Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
247 2 last month Target: 2,030
12.2%
A photograph of Freya wearing a yellow workman's helmet

Freya Barstow's story

Freya’s mother shares the tragic story of losing her to pneumococcal meningitis at 19 months old.

A photograph of John Spalding outdoors

John Spalding's story

Dianne tells the story of her husband John’s sudden death from meningitis, and how their children have dealt with the loss.

A passport photograph of Kate Tucker smiling

Jeni Tucker's story

Jeni shares the story of her daughter Kate’s death at 31 years old from meningococcal septicaemia and bacterial meningitis.

Baby Cayden Grove sleeping

Cayden Grove's story

Caroline talks about the death of her son Cayden from meningitis and septicaemia at only 22 days old.

Marciano Nolan's story

Clare describes her partner Maz’s illness and subsequent death from meningococcal meningitis.

A photograph of Elizabeth Cavanagh next to a street sign

Brian Cavanagh's story

Brian talks about losing his daughter, Elizabeth, to meningitis, and the benefits of new research.