Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
242 2 last month Target: 2,030
11.9%
Sylvia smiling

Sylvia Djawahir's story

Sylvia shares her experience of TB meningitis, from early symptoms and hospitalisation to long-term recovery and life after discharge.

Kaya Aisake smiling

Kaya Luna Aisake’s story

Kaya was just a toddler when she was diagnosed with meningitis. Her mother, Candice Patrick, shares their family’s experience.

Ludovic Peze wearing a headset and headphones and a cap

Ludovic Peze's story

Confederation of Meningitis Organisations (CoMO) member Ludovic shares his experience with meningitis.

CoMO member

Cat Shehu and her daughter Dolcie

Cat Shehu's story

Cat shares her experience of losing a baby to group B strep at 24 weeks and the birth of her subsequent daughter.

Juttima Chinnasri's story

Model and social media influencer Juttima shares the story of losing both of her legs after contracting meningococcal septicaemia in 2018.

Mahwish Mustafa's story

Mum of three and social media influencer Mahwish supported her young son, Ali, after he contracted meningitis.

Livia Wilson

Livia Wilson's story

Livia's parents share their experience of losing their daughter to meningitis and the work they're doing to raise awareness of the disease.

Simone Shoffman pictured with her partner and young children

Simone Shoffman's story

Social media influencer Simone, also known as Si Si, was 38 weeks pregnant when their two year old son, CJ, contracted meningitis.

Mike Davies smiling

Mike Davies' story

Meningitis Research Foundation Ambassador and hand transplant recipient Mike shares his story to raise awareness and celebrate the NHS.

A black and white photograph of David Carr

David Carr's story

David died of meningococcal septicaemia in 1999. His mother Maureen shares his story.

A head and shoulders photograph of Carly Fisher

Carly Fisher's story

Carly had bacterial meningitis following an ear infection. Here she shares the story of her illness and recovery.