Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Young girl in blue dress sat on a chair

Haisleigh Kitty Finlay’s story

Kayleigh shares how meningococcal sepsis nearly took her daughter’s life, the life-saving care that followed and the long-term impact of the disease.

Amanda Warnett running London Marathon wearing Meningitis Research Foundation vest

Amanda Warnett's story

Amanda pays tribute to her daughter Aimee, who she lost to meningococcal septicaemia and whose memory she honours by fundraising.

Drew at the finish line with his medal

Drew Darlington's story

Drew contracted meningitis as a teenager, about a year after his brother had the disease. They later discovered it was due to a rare genetic deficiency.

Davide Morana holding the Meningitis Flag

Davide Morana's story

After surviving bacterial meningitis and losing his limbs, Davide rebuilt his life as a para-athlete, motivational speaker and co-creator of the Meningitis Flag.

Kaya Aisake smiling

Kaya Luna Aisake’s story

Kaya was just a toddler when she was diagnosed with meningitis. Her mother, Candice Patrick, shares their family’s experience.

A section of the meningitis flag, showing a yellow, purple and blue geometric design.

Aoibhe Carroll’s story

Confederation of Meningitis Organisations (CoMO) members Siobhan and Noel share the story of losing their four-year-old daughter Aoibhe to meningitis.

CoMO member

A young boy standing in front of a car eating from a bag of snacks.

Bright Thubula’s story

Christina, from Ndirande in Malawi, describes when her five-year-old son Bright had meningitis in 2015.

A photograph of Jamie Thomas

Jamie Thomas' story

Jamie shares his difficult recovery from meningitis and the effects it's had on his mental health.

A photograph of Lucy Finn and her mother

Lucy Finn's story

Fiona shares the story of her daughter Lucy’s diagnosis with meningococcal meningitis and her recovery.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Tracey Fallan's story

Tracey talks about how the after-effects of bacterial meningitis have impacted her physical and mental health.