Arthur Kilcran smiling wearing a superhero coat and a hearing aid.

Meningitis in your words

Here you’ll find stories from those whose lives have been changed by meningitis. Whether you’ve experienced it, supported someone, lost a loved one, or are working to defeat it, your story matters.

Share your story

2,030 voices for 2030

Thank you to everyone who has taken the time to share their story. We’re currently updating our website, and we’re working hard to ensure that all of your stories appear on this page. If you can’t find the story you’re looking for yet, please bear with us and check back soon.
245 2 last month Target: 2,030
12.1%

Samantha Panico’s story

Samantha shares her experience of contracting bacterial meningitis whilst heavily pregnant with her daughter.

Jimmy Yuill's story

Actor Jimmy recounts the two weeks in 1998 when meningitis nearly took his life, and the subsequent impact on his memory and career.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Dionthe Hope’s story

Dionthe reflects on her experience of cryptococcal meningitis and how it changed her life forever.

A young woman smiling holding a koala bear.

Ellé Schofield’s story

Viral meningitis changed Ellé's life at 24. But recovery, hope and resilience have shaped her journey since.

A young man wearing glasses smiling in front of a city backdrop.

Herbert Cruz’s story

Herbert reflects on living with recurrent meningitis and sharing his story to inspire and give hope to others.

A woman with blonde hair and a red top, standing in front of a tree and smiling.

Ana Castillo's story

Confederation of Meningitis Organisations (CoMO) member Ana shares her experience with meningitis.

CoMO member

Olivia Griffiths' story

Olivia shares her experience of surviving meningitis twice, and how she's supporting Meningitis Research Foundation.

A detail of the Meningitis Flag, showing a yellow half-circle and a purple triangle against a light blue background.

Emma Joubin's story

Confederation of Meningitis Organisations (CoMO) member Emma shares her experience with meningitis.

CoMO member

Sylvia smiling

Sylvia Djawahir's story

Sylvia shares her experience of TB meningitis, from early symptoms and hospitalisation to long-term recovery and life after discharge.

A close up photograph of Jule Shafer holding a dog

Jule Shafer's story

Jule contracted bacterial meningitis aged 32 and has since recovered, but with lingering neurological after-effects.