Donate online today. £35 funds 1 hour of a research project

meningitis & septicaemia can kill in hours!

People who are faced with meningitis and septicaemia have to act fast to help save a life.

Viral meningitis after effects questions

62 comments

Posted by Missy on 06 September 2012

Hi. I am 42 and I was diagnosed with viral meningitis this Aug. At first I experienced a lot of balance issues, double vision and fatigue. I am doing much better now even though I still get tired easily. However I have this feeling of being under the influence ALL the time. It's like Im on my 2nd glass of wine. Not drunk but definitely tipsy. I feel spacy and I was wondering if anyone else has experienced this. Also I have noticed I don't have a lot of patience and get frustrated quickly. Does this sound familiar to anyone.

62 comments

Posted on 16 April 2014

Comment by jae farrell

I was diagnosed with VM on December of 2013. I've been in and out of the hospital since the not to mention countless followups at my drs. Office. I've had three lumbar punctures since then and its now middle of April. I still have terrible pain in my back, neck, and head. Light and noise sensitive, always feeling fatigued, can't concentrate, and have horrible mood swings. So far drs. Can't give me an explanation why I'm notfeeling normal yet seems like all they doin for me is keeping me on pain meds. Which helps rrelieved pain but once I stop them I'm back to square one . Getting so frustrated I'm not getting a solution. Since December sleep is impossible and I'm go in through pretty bad depression. Physically/mentally I feel I'm just a mess. I'm about to see neurologist wondering if I'll get better news from them. I feel drs. Don't believe what I'm experiencing. Feeling hopeless being a father of four. People around me just don't understand what's going on. Glad to find this site and know other people are having similar experiences and its not jus me. Tired of lumbar punctures, tired of the pain meds, tired of feeling like this.

Posted on 15 April 2014

Comment by Kevin Thompson

Hello. I'm 51 years old. I was diagnosed with meningitis about a month ago. Since discharge from hospital I've had debilitating headaches on and off. Some days I feel fine. Other days I cannot go to work. I sometimes get the stiff neck and loss of coordination as well. Does this sound normal? I don't know how I am going to feel from day to day.

Posted on 15 April 2014

Comment by SEETSELE SEKWIDI

My daughter was diagnosed with viral meningitis when she was 2years old. it affected badly and rite now she can not walk again. Which exercises are good for her body muscles?

Posted on 07 April 2014

Comment by Ora Roberts

9 years ago was one of the worst times in my life. I ended up in the ER 4 times and was finally diagnosed with Viral Menegitis. The neurologist came in and told me he wasn't sure which one I had. If I was dead in 3 days then it is bacterial. I was by myself. My husband was a truck driver. I managed to drive myself to the hospital in severe pain. My head was exploding and it felt like a wheel in the back of my head was turning in circles. I was in hospital for 4 days. I left the hospital in severe pain and with high fevers. I also had a very high heart rate. I had several cardiology appointments and am still on medicine for heart rate. It took me 3 months to start feeling a LITTLE better. I feel for anyone who has gone through this. My faith in God is what helped me through this. I thought I would die. I also have issues with post traumatic stress from viral Menegitis and am still on meds from it! Hang in there everyone!

Posted on 26 March 2014

Comment by Rachel

Hey everyone, I am 19 years old and I was diagnosed with viral meningitis in February 2012 and was admitted to the hospital and sent home with lots of meds and instruction to rest and keep fluids in my system. I never had migraines and was always active playing varsity sports and participating in several clubs and worked 2 jobs in high school. About 2-3 months after getting over meningitis, I began to have headaches a lot and went to my primary physician and they said lots of teenage girls get headaches, it is probably just hormones and they put me on birth control to help regulate and balance the hormones. The birth control has helped some, but now. over the course of the past 3 months I have developed severe migraines, light sensitivity, noise sensitivity, nausea etc. as well as a stiff neck, sore muscles and sometimes fever. I have been trying everything to stop the pain from Ibprofen, Tylenol, various herbals such as fever few and butter bur, even some nausea medicines with the pain killers. Ibprofen seems to work the best for pain, but it only takes pain away for 2-3 hours, and even though the pain is gone during that time, there is still a constant pressure all over my head. It feels like a balloon inflating but can't go anywhere. With the stiff neck I cant even touch my chin to my chest and causes a pain to shoot down my spine if I even try. I want to think that these migraines are just migraines and I can get medicine for it, but all these symptoms remind me of the awful time I had meningitis. I am seeing a doctor this week and may have to have a referral to a neurologist. I just want to know if anyone else has had these problems after having viral meningitis? if so what is your take on things and have you found anything that helps?

Posted on 17 March 2014

Comment by Mala

It’s so reassuring to read so many similar comments, yet so sad. I had aseptic meningitis in Aug 2013. It was either viral or due to systemic lupus erythematous. CT scan was OK, lumbar puncture was done – I forget if there was something wrong with it. I’ve had headaches every single day since then. They were getting better but for about a month now they’ve been getting worse. If anyone has any tips on what I should try or theories on what is going on in my head, please suggest away. Pain: I’m usually OK in the morning. Most days I’m OK till 11 and then it starts getting worse. I get a shooting pain headache most times when I cough, sneeze, bend down, tilt my head back, reach for something, or sometimes even just laugh. I also get a shooting headache sometimes when I stand up. It happens quite a lot when I drive and sometimes in the office. I’ll be fine but as soon as I get out of the car I get a horrible headache that I need a minute to collect myself. The shooting pain normally goes away after a few minutes but the solid headache stays. I have never experienced this kind of a headache before. It is very different from my rare headache prior to meningitis. The headache is on all sides and my neck. It hurts the most on the top and the back of the head. It feels like my head is pressurised or too tight. Rest usually helps and ibuprofen helps. Extreme light also induces a stronger headache. I had an eye exam and they dilated my pupils on a sunny day! Don’t do it! Sunglasses, hood, hat – nothing helped – it was a terrible waste of a beautiful sunny day! Activity: When I have energy I can run and that does not make the headache worse. I still snowboard, although the shooting pain every time I do up my bindings is quite excruciating. I cannot do push ups, planks, sit ups, yoga, anything with jumping and any kind of staining is too painful. I also cannot play ultimate or swim lengths any more. I work in an office and my concentration is still good but I find it really hard to work after noon. For the last month, with increased headache, I am also very tired and I get more nausea. I have not been able to workout. Even just walking is impossible most evenings. (Not this evening, I went for a 5 k run and have enough energy to write this! Whoo hoo) Medications: I was given a prednisone pulse therapy in the hospital (1000 mg per day) for meningitis. I slowly tapered off and stopped taking Prednisone in January. I take 400 mg Plaquenil for lupus daily, I take around 2 Tylenols per week and 800 mg of ibuprofen. I try really hard not to take pain killers. In January I managed a few weeks without any pain killers. I have tried taking some migraine medications but they had no impact on the headaches. I have also tried osteopathy, massage, acupuncture, and meditation without success.
Any suggestions? Thanks :-)

Posted on 07 March 2014

Comment by Linda Kuck-Miklusak

I have had encephalitis once and viral meningitis once. The events were two years apart. The encephalitis was worse, such horrible pain. I couldn't move without my head, neck and back without hurting. 8 days in the hospital the first time and five the second time. I was sent to an infectious disease doctor and tests confirmed that the meningitis was being caused by the chicken pox virus, I take Valtrex 500 mg every day, and will be taking it the rest of my life. So far it has been four years without a recurrence, I do however have memory and muscle weakness issues. The doc said probably from the meningitis. It may go away and it may not. It is something I can live with though and I havwe learnewd different ways to help myself. I'm just happy to wake up in the morning!

Posted on 03 March 2014

Comment by Lysy Perez

I've had viral meningitis 4 times . I just had it again on February 17,2014. Prior to this time in 2007. I'm currently pregnant at the age of 32 and I am 27 weeks pregnant. It started out with headache sensitivity to light , I couldn't move my head up or down left or right , my eyes hurt so bad just to look at something , dizziness , tired ect it's been a week since I've been out of the hospital and I'm suffering really bad depression . I hope this goes away but I know it'll be back with a vengeance . This is a disability and should be treated as such . The Doctors have no clue why I get this !!!

Posted on 21 February 2014

Comment by Rose bartolotta

My grandson, at one month had viral meningitis. He is now 2 yrs. and 3 months. He cannot pronunciate his words and has vocabulary of about 10 words. Please comment

Posted on 18 February 2014

Comment by Connie McGeehan

Help!!! Need some answers. My dad has been in the hospital almost three weeks. They say he had MRSA and viral meningitis which caused a very minor stroke. My dad is talking crazy and is not making any sense. He was walking and talking fine until they put him in the hospital. Once in a while we think he's coming around and then it's right back to square one. We are not getting any answers from the Doctors. If anyone has any idea what is going on I would greatly appreciate some help.

Posted on 07 February 2014

Comment by Alyssa Papke

I had viral meningitis for several weeks and was diagnosed about 1 week after I graduated high school. I had a very traumatic spinal tap, it took them 7-8 sticks into my spine before they got any fluid. I was diagnosed with a sever case and sent to the ICU for 4 days, they released me and not even 24hrs later I was back in the ICU because they had ruptured my spinal sac and I was dumping cerebral-spinal fluid and didn't have any surrounding my brain. I ended up having to have a blood patch on my spinal sac and another 5 days in the hospital. It is two years later and I suffer from severe migraines, back pain and high blood pressure, the doctors keep shuffling my medications and telling me that in time my body will heal, but I'm 20yrs old and in college I don't want to be curled up in bed crying in pain I want to be having fun and learning . . .

Posted on 03 February 2014

Comment by Jennifer Weitz

WOW! I feel like a test subject & just get a puzzled look from doctors. Having viral meningitis 4 horrible times..spending weeks in hospitals at the time. I'm 38 now & my first experience was when I was 19 (2 wk hospital stay) then 31 I had it and it was severe med flighted to boston & spent 21 days in mass general.. then at 32 another bout spent 27 days in hospital & still came home with a pic line & I.V. drip meds thhen I thought I was in the clear and now at 38 had my 4 th bout spent xmas in the hospital total of 7 days but its been a month & I just dontt feel right..depression is off the charts irritable,my vision has declined severly, I am on a antiviral but I can't seem to get my happy laid back always smiling personality back..it stinks! I'm so sorry to see ALL these people experience this as I do cuz it really screws up a highly functioning household..I have 2 kids that r high level athlets. & a fiance that travels a lot and I feel like I'm letting my family down when this comes on & now Im afraid this 4th time has done a job on me.

Posted on 31 January 2014

Comment by Susan Tyler

My 29 year_old daughter was diagnosed 1 1/2 years ago with viral meningitis after contracting the Noro Virus. She had severe headpain, a stiff neck and extreme dizziness. After about 3 weeks, symptoms dissipated and she returned to normal activities. Late November, she came down with a bad URI, which led into extreme head pain, like someone is squeezing her brain and electrical impulses are racing through it. This is accompanied by varying degrees of diizness, feeling like she's drunk, slowed speech and even facial irregularities. Doctors are calling it Migrains with a misrepresentation in the visual field. An MRI and Lumbar Puncture were negative. She's on.. meds: a tricyclic, and something to lower blood pressure, but no changes. She can't work, or drive and has moved home temorarily I hope. I'm wondering if it's all related to the meningitis.

Posted on 22 January 2014

Comment by Jared

I was diagnosed with Viral Meningitis in Sept. of 2010. I was able to kick it quite quickly with the help of a nurse who went out on a limb. She came in and saw that I was not doing well at all so she pumped me full of Morphine and once the pain went away it stayed away. Since then thought I have horrible muscle pain and constant muscle spasms in my neck, back and legs.

Posted on 21 January 2014

Comment by Robyn Quinn Hakeem

Response to Christie Michelle...do you.cry a lot? Do stop crying even if u r depressed and eventually your migraines will go away. I figured this out about myself and it worked. I forced myself to laugh watch comedies make jokes etc...prayer helps too...if you find that itt hard to stop crying after you have made progress just keep fighting. It works keep laughing forget the pain of the past or rather accept it forgive it and move on. Keep forcing yourself to laugh and one day you won't have to anymore...you'll finally have a reason to...because you will be healed

Posted on 10 January 2014

Comment by Frustrated

I had severe form of encephalitis in May 2013. I was misdiagnosed a couple of times and I'm left with several residuals, besides problems with short term memory, I also have difficulty breathing and have irregular heart rate (increases abnormaly when I just stand up). I'm interested if anyone else experiences this? Paul (posted on August 14th, 2013) any improvement in your situation?

Posted on 22 December 2013

Comment by Zach L

I'm just out of hospital one day having been diagnosed with final meningitis. I was only in hospital for 1 wonderful day and was sent home with nausea pills antifungal and Percocet. I'm a little concerned because my pain level going in was a 10 out of 10, if I don't take my Percocet he goes right back to a 10, so it's really not getting better I'm just managing the pain. How long can this last?

Posted on 19 December 2013

Comment by Christie Michelle

I'm so glad that I found this site. When I was about 26 I was diagnosed with Viral Meningitis. This was only after weeks and weeks of debilitating headaches finally landed me at my doctors office. They tested my blood and found that a had a very high white blood cell count. It took way too long for my doctor to finally tell me what was wrong with me, which was extremely frustrating. My main symptoms were horrendous migraines that were constant, extreme sensitivity to light and ANY sound, vomiting, back and neck stiffness/pain, and brain fogginess . I basically laid in bed for months, in the dark, with no sound. I made the rounds to many different specialists and no one could figure out a solution for me. I was lucky in that I was able to take about half a year off work. I was sick for about 2 years in total. (my mom had to inform me of this time period because I seem to have blocked out some of it, or had some memory loss)
I began to feel better on my own and was able to start seeing friends, working and exercising. However, I now am suffering for a fairly serious bout of depression. I also am starting to get headaches again and find that the slightest cold or stomach ache will put me in bed for days. I'm afraid that the people in my life just DO NOT get it. I'm still battling something here but since I usually look just fine, no one believes I'm still suffering. I'm moody, emotional, tired, and I don't have the patience that I used to have. I snap at people that don't deserve it, then feel guilty and spiral into deeper depression. Any suggestions on how to improve life quality, or treatments that worked for these after effects would be really, really appreciated. Thanks!

Posted on 03 December 2013

Comment by manali Dixit

Hi guys, thanks all for your comments. .I was diagnosed with viral meningitis in 2010 dec.i still get scared when I remember the black day in my life..I was all fine and in a min I started getting bad headache, very high fever, stiff neck, nausea and I fainted...my family took me to emergency ward..I underwent lumbar ..and it came out positive. .the doc said I had viral meningitis. .I was in ICU for 03 days..dnt even remember anything ...but after 03 days I felt exhausted like I had no bones in my body. .was in hospital for 15 days...even today I feel very tired always. ..dnt feel like talking to anyone. ..get frustrated very easily. ..and worst part is get severe backaches coz of which im nt able to do any exercise and started putting on weight like there is no tomorrow. .im very depressed ..request someone to help us all in our situation. .

Posted on 03 December 2013

Comment by caroline codling

I have just came out of hospital, heaving been in four 4days, I had unbearable headaches and doctors said I had vm, was put on an antibiotic drip and didn't feel to bad, now that I am out of hospital I feel worse, very dizzy, have nausea off my food, and head and neck pain. will this improve at all

Posted on 19 November 2013

Comment by Tammy Johnson

I have been struggling with many of the same symptoms discussed in this forum. It began a month ago where I had extreme frontal pain headaches and severe fatigue followed with the half drunk feeling. I also get back and neck pain. I have been in and out of hospital and Doctor believes it is viral. I asked if I should have a spinal tap, but Doctor seems to think it won't change the outcome and it is not a pleasant procedure. I am getting tired of not knowing what is wrong with me. I did have a CT and it came back normal. Should I push for a spinal tap? I appreciate your feedback!

Posted on 16 November 2013

Comment by Bruce Ritenburg

Hello
I'm a desert storm vet 44yrs old. Started having flu like symptoms them I started to get really bad headaches and neck pain. Went to ER and was admitted to the hospital 2 lumbar, 2 MRI and numerous vials of blood were taken. Dr'd dx's vm, stayed in hospital for 11 days then went to follow up with neuro and was admitted again with neck pain and headaches the Dr's have giving me some type of steroid that seems to help with the neck pain. After reading these posts I take comfort in knowing I'm not alone
God Bless
Bruce

Posted on 10 November 2013

Comment by Vanessa denslow

Hi everyone, I have been reading your comments and it is true how debilitating VM really is. I was admitted to hospital in June 2012 and spect 10 days having intravenous acyclovir and have since then been re- admitted to hospital far too frequently - my last admission was September 2013 when then diagnosed me as having Mollarets meningitis.
I am on anti- viral tablets all the time and have to a degree learnt to control and manage the illness. Just recently though my husband has said I say random things and have no memory of them seconds later and don't even remember having spoken.
My father was diagnosed with Alzheimer's at 68 and I also find I wonder how much of my memory problems are related to the VM or if I actually have Alzheimer's too I am only 52 but it certainly is worrying.
I am lucky enough to be able to work but only for 4 hours a day and manage to cope with my busy job .
It is reassuring to read others are experiencing similar problems but I wish there were support groups. It is a disease/illness which is not given the attention/support it needs.
It has left me feeling very alone

Posted on 04 November 2013

Comment by Sunshine

I have just found this site and I am so relived to find out I am not the only one going through this. I spent most of 2012 with headaches and went to the Dr only to be given beta-blockers to try and stop them then on December 21st I was rushed to hospital by my husband with such a bad head I was in tears I couldn't open my eyes and felt terrible, before I new it I was in there for 2 weeks missed xmas and new year. I've never experienced pain like it Christmas day I had so many drugs I was hallucinating and in and out of consciousness. I came out in January. It took me 3 months off work with fatigue I couldn't drive and felt wobbly and still had a bad head and the neck ache drove me mad. I went back to work and it is now October and though I feel much better I still get Neck ache and headaches. my husband feels like he is living with an old lady and its very hard he doesn't understand. I have massive memory loss all the time and im just very frustrated. I guess its just good to here that its not just me if you know what I mean. because you feel like once your out of hospital and got the clear that you should be better normal even. but its not its slow and hard work. However this is not the case for all my brother in law also had this and within 2 weeks he was back to his normal self. I couldn't believe it ! so I hope that more people have an experience like his than mine (ours) if the do ever end up with this horrible thing. I feel like it will never go.

Posted on 29 October 2013

Comment by Leslie Bestulic

I was just checking online with my symptoms this morning as I had viral menengitis three years ago. Lately I've had fatigue, joint pain, and weakness. In an unexplained way. I have also had a cold and flu like symptoms twice in the last couple of months. I also get low blood pressure at the onset of these 'colds' and have felt faint and anxious. I do lead a very active life and I'm 53 years old. I was just wondering if it had anything to do with my past event of menengitis.

Posted on 21 October 2013

Comment by Chad Armel

Hello, my name is Chad. I woke up on Tuesday September 24th at 6:45 am with the absolute worst headache I could ever imagine. The pain was horrible. This was my second day of vacation and we planned to take my two year old to a local cave. I did not want to let him down, so I sucked it up and went. I was miserable the entire time, and so sick/nauseous, but tried to keep a smile on my face. When we left, my wife took me straight to the E.R. where after a CT scan, and then a Spinal Tap, they diagnosed me with meningitis early Wednesday morning. I was in the hospital until that Friday when they released me. I thought I was feeling much better until the ride home. It was a sunny day and between the sun and every bump in the road feeling like a crater, I was miserable. I had really thought I would be back to work by October 2nd, but did not return to work until October 7th. After two full weeks back to work, I only get slight headaches, but there are definitely some side effects that I cannot seam to get rid of. The first is that my body overheats all the time. I am constantly sweating. The temperature is now dropping into the 40's and 50's here and I am still very hot all the time. Overall, I felt as if I was moving along just fine until a couple days ago when all of a sudden thinking became very frustrating. I was configuring a computer at work a couple days ago and simple mouse clicks that used to be very easy for me to remember, were frustrating me so much. I often times, as many on here experience, feel foggy and out of it. I get tired very easily, and the amount of sleep that used to be satisfactory for me no longer is. I get very frustrated easily. I also noticed that my legs feel stiff and heavy when I walk alot, which was never the case before. I am also still sensitive to light, especially certain car headlights. Anyone with a similar story, feel free to reach out to me.

Posted on 14 October 2013

Comment by Kath pugh

I have had Viral Meningitis twice. A very mild case when I was 17 and a very serious case in 2008, I was 33. I spent 2 weeks in hospital lost 20 kilos in 2 weeks, I walked out of hospital weighing 47kilos. It took me 18 months to recover but 5 years on I still suffer side effects, poor consideration, vagueness, tiredness, memory loss, dificulty finding words/speech when trying to have a conversation, sensitive to noise. My immune system is poor and I also have post natal depression hard to say if this is linked? . Thankfully I hardly ever have headaches but when I do get a miagraine/flu I am so scared of getting VM again. It helps to know that others have side effects but were do we go from here are their things we can do to improve our brain activity which may have been damaged ?

Posted on 28 September 2013

Comment by Caley Bell

Hi im caley I have just had my second bout of viral meningitis. I first had it in 2009. And thought it was a migraine. After having the headaches, stiffness, and finally vomiting I went to the emergency doctors who sent me to hospital. Where I had a lumbar puncture that revealed I had viral meningitis. It was horrible. I was in pain and on a drip for at least a week and then in for a week or so for observations. I had a three year old daughter and missed her terribly. Then came back home and was exhaused. Ive just tonight come out of hospital after contracting it again. This time round wasnt as floppy or drunk like but vomiting was bad. Headaches still really painful and are now worse since ive been discharged. My head is hurting that much its making me cry. Its a horrible piercing pain. Paracetamol is not doing the job can any body recommend any strong safe painkillers.thanks

Posted on 27 September 2013

Comment by Kim Long

I was diagnosed with meningitis almost a week ago, staying in the hospital three days. They stopped the antibiotics when the knew it wasn't bacterial. Now at home for several day, I feel worse than ever--headache, backache, no appetite, fatigue. Thinking that I might be able to miss a week-to-10 days of work, I now have serious doubts. Reading your stories has me worried. Have I really caught a disease that will change my life?

Posted on 26 September 2013

Comment by Lyn Campbell

I too have had viral meningitis. This happened approx 10 years ago. I despair of ever feeling normal again. The tiredness, fuzzy head, aches and pains, shocking memory. The funny thing is that I used to be excellent at spelling - but not any more. Some days I get so depressed about feeling like crap all the time :(

Posted on 25 September 2013

Comment by Christine Pownall

I have been diagnosed with viral meninjitis 3times and each time have had lumber. Punctures and hospital stays of up to 12 days. The worst headaches and sickness I could ever imagine. The last attack was in August this year and I am still off work. I feel like I am permanently under water and am very dizzy and feel sick most mornings. Sometimes when I get up I literally fall to one side and have to grab something and wait for my balance to return. I am currently on anti viral medication called aciclovir. I am very emotional and irratible and find words that were on the tip of my tongue just disapear. Very very frustrating. One of the worst things is that because I look ( normal ) people think I am fine and they really don't understand. X

Posted on 12 September 2013

Comment by Debra A. Francis

I was diagnosed with Viral Meningitis on Sept. 23, 2011 after running a high temperature since Sept. 3, 2011. I spent 8 days in the hospital, really bad headaches & fever was my main complaint. The urologist was able to get my headaches under control with medicine. 2 Years & 1 week later I am still running temperature 2 to 3 days in a row about every 8 to 10 days. I have a burning sensation in my back, legs and arms all the time. This has been over two years & dr's can't tell me why I still have this. I am still taking medication for headaches. Anyone out there similiar to my case? If so e-mail please at francisdebraann@gmail.com Thank you!

Posted on 12 September 2013

Comment by Margie Bilyeu-Clark

I am 33 years old and when I was 25 I had come in contact with viral meningitis. I was doing school on line I had to nearly take a year off because of this disease. It had started out as a cold then the next morning I had a headache really bad and my balance was off and I had the sensitivity to light. If I had to go to the bathroom I had to crawl or I would fall down. It was horrible because my daughter was 3 years old and I could not get up and play with her at all. I went a whole week at home laid up taking Tylenol thinking that it would help it did not at all. I had went through this for three weeks. I had lost weight because I could not eat at all and if I did it was a liquid diet because I could not sit up other wise my head felt like it was going to explode. after a couple of days with these headaches I went to the hospital they had done a spinal tap and found nothing. so they sent me home and a week and a couple of days had went by and I went to my husbands doctor he told me what I had and he prescribed vicadin and naproxen for the swelling and the headaches with in three weeks I had started feeling a little better but not a 100%. To this day I still get really bad migraine headaches and they are worse then before. I also have short term memory loss because of it and my balance is still of some times and more irritable and short tempered. The pain of this disease is very horrible.

Posted on 04 September 2013

Comment by Joyce Jansen

I developed viral meningitis, encephalitis and seizures as complications of West Nile Virus 8/20/12. I started with sudden onset of nausea, fever,headaches, rash and weakness. I was treated for dehydration and given Tylenol for the fever and headaches. After six days of semi consciousness, the seizures started. I was hospitalized for 3 1/2 days, but only aware of the last 2 hours. Pain in arms and legs has decreased with medications, but still having hip and elbow pain (both elbows), chronic fatigue, extreme exhaustion. Although balance is better, still feel "Fuzzy" or under the influence when tired. After losing most of my hair, it is growing back with a different texture. My vision has improved, but still not as good as it was before illness. Don't tolerate car trips more than an hour at a time. Can only tolerate about 2 hours of mental work before needing an hour or so break. I was employed as a Director of Nursing in a Health Department, but i don't see myself working as a nurse for some time yet. I know the brain can be very slow to heal, but good to know that I'm not alone!

Posted on 02 September 2013

Comment by Janyce Shehan

Wow...... More food for thought......
2006 Diagnosed with SLE.. Lupus
2008 Viral Meningitis
2009 Fibromyalgia
2012 Chemical Sensitivity
2012 Irritant Associated Vocal Cord Dysfunction
2012 Dysgeusia and Parosmia = Taste and Smell distortion.

Symptoms include Headache, Extreme Fatigue, Light Sensitivity, Cognitive Issues, Double Vision, Gait problems, Tinitus, hands tingling, swelling of extremities, pain all over body intermittent and stings, burns, throbs, aches.. Legs swell upon sitting, and burn upon standing, Irritants/chemicals cut off my airways I choke and have to wear a mask to leave home, food intollerances, taste and smell distorted to the point of can only eat about 10 single foods, balance, fog, irritability, Insomnia, sweating, tachycardia, tremors on inside upper body, headaches, ear ache, itchy spots, and no doubt others that my frazzled brain can't think of, oh yea, can't read due to inability to comprehend, chemicals in print choke me, cardboard boxes choke me, air conditioning choke me, have to have air purifier in my home and car and wear a mask in car for diesel chokes me, feet throb, legs don't want to bend, can not do steps, and I was a realatively healthy working person attending the gym and swimming laps...... reduced to disability pension and a life of endless pain, frustration, loneliness and I justs exist to see my grand children and my family ..... I am 56.... jag7@westnet.com.au if anyone wants contact or 0427777556 mob . Cheers...
Your Stories your ailments so resemble a lot of mine, I feel for each and every one of you, and I had never included Viral Menengitis in my list of ailments until I read this, I truly thought it had come and gone and that was that, I had no idea and no did any DR or ED tell me of any... I now feel let down by the system for that illness too.. For there is no help WHAT SO EVER for my Irritant Associated Vocal Cord Distortion or my Chemical Sensitivities, or my Taste and Smell distortions... I have self helped and researched eg, mask, air purifier, water purifier etc etc.. My Dr told me Sorry I cant help you, I don't know anyone that can, I am sorry it happened to you, and I don't know why it happened to you...... no specialist help nothing...... feel free to call, I still am alive and I still like trying to live a life of smiles and fun and outings and everything else........ cheers.............

Posted on 02 September 2013

Comment by Kerri R

I had viral meningitis in August of 2012, took me a full month to be able to get back into the swing of life. Now, a year later, the slightest cold will land me in bed for up to a couple of days. I am an active 40 year old mother of 3 and I am rendered useless with just the sniffles. I sleep for 24 hours straight. When I try to get up, I get a headache just like I had when I viral meningitis. A common cold never affected me like it does now since I've had meningitis. I've lost 3 days at work this year because of colds. It used to take at least strep throat for me to call out of work.

Posted on 02 September 2013

Comment by April swanson

I had bacterial menegitis in 1979 at the age of 7. I was in the hospital for about a week and missed 3 or 4 months of school. I grew and developed fine with no lasting side effects. I do have aches and pains but no more than most people my age.

Posted on 28 August 2013

Comment by Paul G. Rockswold

I would be in heaven, if one other person said that they had experienced the same thing as me, or could tell me what the heck was going on with me! I have been to the best hospitals in the U.S., including the Mayo clinic. I contracted viral spinal meningitis insefiliitis, 20 years ago. I had a positive spinal tap ~ was sick at my parents house for 3 months. Bad headaches around my brain (whole skull area), eye pain, back and neck pain, and leg pain.

I started back to work and school after 4 months of recovery, and my meningitis showed its ugly head. Another positive spinal tap. More headaches, back pain, memory loss, leg pain, etc. 3 months of recovery. Back to school and work, Bam another bout of positive meningitis (I do not believe I had 3 separate events) I just think the illness lay dormant in my system.

Every 2 - 4 years, I am hit again with all the symptoms I have listed above. Minus the positive spinal tap. Just a month ago, I was hit with the headaches, backpain, eye pain, leg pain, dizziness, memory loss, etc.... and I lost my job because I was unable to keep working.

Has anyone out there, anyone experienced the same thing. Especially if there is a doctor who reads this, is there anything that can help me. Help my symptoms. Mayo believes that I have sort of a Mollerets meningitis that keeps on giving.

Thank you for taking the time to read this.

Noah (Paul R)

Posted on 19 August 2013

Comment by sharleen hughes

am 30 and and 5 years ago i was told i ave viral meningititis was very ill ened up in hospital for a week recoved quicker than i thought but i had it again nearly a month ago another hospital stay twice still not myself at all this time its been worse headaches feelin drunk warn out feed up and feel down wish it wud go away but worryed it could b worse next time asw ive had it twice more than likely been told i could get it again its the worse thing ive ever been throught with my health my head as never felt sooooooooo in pain in all my life !!!!!!!!

Posted on 14 August 2013

Comment by Paul

I started to get severe headaches in November 2012, my neck was aching, dizzy feeling, tinnitus and nausea. I had every test under the dim except a spinal tap, the dr says he suspected viral meningitis but has never confirmed it! Its now august 2013 and i'm still suffering, with asthma type symptoms and have had a complete loss of appetite, also my heart has been irregular! Has anyone that has been diagnosed as actually having had viral meningitis been left with breathing problems? I'd really appreciate any info!

Posted on 07 August 2013

Comment by Traci Sandstrom

WOW...like many of you, I'm glad I found this site. I had meningitis in April 2009 and still experience unusual tiredness, dizziness even while sitting still sometimes and horrible brain fog/block. I kept wondering if anyone else feels this way. I really wish there was a solution to it all but I'm not sure the after effects will ever go away.

Posted on 07 August 2013

Comment by Naomi Forder

I'm 21 and was diagnosed with viral meningitis 2 weeks ago. I've been out of hospital for a week, I felt fine while I was in there (still felt a little nauseous, little headachey but was better than I was) but now I've started feeling sick again almost all the time. I feel constantly tired even though I've had a good night sleep, my 16 month old daughter is really good so I haven't been tired out dealing with her. I feel snappy all the time with my boyfriend and its caused a huge amount of friction between us. He doesn't understand what I'm dealing with and thinks because I'm out of hospital I'm over it! How long does it take to feel normal again? I go back to work on Saturday and I'm worried they won't understand as I'm cleared to be back at work. I feel very vulnerable at the minute, can anyone help? I just want to be able to eat properly again and not feel so exhausted all the time.
Thanks, Naomi.

Posted on 06 August 2013

Comment by Olga Trollip

My name is Olga, I was 33 when I contracted viral meninitis almost a year ago. Now I still feel aftereffects of it, especially when I get tired. I start having a sort of a fever, when my neck and my head feel hot, yet my hands and feet go ice cold, then I start feeling weak and on a verge of fainting. At the same time my heart rate goes so high I feel like I ran a race, when in truth I have been in bed for hours. Sometimes I can go on completely healthy and normal for months (if I don't over work myself). So I have to be careful how much I do. I can even exercise at times, but very little. 2 months ago I was able to do a 10km race (i walked), but few weeks later I ended up in bed again not able to go to work. So it seems like a very slow recovery that I need to learn to accept.
The most frustrating part is when people tell me I must go to the doctor. Honestly I will feel verys stupid telling the doctor I feel tired. I know where it comesd from as I know my body (I live in it). I know how I felt when I first ended up in the hospital and how I felt during the recovery. Non of the symptoms are new, so I don't see the point asking for an opinion from a doctor who will tell me I have had meningitis. However, reading all the comments does shed light on the length of the recovery. Makes me feel much better that I am not the only one still struggling almost a year later.

Posted on 30 July 2013

Comment by Pamala burke

I was diagnosed withviral menigitis 3 weeks ago, stsyed in the hospital for 2 weeks! I also had increased pressure on my brain! I am home now and still suffer from severe headaches stiffness in my neck and light sensitivity, is this normal?

Posted on 10 June 2013

Comment by haleigh newman

I got a very had headache in march of 2013. It was constant, never going away just changed in intensity. I was working full time as a baker, I would get very dizzy at work drop things, etc. went to the dr and he took me off work while he ran tests ( 2 weeks) mri's, ct scans, sleep study, blood work, etc. Nothing worked so in may they finally did a spinal tap and found I had (or have) viral meningitis. I am still off work.. has been 3 months now. I don't know when I will be able if ever to return to work, my headache is still constant, I have very low energy and get dizzy and spacey all the time. Can anyone else work with this? is there any financial help for this disease, it truly is disabling and I have a family. The stress of not being able to work does not help. Thanks!

Posted on 30 May 2013

Comment by Brandon buck

A couple of dasy Before I got viral meningitis, my body would hot, but only my chest and neck for 10-20 min, it would happen two times in one day. The next day, I was congested, the following, fever and congested. The pain in my head where the Mengies were started, from a pain to 8 out of 10. My neck was extremely stiff. But the doctor said my neck was only stiff when he moved it side to side. Went to the hospital for the day, got a spinal tap. Didn't have bacterial meningitis. My head pains got worse, where Advil or another pain relief did not work. When I laid down on my bed, the pain went away, but when I stood up, extreme pain shot through the top of my head. It's been a week and a half. Ive been to the gyms few times because I'm an exercise freak. I have noticed today my body has gone through the same heat pattern, on my chest, and neck. Could I be getting viral meningitis or any other type?

Posted on 22 May 2013

Comment by logan long

Hey my name is Logan I found out last week I had viral meningitis! I was in the hospital for 4 days and I felt better by day 4 but I've been out for a little bit now but one thing that has never stopped is these horrible headaches does anyone know how to get rid of them???

Posted on 15 May 2013

Comment by Doug Miller

I was diagnosed with Viral Meningitis in April, 2012. I'm now 60. I have been extremely healthy my entire life so this hit me like a ton of bricks. I was out of work 6 weeks and took another 4 or so to kick it...or so I thought. I developed tremors, fatigue, headaches, pains in my neck (base of neck), and dizziness. At first, I thought I might have contracted Parkinson's Disease, based on the symptoms. However, after researching the long term effects of Meningitis and reading your posts, I feel much better about not contracting Parkinson's. As I've read your posts I don't feel alone and it helps having a much better understanding.

Posted on 11 May 2013

Comment by kris oneill

Does anyone experience tightening at sides of neck and pulsating at sides of neck as well as base of neck? Also anyone having sharp chest pains? Seems like I'm dizzy w headache in forehead and eyes majority of my days. I'm 5 wks post diagnosis. any sililarities or coping is appreciated. And can we get back to exercising hard w these kind of headaches?? Thanks

Posted on 05 April 2013

Comment by Olive

Had viral meningitis 2008. Appeared to recover ok but now getting severe headaches. GP done tests but no reason for them. With new GP as moved house so doesn't know me or previous medical history. Could headaches be result of meningitis.

Posted on 14 March 2013

Comment by Kathy Davis

Hi all. Glad I found this website. I'm different from the other respondents since I got viral meningitis a month ago at the age of 65! I feel much better but not as good as I was. One strange thing - I've started getting migraines again. Had them since age 12 but they went away with menopause. Now back. Anyone have experience with migraines recurring? KD

Posted on 05 March 2013

Comment by lisa sparks

My sister was diagnosed with viral meningitis last week. She was better for a few days and now is back to the way she was when rushed to er. I have read all these posts and my heart is breaking....is there anyone that has had a complete recovery with only minimal side affects.

Posted on 27 February 2013

Comment by Janie

Hi guys,
It's really interesting reading all your messages, they're all appreciated. I was diagnosed with Viral Meningitis in March 2012. My first week out of hospital I was still vacant and my speech was terrible. As I started to be able to do more, more problems arose. In all Viral Meningitis has affected all my Cognitive Skills- balance, co-ordination, propreception, fine/gross motor skills, reading & writing, mood swings, and extreme tiredness more like a rung out cloth feeling!... and there's still more, concerntration, memory and understanding.

Even up to almost a yr on I still have problems with these issues, especially when tired but I hope for all of you who are a few months of into recovery aren't worried by the thought of a yr until symptoms improve. There is a fairly steady improvement, each month there would be something that seemed better, then a month or so that would be the status quo, then another improvement, but where cognitive skills are concerned you definitely have to work at them.

I'm a 400m athlete so having problems with these skills were certainly infuriating as they had been at their best as part of my training. Prior to being ill I was training x6 per week. I'm now edging into my training again. I really nope this helps those feel better with more info, I contacted the Meningitis Trust who where a great comfort and happy to impart with info. I look forward to any responses. Take care & look after yourself xxx

Posted on 23 February 2013

Comment by Vanessa Randall

Hi,

I'm 19 and on 1st October 2012 was when everything began for me... was diagnosed after I was actually treated for viral/ aseptic meningitis, though they thought I also had bits of encephalitis. I had been feeling rough a couple days prior with headaches, but then I 'woke' up (luckily my boyfriend was staying in my halls at uni) being sick, talking gibberish, confused and I barely remember any of it.

I was discharged from 2 hospitals and twice went back in an even worse state. Losing a couple days as I have no memory of it. Was in a hospital about 5/6 weeks and was the worst time of my life where I kept relapsing during treatment and when they cut down. I had all the brain scans going and they couldn't see anything. Not to mention 8 lumbar punctures and will have a 9th in Easter holidays...

I'm now on anti inflammatory pills since coming out of hospital, but suffering horrific headaches some days and feel ill most days. I have awful memory too as if i've been drinking the night before and it's all hazy as well as feeling hungover when i wake up. It's hard being away from my family when i'm still in recovery and want/ need looking after some days. But its worse that it's ruining my university experience and it's beginning to make me depressed.

I wish I could say that 'at least i'm here today' but I don't think i would have died. I hate living like this so much and I really hope it can get better soon. Only my mum and dad know exactly the ins and outs of horrible events in hospital and my friends don't know. I can joke about things now which is just my way of making me feel better about it all. But it annoys me that everyone thinks i'm ok now that i'm out of hospital.

Another thing i should add is, I never went to the doctors about anything before this and lived with anything i was feeling. This was a wake up call and people don't need to go through being in hospital and I urge my friends to go now anytime they feel ill and i;m always honest now with how i really feel.

With the pills i still get incredibly vivid dreams and i'm still scared about going to sleep here in case i don't wake up and my flat mates think i'm out or something. I hope this goes away in time.

Posted on 19 December 2012

Comment by nia montague

Hi my name is nia and i was diagnosed with viral meningitis when i was 10. Im 20 now. I still experience bad headaches and get dizzy from little to heavy activity. I really do need more information on post meningitis because i dont think this is normal. Looking at some these responses i see things similar that go on with me. if any one can provide me with anymore information i would greatly appreciate it.

Posted on 05 November 2012

Comment by Kate

Hi Missy, I'm 29, I was diagnosed with Viral Meningitis mid-September this year. I'm still off sick and suffer with regular headaches, neck and back pain, dizziness and being spaced out.
If you're interested, I'm writing a blog about my experiences of VM to benefit other sufferers, amuse my family and friends and also to process everything that has happened. Have a read:
http://landskatedesign.wordpress.com

Posted on 23 October 2012

Comment by Luis

I am 15 and was diagnosed with viral meningitis. Whenever I play a sport I get really dizzy and start to get a really bad headache. Has this happened to anyone else that has had it?

Posted on 12 October 2012

Comment by Tanya southwell

Im amazed I thought it was just me. I had spinal menegitis when I was 2. My mom said 1 min I was fine then the next by spine instantly started curving back word, high fever, hulusinations everything. My spinal fluid traveled down to my knee and they had to do surgery to repair it. I spent two weeks in a comma and 3 months in the hospital. I'm 27 years old and I would say my pain is unbarrable almost everyday. My pain is in my back and neck, and gets to the point where my left leg goes numb or I get shooting pains in it. My neck is always stiff and my back always hurts. My memory has gotten extremely worse in the last 2 years, I find I get bad anxiety and depression. My energy is pretty low most of the time. I've tired talking to doctors about it but they blow you off or tell you no there's no side effects. In my life its hard to get your family on my side as well. Well after reading all the comments I'm beginning to think there wrong. It's nice to finally hear I'm not alone. ~🌸keep fighting the good fight and God will take care of us🌸

Posted on 11 October 2012

Comment by Jaclyn McManus

I got meningitis 3 years ago when i was 18 and I have had after-effects the same as you. I kept trying to find if anyone else had them but I couldn't find anyone with the same symptoms as me. I sometimes feel like im in a dream and I sometimes feel like I've been drinking, the same as you. This gets worse when I am tired and the next day I feel like the details of the night before are a bit hazy, as if I had been really drunk when I hadn't even had one. When I HAVE been drinking, I have terrible memory loss and I get drunk really fast so I tend not to drink much any more. When I was in hospital, I didn't go into a coma or anything but on my worst day I couldn't move my arms or legs because they were so weak and I couldn't speak - it was like baby talk that was coming out even though I knew what I wanted to say in my head but my mouth just couldn't form the words and it just came out in these funny noises. At first I was getting terrible migraines almost every day (now it's only once every week or 2) and it took me over a year to get any strength back in my muscles.

I also feel like I have quite a short temper and I feel myself getting angry or frustrated at the simplest things when the logical part of my head is telling me to stop being so silly. The drunk thing is my main after-effect though and the thing that annoys me the most, because with it comes the slight memory loss. As soon as someone reminds me then I can remember it fine but I find it hard recalling it myself. Glad to hear that apart from that you are doing ok though.

Posted on 05 October 2012

Comment by MRF Helpline

We’re sorry to hear that you’re struggling with the after effects of viral meningitis. It is a very serious illness and we do know that recovery can take quite a long time and the extent of the after effects is not always understood. You may be interested to know that we are currently funding a study in England about the longer term effects and you can read about it on our website: http://www.meningitis.org/current-projects/adult-meningitis-caused-by-29901

Posted on 02 October 2012

Comment by Caroline Garza

I was diagnoses with viral Meningitis in November last year. I have gone from a high functioning working person to stay at home tired one. I struggle with memory issues and still get horrible headaches. There seems to be a lack of fully understanding this disease in Houston by some of the treating physicians. Many are still surprised that a year later I am still dealing with this. I would appreciate hearing from anyone who also had the viral form especially in the US. CarolineG220@gmail.com

Posted on 19 September 2012

Comment by @prettymess612

In 2006, I found out I had Meningitis..I was only 20 years old and I had no idea what that was. When my doctor explained to me what Meningitis was and what type I had...I was freaked out! Because, she warned me...if I hadn't came to the ER any sooner, I would have possibly died the next day! Ever since that day, I realized..people should find out more about themselves! The pain and agony that I went through with 1 week of Meningitis was the worst week of my life! I blew blood out of my nose for 2 weeks..it literally felt like, someone was squeezing and twisting my brain like a wash cloth..the pain in my head and back was so bad, that I can actually compare the pain to the day I saw my uncle right after he was murdered! Meningitis is FOR REAL! just to know, some horrible bacteria was living on my brain and spine is more than enough to cope with...do your research please, because it kills!

What do you think? Join the discussion

Fields marked * are mandatory



(address will not be displayed on the website)


Suggest a new post

Tell your story

Help raise awareness, share your story in the Book of Experience