Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
Isabell Wachera smiling with her legs crossed

Isabell Wachera's story

Confederation of Meningitis Organisations (CoMO) member Isabell shares her experience with TB meningitis.

CoMO member

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Gema Casino’s story

Gema shares her journey, from viral meningitis at age four to surviving pneumococcal meningitis as an adult.

Jamie Moore's story

Karli shares her newborn son’s battle with viral meningitis, the warning signs and complications, and how it continues to affect his life today.

Young girl in blue dress sat on a chair

Haisleigh Kitty Finlay’s story

Kayleigh shares how meningococcal sepsis nearly took her daughter’s life, the life-saving care that followed and the long-term impact of the disease.

Annerine Steyn smiling in a smart suit

Annerine Steyn's story

Annerine was diagnosed with bacterial meningitis despite showing no initial symptoms. She shares her story to help others.

A young boy sitting on the beach in front of some sandcastles, smiling.

Frank Rogers' story

Frank was only days old when he was diagnosed with meningitis caused by group B strep. His mum, Kate, shares their family's story.

A photograph of Asname Mohammed Reda

Asname Mohammed Reda's story

Reda's fever and headache turned out to be symptoms of viral meningitis. Here he describes his illness and his slow recovery.

A photograph of Lee Holztrager with a christmas tree.

Lee Holztrager's story

Lee had pneumococcal meningitis at 13 months old. Now a grandfather, he talks about the after-effects he's experienced throughout his life.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Joyce Hatfield's story

Joyce talks about the sudden onset of meningitis symptoms and the after-effects her illness has had.

A close up photograph of toddler Monique Hopgood-Wilis

Monique Hopgood-Willis’ story

Monique contracted meningitis at two and a half years old. Here she shares her story and describes the after-effects of the disease.