Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%

Andy Marso’s story

Confederation of Meningitis Organisations (CoMO) member Andy shares his journey surviving meningitis and gaining a new life purpose.

CoMO member

Samantha Panico’s story

Samantha shares her experience of contracting bacterial meningitis whilst heavily pregnant with her daughter.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Quinn Reecer’s story

Elise shares her son’s terrifying battle with meningitis after a mild fever - and how early treatment led to a full recovery.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

Wyatt sat outside with his teddy bear.

Wyatt Howard’s story

Emma shares her story of every parents worst nightmare: her newborn son's diagnosis with viral meningitis.

A young baby sat on a chair in a field

Violet Hensch’s story

Violet contracted bacterial meningitis as a newborn. Thanks to quick action and treatment, she’s now thriving and hitting all her milestones.

Jamie Moore's story

Karli shares her newborn son’s battle with viral meningitis, the warning signs and complications, and how it continues to affect his life today.

A young boy wearing a woolly cap and a yellow coat smiling in the woods.

Caleb Anders' story

Jordan shares the heartbreaking story of losing her two-year-old son, Caleb, to bacterial meningitis, and how she is turning her grief into action.

Spencer King wearing glasses and a cap

Spencer King's story

After losing her only son, Spencer, to meningitis, Marcia shares their story to raise awareness of symptoms and the importance of vaccines.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Elizabeth Marie Knight's story

Mike talks about his daughter Elizabeth’s death from bacterial meningitis after lake swimming, and the importance of raising awareness.

A photograph of Yosselin Medrano

Yosselin Medrano's story

Yosselin was hospitalised with meningitis aged 11. Following treatment, she has since made a full recovery.

A photograph of Ava Lund

Ava Lund's story

Ava talks about how she survived meningitis when she was only one week old, and the importance of staying strong.