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Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
73 0 last month Target: 2,030
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A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Kaya Aisake smiling

Kaya Luna Aisake’s story

Kaya was just a toddler when she was diagnosed with meningitis. Her mother, Candice Patrick, shares their family’s experience.

A young boy standing in front of a car eating from a bag of snacks.

Bright Thubula’s story

Christina from Ndirande Township in Blantyre, Malawi describes when her five-year-old son Bright had meningitis in 2015.

A black and white image of a silhouette of a man running in a tunnel.

Zak Moore's story

Zak shares his experience of meningitis, and his achievements and realisations since leaving hospital.

A photograph of Lesley Hart

Lesley Hart's story

Lesley talks about the effect meningitis has had on her life, and how it's changed the way she lives.

A video still of Charlotte playing with a child's toy

Charlotte Nott's story

Charlotte lost her lower arms and legs to meningitis and sepsis. Her mother Jenny shares the story of her illness and recovery.

Ella Bailey smiling in her graduation cap and gown wearing a blue dress

Ella Bailey's story

Meningitis Research Foundation Ambassador Ella contracted meningitis at thirteen months old. She shares her experience to help raise awareness.

Marciano Nolan's story

Clare describes her partner Maz’s illness and subsequent death from meningococcal meningitis.

A photograph of Elizabeth Cavanagh next to a street sign

Brian Cavanagh's story

Brian talks about losing his daughter, Elizabeth, to meningitis, and the benefits of new research.