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Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
253 1 last month Target: 2,030
12.5%
A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

Wyatt sat outside with his teddy bear.

Wyatt Howard’s story

Emma shares her story of every parents worst nightmare: her newborn son's diagnosis with viral meningitis.

A young baby sat on a chair in a field

Violet Hensch’s story

Violet contracted bacterial meningitis as a newborn. Thanks to quick action and treatment, she’s now thriving and hitting all her milestones.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Gema Casino’s story

Gema shares her journey, from viral meningitis at age four to surviving pneumococcal meningitis as an adult.

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Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

Jamie Moore's story

Karli shares her newborn son’s battle with viral meningitis, the warning signs and complications, and how it continues to affect his life today.

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Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Claire Byrne's story

Broadcaster and journalist Claire shares her experience with bacterial meningitis as a teenager.

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Haisleigh Kitty Finlay’s story

Kayleigh shares how meningococcal sepsis nearly took her daughter’s life, the life-saving care that followed and the long-term impact of the disease.