Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
247 2 last month Target: 2,030
12.2%

Michael Rosen's story

Author and poet Michael lost his son, Eddie, to meningitis in 1999, when Eddie was only eighteen years old.

Jimmy Yuill's story

Actor Jimmy recounts the two weeks in 1998 when meningitis nearly took his life, and the subsequent impact on his memory and career.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

Young girl in blue dress sat on a chair

Haisleigh Kitty Finlay’s story

Kayleigh shares how meningococcal sepsis nearly took her daughter’s life, the life-saving care that followed and the long-term impact of the disease.

Hannah Ewing smiling

Hannah Ewing's story

Hannah shares the story of contracting pneumococcal meningitis twice within a year and how Meningitis Research Foundation supported her.

Olivia Griffiths' story

Olivia shares her experience of surviving meningitis twice, and how she's supporting Meningitis Research Foundation.

Amanda Warnett running London Marathon wearing Meningitis Research Foundation vest

Amanda Warnett's story

Amanda pays tribute to her daughter Aimee, who she lost to meningococcal septicaemia and whose memory she honours by fundraising.

Ollie and Maddie Davies smiling holding Big Eddie's Joke Book

Ollie Davies' story

Ollie, Eddie Rosen's hockey teammate, shares his memories of Eddie and the story behind Big Eddie's Joke Book.

Heidi Ellingham

Heidi Ellingham's story

Heidi reflects on her terrifying experience of being diagnosed with meningitis during the pandemic.

Drew at the finish line with his medal

Drew Darlington's story

Drew contracted meningitis as a teenager, about a year after his brother had the disease. They later discovered it was due to a rare genetic deficiency.