Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A photograph of baby Thain Mearns

Thain Mearns' story

Jennifer talks about her son Thain’s hospitalisation with meningitis aged eight months and the effect of the illness on his development.

A photograph of Jake Maroney

Jake William Maroney's story

Jake has had meningitis six times as a result of complications from cholesteatomas. Here shares his story, including the after-effects he's experienced.

A photograph of Asname Mohammed Reda

Asname Mohammed Reda's story

Reda's fever and headache turned out to be symptoms of viral meningitis. Here he describes his illness and his slow recovery.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Sarah Cowan's story

Sarah had meningitis aged 4, and has had debilitating after-effects in the decades since, but has struggled to get treatment and support.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

C.J.’s story

C.J. shares his experience of viral meningitis and how its after-effects have impacted his quality of life.

A photograph of Jamie Thomas

Jamie Thomas' story

Jamie shares his difficult recovery from meningitis and the effects it's had on his mental health.

A photograph of Lucy Finn and her mother

Lucy Finn's story

Fiona shares the story of her daughter Lucy’s diagnosis with meningococcal meningitis and her recovery.

A photograph of James Bellman

James Bellman's story

James talks about his experience of meningitis and the daily migraines he has suffered since his illness.

A photograph of Marjorie Graham

Marjorie Lynn Graham's story

Marjorie shares how she's affected by recurrent viral meningitis, and how she's managed each episode and its after-effects.

A photograph of Phoebe Greenwood

Phoebe Greenwood's story

Lysey shares the story of her daughter Phoebe’s meningitis at 20 days old and the after-effects she's experienced, including sleep problems.

A photograph of Matt Collino in a sports uniform

Matt Collino's story

Debbie talks about how her son Matt contracted meningitis while at university, and shares her advice to students.

A photograph of Carrie Tozak and another person

Carrie Tozak's story

Carrie talks about being in intensive care with bacterial meningitis, the after-effects and how she feels lucky to have survived.