Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
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A photograph of Lee Holztrager with a christmas tree.

Lee Holztrager's story

Lee had pneumococcal meningitis at 13 months old. Now a grandfather, he talks about the after-effects he's experienced throughout his life.

A photograph of Jake Hilton in a tuxedo

Jake Hilton's story

Jake shares his experience of pneumococcal meningitis when he was in college, and life after his illness.

A photograph of Vanessa Jennings in a swimming pool

Vanessa Jennings' story

Vanessa’s mother Barbara shares the tragic story of her daughter’s misdiagnosis and subsequent death from meningitis.

A photograph of baby Django

Django Turner's story

Rebecca shares how her son Django was diagnosed with meningitis just after his first birthday, and his subsequent recovery.

A black and white close up photograph of Jennifer Kinsella

Jennifer Kinsella's story

Jennifer shares her experience of pneumococcal meningitis, her recovery and the after-effects she is managing.

A photograph of Jacob Niblett holding a toy car

Jacob Niblett's story

Jacob’s father, Andy, felt compelled to tell the story of his son’s death from meningitis after finding comfort in others' stories.

A close up photograph of toddler Monique Hopgood-Wilis

Monique Hopgood-Willis’ story

Monique contracted meningitis at two and a half years old. Here she shares her story and describes the after-effects of the disease.

A photograph of Keane Smith Thornton

Keane Smith Thornton's story

Joanne shares the story of her son Keane’s death from pneumococcal meningitis at five years old, after symptoms came on very rapidly.

A still image from a video of Janine

Janine Dunbar's story

Janine talks about her son's fight with pneumococcal meningitis, and his subsequent discharge from hospital and follow-up checks.

A photograph of Zak in a wheelchair

Zak Henderson's story

Zak’s mother Vikki tells the story of his pneumococcal meningitis and subsequent difficulties with cerebral palsy and epilepsy.