Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A video still of Charlotte playing with a child's toy

Charlotte Nott's story

Charlotte lost her lower arms and legs to meningitis and sepsis. Her mother Jenny shares the story of her illness and recovery.

Cieran Burke's story

Sue describes her son Cieran's meningococcal meningitis and the after-effects they are managing.

A photograph of Zoe Jeanes smiling at the camera

Zoe Jeanes' story

Zoe shares her story of having meningococcal septicaemia - initially mistaken for a migraine - when she was 18 years old.

A photograph of Zak in a wheelchair

Zak Henderson's story

Zak’s mother Vikki tells the story of his pneumococcal meningitis and subsequent difficulties with cerebral palsy and epilepsy.

A photograph of Simon Robertson

Simon Robertson's story

Simon shares how his support network has helped him and his wife following his meningococcal septicaemia.

A photograph of Scotty looking at the camera

Scotty Barbieri's story

Debbie shares the story of how her teenage son Scotty died from meningitis after the rapid onset of flu-like symptoms.

Sam Clarke's story

Sam’s mother Rachel talks about his sudden death from meningitis aged 4, and how it has affected the family.

A photograph of Becky Little

Rebecca Little's story

Pat and Roger talk about the tragic loss of their daughter Becky to meningitis, and the memorial awards set up in her name.

A photograph of Philip Brady dressed as a sailor with his arms around two girls

Philip Brady's story

Philip’s mother Mary describes the pain of losing her son to meningococcal septicaemia just days after his 16th birthday.