Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
Ollie and Maddie Davies smiling holding Big Eddie's Joke Book

Ollie Davies' story

Ollie, Eddie Rosen's hockey teammate, shares his memories of Eddie and the story behind Big Eddie's Joke Book.

Rodolpho Riskalla's story

Horse rider and Paralympian Rodolpho shares his experience with bacterial meningitis and living with multiple amputations.

Heidi Ellingham

Heidi Ellingham's story

Heidi reflects on her terrifying experience of being diagnosed with meningitis during the pandemic.

Lucas Martin smiling with his dog on his chest

Lucas Martin's story

Brett shares his experience of losing his son, Lucas, to meningitis and the legacy he has left behind.

Annerine Steyn smiling in a smart suit

Annerine Steyn's story

Annerine was diagnosed with bacterial meningitis despite showing no initial symptoms. She shares her story to help others.

A young boy wearing a woolly cap and a yellow coat smiling in the woods.

Caleb Anders' story

Jordan shares the heartbreaking story of losing her two-year-old son, Caleb, to bacterial meningitis, and how she is turning her grief into action.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Emma Joubin's story

Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.

CoMO member

Isabelle Weall smiling holding a cocktail

Isabelle Weall's story

Quadruple amputee Isabelle shares her experience with meningitis and living with the after-effects.

Theo Curin wearing the Meningitis Flag

Théo Curin’s story

Théo, para-swimmer and Meningitis Flag co-creator, shares his journey after surviving meningitis and quadruple amputation.

Michael Rosen's story

Author and poet Michael lost his son, Eddie, to meningitis when he was only eighteen years old in 1999.

Paul and Ellie Challis

Paul Challis' story

Paul shares how meningitis changed his daughter Ellie’s life at 16 months, and how she overcame the challenges to become a Paralympic champion.

Ellie Challis with her paralympic medals holding the meningitis flag

Ellie Challis' story

Meningitis Research Foundation Ambassador Ellie shares her journey surviving meningitis and becoming a Paralympic swimmer.