Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
247 2 last month Target: 2,030
12.2%

Michael Rosen's story

Author and poet Michael lost his son, Eddie, to meningitis in 1999, when Eddie was only eighteen years old.

Amanda Warnett running London Marathon wearing Meningitis Research Foundation vest

Amanda Warnett's story

Amanda pays tribute to her daughter Aimee, who she lost to meningococcal septicaemia and whose memory she honours by fundraising.

Ollie and Maddie Davies smiling holding Big Eddie's Joke Book

Ollie Davies' story

Ollie, Eddie Rosen's hockey teammate, shares his memories of Eddie and the story behind Big Eddie's Joke Book.

Lucas Martin smiling with his dog on his chest

Lucas Martin's story

Brett shares his experience of losing his son, Lucas, to meningitis and the legacy he has left behind.

A young boy wearing a woolly cap and a yellow coat smiling in the woods.

Caleb Anders' story

Jordan shares the heartbreaking story of losing her two-year-old son, Caleb, to bacterial meningitis, and how she is turning her grief into action.

Spencer King wearing glasses and a cap

Spencer King's story

After losing her only son, Spencer, to meningitis, Marcia shares their story to raise awareness of symptoms and the importance of vaccines.

Onaiza Fice's story

Meningitis Research Foundation Ambassador Onaiza Fice shares the story of losing her baby son, Zain, to sepsis when he was just one month old.

Cat Shehu and her daughter Dolcie

Cat Shehu's story

Cat shares her experience of losing a baby to group B strep at 24 weeks and the birth of her subsequent daughter.

Livia Wilson

Livia Wilson's story

Livia's parents share their experience of losing their daughter to meningitis and the work they're doing to raise awareness of the disease.

A section of the meningitis flag, showing a yellow, purple and blue geometric design.

Aoibhe Carroll’s story

Confederation of Meningitis Organisations (CoMO) members Siobhan and Noel share the story of losing their four-year-old daughter Aoibhe to meningitis.

CoMO member

A black and white photograph of David Carr

David Carr's story

David died of meningococcal septicaemia in 1999. His mother Maureen shares his story.

A photograph of Zoe Clayton and her partner Dan.

Zoey Clayton's story

Zoey shares the story of how she lost her partner Dan to meningitis on Christmas Eve in 2014.