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Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story
Why share your story How to write about your meningitis experience

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
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Featured

Andy Marso’s story

Confederation of Meningitis Organisations (CoMO) member Andy shares his journey surviving meningitis and gaining a new life purpose.

CoMO member

Featured

Isabell Wachera smiling with her legs crossed

Isabell Wachera's story

Confederation of Meningitis Organisations (CoMO) member Isabell shares her experience with TB meningitis.

CoMO member

A woman with sunglasses and a pink baseball cap smiling on the beach.

Marie O’Regan’s story

Meningitis Research Foundation Ambassador Marie discusses her experience with meningitis and the importance of sharing her story.

Samantha Panico’s story

Samantha shares her experience of contracting bacterial meningitis whilst heavily pregnant with her daughter.

Jimmy Yuill's story

Actor Jimmy recounts the two weeks in 1998 when meningitis nearly took his life, and the subsequent impact on his memory and career.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

Wyatt sat outside with his teddy bear.

Wyatt Howard’s story

Emma shares her story of every parents worst nightmare: her newborn son's diagnosis with viral meningitis.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Gema Casino’s story

Gema shares her journey, from viral meningitis at age four to surviving pneumococcal meningitis as an adult.

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Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

Jamie Moore's story

Karli shares her newborn son’s battle with viral meningitis, the warning signs and complications, and how it continues to affect his life today.