Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A photograph of Penny Lockett outdoors

Kym Lockett's story

Kym shares how her daughter Penny died from meningococcal meningitis aged 17, and talks about the importance of vaccines.

A photograph of Matthew Easton outdoors

Kath Easton's story

Kath shares her story about her children, Alice and Matthew, having meningitis and septicaemia five years apart.

A photograph of Alice Easton

Alice Easton's story

Alice shares the story of her and her brother Matthew’s illness with bacterial meningitis five years apart.

A photograph of baby Praise being held by a relative

Elanda Banda’s story

Elanda from Manchinjiri, Blantyre in Malawi lost her son, Praise, to bacterial meningitis in February 2010 aged 10 months.

A photograph of Nikki Craig on a balcony in summer clothes

Nikki Craig's story

Nikki talks about having meningococcal meningitis and septicaemia, and her subsequent recovery.

Photograph of Gemma Baxter and Michael Lessells

Gemma Baxter's story

Gemma describes the worst two weeks of her life when her son, Matthew, contracted meningococcal septicaemia at 13 months old.

Heather Lowther's story

Heather talks about contracting meningococcal septicaemia when she was 12, resulting in lower leg amputations and skin scarring.

A video still image of Bridget McCann

Bridget McCann's story

Bridget from the Northern Ireland travelling community describes the loss of Michael when he was just two years old.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Robbie Jones' story

Robbie contracted meningococcal meningitis at 21 months, resulting in amputations. His mum Jill shares their story.

A photograph of Lesley Hart

Lesley Hart's story

Lesley talks about the effect meningitis has had on her life, and how it's changed the way she lives.

A still image from a video of Janine

Janine Dunbar's story

Janine talks about her son's fight with pneumococcal meningitis, and his subsequent discharge from hospital and follow-up checks.