflects on contracting bacterial meningitis in her first year of university, and the life-saving care that led to a full recovery.

Simone Shoffman pictured with her partner and young children

Simone Shoffman's story

Social media influencer Simone, also known as Si Si, was 38 weeks pregnant when their two year old son, CJ, contracted meningitis.

Mike Davies smiling

Mike Davies' story

Meningitis Research Foundation Ambassador and hand transplant recipient Mike shares his story to raise awareness and celebrate the NHS.

A photograph of baby Caoimhe laughing

Caoimhe Dunne's story

Geraldine shares the story of her daughter Caoimhe's illness with streptococcal meningitis at eight days old and her recovery.

A black and white photograph of David Carr

David Carr's story

David died of meningococcal septicaemia in 1999. His mother Maureen shares his story.

A head and shoulders photograph of Carly Fisher

Carly Fisher's story

Carly had bacterial meningitis following an ear infection. Here she shares the story of her illness and recovery.

A young boy standing in front of a car eating from a bag of snacks.

Bright Thubula’s story

Christina, from Ndirande in Malawi, describes when her five-year-old son Bright had meningitis in 2015.

A photograph of Tom Moriarty with his partner

Tom Moriarty's story

Tom shares his story of illness and recovery after suffering from bacterial meningitis.