Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
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A young man wearing glasses smiling in front of a city backdrop.

Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

James Patrice headshot

James Patrice's story

Irish TV presenter and social media creator James almost died of bacterial meningitis at the age of ten.

Hannah Ewing smiling

Hannah Ewing's story

Hannah shares the story of contracting pneumococcal meningitis twice within a year and how Meningitis Research Foundation supported her.

Ollie and Maddie Davies smiling holding Big Eddie's Joke Book

Ollie Davies' story

Ollie, Eddie Rosen's hockey teammate, shares his memories of Eddie and the story behind Big Eddie's Joke Book.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Esmé Hollens’ story

After developing viral meningitis while volunteering in Uganda as a teenager, Esmé reflects on recovery, university and lasting mental impacts.

Annerine Steyn smiling in a smart suit

Annerine Steyn's story

Annerine was diagnosed with bacterial meningitis despite showing no initial symptoms. She shares her story to help others.

A young boy wearing a woolly cap and a yellow coat smiling in the woods.

Caleb Anders' story

Jordan shares the heartbreaking story of losing her two-year-old son, Caleb, to bacterial meningitis, and how she is turning her grief into action.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Emma Joubin's story

Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.

CoMO member

Tendai Muranganwa headshot

Tendai David Muranganwa's story

CoMO member Tendai shares his journey through fungal meningitis, and how he has adapted to life with permanent blindness.

CoMO member

Michael Rosen's story

Author and poet Michael lost his son, Eddie, to meningitis when he was only eighteen years old in 1999.

Photo of Mhairi Easton smiling

Mhairi Easton's story

Meningitis Research Foundation Ambassador Mhairi shares her experience of contracting meningitis at 23 years old.