Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
180 0 last month Target: 2,030
8.9%
Ollie and Maddie Davies smiling holding Big Eddie's Joke Book

Ollie Davies' story

Ollie, Eddie Rosen's hockey teammate, shares his memories of Eddie and the story behind Big Eddie's Joke Book.

Esme Hollens and some young schoolchildren in Uganda

Esmé Hollens’ story

After developing viral meningitis while volunteering in Uganda as a teenager, Esmé reflects on recovery, university and lasting mental impacts.

Claire Wright's story

Claire reflects on her professional experience working to defeat meningitis, using data to drive change and raising awareness through personal action.

Lucas Martin smiling with his dog on his chest

Lucas Martin's story

Brett shares his experience of losing his son, Lucas, to meningitis and the legacy he has left behind.

Annerine Steyn smiling in a smart suit

Annerine Steyn's story

Annerine was diagnosed with bacterial meningitis despite showing no initial symptoms. She shares her story to help others.

A young boy wearing a woolly cap and a yellow coat smiling in the woods.

Caleb Anders' story

Jordan shares the heartbreaking story of losing her two-year-old son, Caleb, to bacterial meningitis, and how she is turning her grief into action.

Drew at the finish line with his medal

Drew Darlington's story

Drew contracted meningitis as a teenager, about a year after his brother had the disease. They later discovered it was due to a rare genetic deficiency.

Callum Strang holding medal and wearing his MRF running vest, in Paris.

Callum Strang's story

Callum contracted meningitis twice as a baby. He went on to run two marathons within two weeks to support Meningitis Research Foundation.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Emma Joubin's story

Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.

CoMO member

Theo Curin wearing the Meningitis Flag

Théo Curin’s story

Théo, para-swimmer and Meningitis Flag co-creator, shares his journey after surviving meningitis and quadruple amputation.

Tendai Muranganwa headshot

Tendai David Muranganwa's story

CoMO member Tendai shares his journey through fungal meningitis, and how he has adapted to life with permanent blindness.

CoMO member

Michael Rosen's story

Author and poet Michael lost his son, Eddie, to meningitis when he was only eighteen years old in 1999.