Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
180 0 last month Target: 2,030
8.9%
Cat Shehu and her daughter Dolcie

Cat Shehu's story

Cat shares her experience of losing a baby to group B strep at 24 weeks and the birth of her subsequent daughter.

Juttima Chinnasri's story

Model and social media influencer Juttima shares the story of losing both of her legs after contracting meningococcal septicaemia in 2018.

Mahwish Mustafa's story

Mum of three and social media influencer Mahwish supported her young son, Ali, after he contracted meningitis.

Livia Wilson

Livia Wilson's story

Livia's parents share their experience of losing their daughter to meningitis and the work they're doing to raise awareness of the disease.

Simone Shoffman pictured with her partner and young children

Simone Shoffman's story

Social media influencer Simone, also known as Si Si, was 38 weeks pregnant when their two year old son, CJ, contracted meningitis.

A black and white photograph of David Carr

David Carr's story

David died of meningococcal septicaemia in 1999. His mother Maureen shares his story.

A head and shoulders photograph of Carly Fisher

Carly Fisher's story

Carly had bacterial meningitis following an ear infection. Here she shares the story of her illness and recovery.

A young boy standing in front of a car eating from a bag of snacks.

Bright Thubula’s story

Christina, from Ndirande in Malawi, describes when her five-year-old son Bright had meningitis in 2015.

A school photograph of Shanel Bass

Shanel Bass' story

Charlie shares the story of their daughter Shanel’s diagnosis of meningitis, and highlights the importance of being persistent.

A photograph of Stephen Douglas in a running vest

Stephen Douglas' story

Michael describes his son Stephen’s hospitalisation with meningococcal meningitis and recovery following a trial treatment.

A photograph of Becky and another child sitting on a carved bench

Becky Evans' story

Becky talks about surviving meningococcal septicaemia at 18 months old, and her desire to help others.

A photograph of Jeri Owen

Jeri Owen's story

Jeri describes how bartonella bacteria led her to contract meningeal encephalitis, and the difficulty of finding treatment.