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Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

Why share your story How to write about your meningitis experience

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.

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Samantha Panico’s story

Samantha shares her experience of contracting bacterial meningitis whilst heavily pregnant with her daughter.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

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Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Emma Joubin's story

Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.

CoMO member

A black and white photograph of Paul Tidiman singing

Paul Tidiman's story

Paul shares the story of his struggles with memory loss and mental health after meningitis.