Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%
A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

A young man wearing glasses smiling in front of a city backdrop.

Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Hannah Ewing smiling

Hannah Ewing's story

Hannah shares the story of contracting pneumococcal meningitis twice within a year and how Meningitis Research Foundation supported her.

Olivia Griffiths' story

Olivia shares her experience of surviving meningitis twice, and how she's supporting Meningitis Research Foundation.

Esme Hollens and some young schoolchildren in Uganda

Esmé Hollens’ story

After developing viral meningitis while volunteering in Uganda as a teenager, Esmé reflects on recovery, university and lasting mental impacts.

Sylvia smiling

Sylvia Djawahir's story

Sylvia shares her experience of TB meningitis, from early symptoms and hospitalisation to long-term recovery and life after discharge.

Ludovic Peze wearing a headset and headphones and a cap

Ludovic Peze's story

Confederation of Meningitis Organisations (CoMO) member Ludovic shares his experience with meningitis.

CoMO member

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Tracey Fallan's story

Tracey talks about how the after-effects of bacterial meningitis have impacted her physical and mental health.

A photograph of Jake Maroney

Jake William Maroney's story

Jake has had meningitis six times as a result of complications from cholesteatomas. Here shares his story, including the after-effects he's experienced.